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OMG. Does this mean I've been poisoning my child? - Page 2

post #21 of 33
Thread Starter 
Quote:
It was six weeks w/o milk or soy before my LO had normal BM's.
This is good to hear (well, you know what I mean). I wish there was some standard equation I could use to know for certain when her body is cleared of certain foods because I know it's going to be very hard to make a decision about a new ED if she hasn't cleared up in about 3 more weeks. However, since I know 50% of dairy intollerant people also can't do soy, maybe I should be gauging my timeline on how long it's been since she had soy instead of dairy (since that will be the longer of the two measurement/time if that makes sense). I am really considering NAET and/or applied kines. right now and am trying to find Seattle area practitioners of both. I'm calling DD's chiro today to see if she has any recs. I'm almost certain she doesn't do AK because she is well aware of DD's food issues and has never mentioned it.
By the way - are there hypo-allergenic gas relief infant meds on the market (I haven't started looking yet). DD woke twice last night because of big toots and I really don't need any more night wakings than normal.

Oh...mommydancer. Does your LO do okay w/ soy lecithin or not? I have not eliminated it at this point and am wondering what your personal experience is w/ it.
post #22 of 33
Quote:
I wish there was some standard equation I could use to know for certain when her body is cleared of certain foods because I know it's going to be very hard to make a decision about a new ED if she hasn't cleared up in about 3 more weeks. However, since I know 50% of dairy intollerant people also can't do soy, maybe I should be gauging my timeline on how long it's been since she had soy instead of dairy (since that will be the longer of the two measurement/time if that makes sense). I am really considering NAET and/or applied kines.
I think it takes a day or two to clear our system, and more like five or more for theirs (ballpark? just heresay) As I said, it was six weeks before the damage in my LO's insides had healed to where I didn't see blood anymore. It takes time also before a reaction builds to where we can see the symptoms when they have eaten something they can't have. If I were making this decision, I personally wouldn't start "counting" until the last day your DC ate a potential offender. I know that's awful...to feel you're starting over, but you are checking to see if removing the offender(s) will help, thereby proving that the offender is CAUSING the symptoms. You want an answer you are sure about. You don't want to wonder...what if I cut off the test before I was sure? It sucks, but you have come this far. I would want to know for sure.

As for lecithin, I do not believe he reacts to it. I have also heard and read that it should be fine for most. I think it is protein that's the issue for my LO, and I don't think lecithin is protein...not that I have researched it. The oil seems not to cause problems either.
post #23 of 33
Quote:
Originally Posted by mommydancer View Post
I think it takes a day or two to clear our system, and more like five or more for theirs (ballpark? just heresay) As I said, it was six weeks before the damage in my LO's insides had healed to where I didn't see blood anymore.
That's really good to know. My DD's last reaction I think was to beef (have been off dairy for 2 months, and didn't cross my mind that she would be one of the few that also reacts to beef...) and it's taken her longer to shake the symptoms. She is usually rid of the eczema, spitting up, screaming episodes after about 4-5 days, but I'm still seeing bloody/mucousy poos after 2 weeks. I was hoping that it's just left over from the last reaction, and not ANOTHER bad food in my diet... so your post makes me hopeful that's the case.
post #24 of 33
Thread Starter 
Quote:
I think it takes a day or two to clear our system, and more like five or more for theirs (ballpark? just heresay) As I said, it was six weeks before the damage in my LO's insides had healed to where I didn't see blood anymore.
Have you read this about all foods or just some foods? Everything I've read says that dairy takes between 10-14 days to leave mom's body and an additional 10-14 days to leave baby's body. I think this is the food that takes the longest to completely leave but are there any others that might take a bit longer like dairy?
I am now a proud owner of Is This Your Child and I can't wait to start to read it during the next nap. I'll finally start to be able to answer some of my own questions!

ChangingSeasons - where is The Grainery? I tend to just discount this whole south end (bad, I know) and do all of my shopping in Seattle so I am not aware of anything around here really. Also FYI: the new Fred Meyer in Des Moines has a surprisingly good natural foods section.
post #25 of 33
I do the same thing... we've only lived down south for about a year. I just actually found the Grainery because I was looking for the allergen-free calcium citrate and was too tired to drive up to Whole Foods in Seattle, and I found them on Google under vitamins and health foods.

The Grainery is on 1st Ave, just north and across the street from the Burien Fred Meyer (which also has a great health food section, including a lot of allergen free stuff that I was happily surprised to find!)
post #26 of 33
Hello. I'm just wondering if anyone can suggest where to get the HMF Neuro Powder. Please excuse my ignorance, but does HMF stand for a longer name?

Currently I'm giving DS (5 yrs old) Natren probiotics (parts 1 and 2, but not the Healthy Trinity) and he seems to be reacting to it as his eyes have those "shiners" again. ugh! We are GF/CF and this is supposed to be dairy free, but something is definitely going on.

DS definitely needs gut healing/probiotics, so if anyone has info, I'd greatly appreciate it.

Thanks!
post #27 of 33
Thread Starter 
As far as I could tell they have to be ordered online. I do believe some ND's carry this line but I can't figure out how to tell who. I just ordered online from Rockwell this time around because that was the easiest, quickest thing to do but I will be trying harder to find a lower price next time around.
http://www.rockwellnutrition.net/HMF...E_p_0-802.html

I'm not sure I'm looking at the right probiotics you mention but the Natren Life Start and Life Start 2 both have milk in them so that's probably the problem. Life Start has "non-fat milk and whey" and Life Start 2 has "whole goat milk and rice flour" - the ingredients are listed on the website.

I know...go ahead and cry now. You're in the same boat I was. It SUCKS to know you've been "poisoning" your LO when you were specifically trying to do a helpful thing but luckily you can stop it immediately and order HMF Neuro today. I feel for you both!
post #28 of 33
Natrn does have a dairy free probiotic suitable for babies. It's called bifido factor & it's cultured on chick peas. You just need to make sure you have the dairy free version. I think it has a green label. I was able to special order it at Whole Paycheck.

ETA: If you have q's about Natren I've heard they are really good about answering questions so I'd call them.

re: HMF products - I emailed the nutritionist a while back & she said that HCL Mindlix by Pharmax is the same product as HMF Neuro. When I did a search for the pharmax product I was able to find several sites that sold it for less. Just an FYI for the future.
post #29 of 33
Thread Starter 
Mindlix is not coming up on the pharmax website (unless I'm just blind) nor is anything coming up when I do a general search for it. Do you know if this is still produced? Have you checked that this product does not have lactose like the neonate does, if it is actually produced? Just curious...
post #30 of 33
I was checking it out yesterday. It looked like the exact same formulation as the neuro. Here is a link to the product:

http://www.myhealth-store.com/hlcmica60ca.html

I guess I spelled it wrong. I don't have time to check out the pharmax website but will later. Sorry for the confusion.
post #31 of 33
Thread Starter 
Well, bummer! I am fairly certain DD is reacting to something now that I changed to my way less restrictive ED. Her naps had lengthened for a few wonderful days and she did not have painful gas. Tue, Wed and today her naps have shortened again and last night she had cry inducing painful gas. Ugh. I have decided to eliminate wheat (but not gluten) and see if that's it. Based on before, if it is the culprit I think I should be able to tell within about a week. Oh, please don't let it be gluten or corn. I just can't cope.
post #32 of 33
Hi! Thanks for the infor on HMF Neuro Powder. I actually AM using the Natren dairy free (chickpea) probiotic. So I'm actually wondering if it is the chickpeas he's having problems with. This is so frustrating. I know he's being bothered by something . . . (BUT he also desperately seems to need a probiotic). I always heard that Natren was such a great product (not saying it isn't, just that it might not be right for DS). Oh I'm just so frustrated!
post #33 of 33
The thing I thought right away when I saw chickpeas was...well, we can't use that one...we can't do legumes. It is really frustrating. i'm pulling for you.
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