T/ED Refugees check in here..... - Page 6

[chlobo]

trip report

We left at around 7:30pm on Monday night. Adam was soon asleep, which was our plan. Isabella insisted I read her stories but fell asleep after about half an hour. We drove straight through. Isabella woke up about half an hour before we arrived at the hotel. Adam slept the whole way until we took him out of the car. Once in the room, both kids seemed wide awake. Thankfully, they both fell asleep after we settled in and turned off the lights (probably 11:30 or 12). Both kids woke up chipper at around 5:30am (us, not so much). We had breakfast & puttered around & then left for the Dr. at 8am. Adam soon fell asleep. We puttered around at the grocery store & then arrived at the Drs at 9am. Since we weren't scheduled until 9:30 we just hung in the car with sleeping Adam.

Adam awoke very cheerful. He seemed to like the Dr. Since he was awake she opted to do the procedure first & do paperwork after. I took Isabella outside since she doesn't like to hear babies scream & DH stayed with Adam. He seemed to need to do that for his own sake. Adam had a type 3 tongue tie & an upper lip tie as well. She clipped them both. He bled minimally & was a trooper. After the procedure I nursed & then DH rocked Adam to sleep & went into the waiting room while I answered questions from the doctor. That took a while as she was chatty & I also asked a lot of questions. She thinks Isabella also has a type 3 tongue tie, although different from Adam's. She can stick her tongue out & has a lot of range of motion. However, she does have trouble swallowing. We were going to call her friend after the appt. but forgot. So I need to call her about that.

Anyhow, Adam slept all the way from Long Island to just past Hartford. We stopped to eat & he was in such a good mood. We got back in the car & he was a little cranky but fell asleep again until we got home. And he was so cheerful at home. We did give him tylenol, along with the arnica. Today I've just given arnica. Erik's seen him stick his tongue out several times. We're working on the latch. It is definitely better but old habits die hard. I am going to call the LC who dx him for a followup. He also will get craniosacral therapy starting on Sat to help spread his palatte out to relieve congestion.

Sadly, DH is having some post procedure anxiety about having put Adam through this. It's very sad.

So, there you have it. We'll see what happens.

carren

[nalo]

All things considered it sounds like it went really well. Hope you see some improvement soon! Poor DH - sweet, loving father. I hope he can come to terms with it all. Ultimately, perhaps it will help to know how common this procedure is and it is probably already just a small blip on DS's radar. Interesting to hear about your daughter too...

[matey]

Originally Posted by coleslaw

I don't know if this has been mentioned, but I read back in the beginning someone who is avoiding dairy, but eating steak. I was told that for some dairy-allergic people, you need to avoid anything from a cow, including the meat. Sorry I couldn't read all the way through to see if you all already know this.

I am going to pretend I didnt read this...:

[matey]

Originally Posted by chlobo

We left at around 7:30pm on Monday night. Adam was soon asleep, which was our plan. Isabella insisted I read her stories but fell asleep after about half an hour. We drove straight through. Isabella woke up about half an hour before we arrived at the hotel. Adam slept the whole way until we took him out of the car. Once in the room, both kids seemed wide awake. Thankfully, they both fell asleep after we settled in and turned off the lights (probably 11:30 or 12). Both kids woke up chipper at around 5:30am (us, not so much). We had breakfast & puttered around & then left for the Dr. at 8am. Adam soon fell asleep. We puttered around at the grocery store & then arrived at the Drs at 9am. Since we weren't scheduled until 9:30 we just hung in the car with sleeping Adam.

Adam awoke very cheerful. He seemed to like the Dr. Since he was awake she opted to do the procedure first & do paperwork after. I took Isabella outside since she doesn't like to hear babies scream & DH stayed with Adam. He seemed to need to do that for his own sake. Adam had a type 3 tongue tie & an upper lip tie as well. She clipped them both. He bled minimally & was a trooper. After the procedure I nursed & then DH rocked Adam to sleep & went into the waiting room while I answered questions from the doctor. That took a while as she was chatty & I also asked a lot of questions. She thinks Isabella also has a type 3 tongue tie, although different from Adam's. She can stick her tongue out & has a lot of range of motion. However, she does have trouble swallowing. We were going to call her friend after the appt. but forgot. So I need to call her about that.

Anyhow, Adam slept all the way from Long Island to just past Hartford. We stopped to eat & he was in such a good mood. We got back in the car & he was a little cranky but fell asleep again until we got home. And he was so cheerful at home. We did give him tylenol, along with the arnica. Today I've just given arnica. Erik's seen him stick his tongue out several times. We're working on the latch. It is definitely better but old habits die hard. I am going to call the LC who dx him for a followup. He also will get craniosacral therapy starting on Sat to help spread his palatte out to relieve congestion.

Sadly, DH is having some post procedure anxiety about having put Adam through this. It's very sad.

So, there you have it. We'll see what happens.

carren

Sounds like things went pretty well, except for dh anxiety. Poor guy, that's sweet.

[Astromom]

Carren,

You handled what must have been an incredibly stressful day with such calmness and grace. It sounds like this was a good route to take and I hope he recovers quickly!

[nalo]

Gluten question.

I cut out gluten a while back not because I suspected an intollerance in DD but simply to aid in her gut healing. Do you think I need to get to total baseline before trialing gluten or is there some point in time where her gut would be "healed enough" for me to start having gluten again (assuming she doesn't react to it). I don't want to push my luck or mess her up at all - it's just that this is my hardest thing not to have and I don't want to keep it out any longer than I have to.

ETA: what about only having it every 4 days or whatever the rotation diet would suggest?

[SAmama]

I wouldn't do it. If you have such a hard time avoiding it, it would be a red light to me. Gluten is hard to cut out, but there are so many other grains that you can even make breads and crackers out of. I don't think it is worth it. Just my .02

[nalo]

Originally Posted by SAmama

I wouldn't do it. If you have such a hard time avoiding it, it would be a red light to me. Gluten is hard to cut out, but there are so many other grains that you can even make breads and crackers out of. I don't think it is worth it. Just my .02

A red light for what? I know that I do not have any food intollerances, including gluten. Every gluten free bread-ish item I have tried is just SO FAR from the real thing, even really "good" things like from our vegan, GF bakery. I pretty much dislike them all, except for the Lifestream GF wildberry waffles. I mean, when I want a cracker I want a Late July "ritz" or something, not another frickin' rice cracker and when I want a sandwich I want a good tasting sandwich not one on Food for Life rice/millet bread which I think is pretty disgusting. I'm sorry, I'm just in a foul mood at the moment and really annoyed that I can't have normal food or go out to eat or have anyone cook me anything because I don't trust them to avoid the right things. :

[matey]

I would hate to be gluten free. Dairy sucks, but I count my lucky stars that as far as I know, gluten is ok.

[changingseasons]

I thought gluten was ok too, until we got tested.... Now it turns out that I'M the one with a gluten problem, and DD is fine with it.

I hear ya Mary- it is SO frustrating when the only things you can eat are boring, cooked at home foods. It would be so nice to be able to just grab something (packaged) from the store, or go out to eat once in a while. And I too hate rice crackers- I think they are disgusting.

[matey]

Yes, rice crackers are not very good at all.

I tried Road's end Organics Macoroni and Chreese today...thumbs down. Was it supposed to taste like cheese? I think so, but it didnt. The texture was ok though.

I am going to a baby shower today that I am sure will be loaded with yummy dairy things like dips and deserts. I am trying to fill myself up before I go, but it is still going to be difficult. Hopefully, there will be some vegetables.

[changingseasons]

Originally Posted by matey

I am going to a baby shower today that I am sure will be loaded with yummy dairy things like dips and deserts. I am trying to fill myself up before I go, but it is still going to be difficult. Hopefully, there will be some vegetables.

Oh, that is so hard.... good luck!

[chlobo]

My daughter gave the road's end the thumbs down too.

On another list I belong to I came across a flatbread recipe that's supposed to be ok. Haven't tried it yet:

http://glutenfree.wordpress.com/2007...dwich-success/

We all kno how you feel. Someday this will pass. Personally, I'd rather get ice cream back at this point.

[matey]

So...TMI...I think the Road's End Mac and Chreese gave me the runs at the baby shower. Something gave me the runs, and considering it is the only weird thing I ate.

Oh, and I did good eating at the showere, which was LOADED with dairy dips, but I did have the smallest piece of cake. I dont think I can even call it a piece. It was like, a sample.

[pokeymama]

Chlobo, I'm glad the procedure went well.

Haven't checked in in a while...too much life going on.

Facial eczema has gotten so much better - I can actually see white skin on his left cheek (the worst one)! Not completely cleared yet, esp. 2 bad spots, which a doc (holistic MD, FP) said were not infected. Body excema seems to be migrating, which the nutritionist said is good - moving toward the hands/feet, away from the middle of the body. So I'm hopeful in that respect.

Poops have gotten a bit watery again, but can be pretty creamy (also slimy, but I'm not freaking out over that). He does get a rash from poop, but BM seems to clear that up. Unfortunately, poops aren't as noisy as they used to be, so he sometimes sits for a bit until I smell it.

We are doing BLW very slowly - everything seems to have been ok on that front. I wish we could just give him whatever we are eating, though! He's had broccoli, green beans, banana, mango, cantaloupe, honeydew, watermelon, avocado, babaganoush (sp), and (oops) refried beans.

Oh, once upon a time I read that short, dark, "threads" in poop were from yeast die-off? Else it could be from banana.

Sleep - we were still lucky to get a 2-hour stretch, but now it's worse. I blame the itching. DH wants to take John to a dermatologist when we get our insurance cards (insurance should be kicking in any day now). Luckily, DS fell asleep tonight before we got to the Benadryl.

Also, John is now crawling and doesn't side-lie nurse very welll, which is generally the only way I get him to sleep at night - he wants to get up an crawl, then eat a bit - it's hilarious how he lunges for the nipple, but his aim is getting a bit better! Very frustrating, however, Most times I call in DH to help hold him down - gently, of course.

So, maybe you can tell from the symptoms I suspect yeast. He has had a whitish coat on his tongue for a while now, but the same doc who said he wasn't infected said it wasn't thrush. I have GSE and started trying that a while ago, but didn't follow through. Bad mama!

OK, I'll post about food later.

to everyone! This is so not fun.

[SAmama]

After going at this for a year and a half and researching the heck out of digestive issues, allergies and nutrition and also talking to a nutritionist who focuses on traditional foods (aside from all the doctors, allergist, dermatologist and ND's), I think there are many people who have issues with gluten and don't suspect it. I was one of them. And after avoiding it VERY diligently I cannot say that I have seen major health changes, but I "feel better". I also believe that if you have any digestive issues (or have a babe with it) and your goal is to heal, not just avoid foods, then avoiding gluten is key to getting healthy. Either that, or you have to make it all at home anyway, fermenting and sourdoughing it without end. Improper preparation of grains harms anyone's intestines, whether it shows immediately or not and gluten containing grains are the worst. In the end you will pay for the convenience of being able to grab something from the store. We are all paying now. Just my opinion. If you really want to do it, maybe you can find Ezekiel bread or authentic sourdough.
I am from a major bread and cheese eating culture, so much so that it surprised my bread loving dh. Cutting out grains has been a huge adjustment for me, but worth it. Dealing with the trouble has been hard and very, very emotional, not to mention limiting in our work (poverty alleviation in villages where people DO NOT understand when you cannot have the yogurt, cheese, butter tea, eggs, bread OR fried barley flour!! - which is all they eat). But we are healthier for it as a family and I am thankful.

Originally Posted by DoulaMary

A red light for what? I know that I do not have any food intollerances, including gluten. Every gluten free bread-ish item I have tried is just SO FAR from the real thing, even really "good" things like from our vegan, GF bakery. I pretty much dislike them all, except for the Lifestream GF wildberry waffles. I mean, when I want a cracker I want a Late July "ritz" or something, not another frickin' rice cracker and when I want a sandwich I want a good tasting sandwich not one on Food for Life rice/millet bread which I think is pretty disgusting. I'm sorry, I'm just in a foul mood at the moment and really annoyed that I can't have normal food or go out to eat or have anyone cook me anything because I don't trust them to avoid the right things. :

[joybird]

ITA with SAmama.

[joybird]

DoulaMary,
I hear you about the store-bought GF stuff - most of it is rotten BUT I make GF cookies, muffins,etc that people can not tell are GF. I also don't use eggs, dairy or sugar. The only problem I know of with GF baked goods is that they don't stay fresh as long as things baked with wheat. That's ok here though because dp eats them pretty quickly (and he has no food restictions!)

[nalo]

Let me preface this by thanking those of you who have responded to my gluten question. I really appreciate it.

So, I understand the general idea that gluten is hard to digest, people shouldn't eat as much as they do, eliminating it will aid healing and all that. But, personally, I don't "feel better" off it - I feel absolutely NO change from eliminating all the things that I have. I am really considering allowing it every 4 days but have not at all made that a final decision (again, if I don't see a reaction in DD and after we've healed more from the abx) but after reading these responses I'm leaning towards not doing it again. I get the impression that some mamas on the allergy boards (and - don't get me wrong - I'm not challenging your decisions) are really anti-gluten in general. The thing is - I totally hear you...I would just never choose to eliminate gluten for myself unless I absolutely had to. I guess there are 2 scenarios I'm discussing at once - my current one where I must heal DD's gut and be careful on her behalf, and the post nursing one where I can hardly wait to eat dairy, eggs, gluten, peanuts and shellfish again! : Call me crazy!

[joybird]

Yeah, it's true, I am anti-gluten! I never would have chosen for things to be this way either, but they are. Now that I know how unhealthy it is, I am very glad to not be eating it. I can make anything I want without it anyway.

The thing is, if your bf babe is having issues, they are your issues. From a biological perspective, your dc is basically eating part of your body whenever nursing. If your kid has issues, it's because you have digestion problems that are causing your milk to be filled with proteins that are not broken down properly. (You won't necessarily know or have symptoms of this happening, BTW) That is why his/her body is reacting, because it is seeing all these 'foreign' particles and doesn't know what to do with them. Babies naturally have leaky guts because they are not supposed to be eating food, just milk which *should* be instantly absorbed and cause no problem. If it has particles in it that are not broken down properly, they have to try and digest it, which they are not able to do. Their digestion gets backed up, bacteria grow that shouldn't, the liver gets over-taxed from trying to process all the junk that the stomach couldn't. You probably know all this.

When thinking about healing digestion, it helps me to really look at the properties of a food I'm thinking about eating. What happens when you mix flour with water on your countertop? Well, it turns into glue. It's hard to get off. It's sticky. It's a mess. Now imagine your insides trying to deal with that mess. Then imagine a compromised system trying to process that glue. It really can't, because it's just too big of a job.