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Anyone else unbearably sick? - Page 5

post #81 of 105
Goodheartedmama,

my heart goes out to you. It sounds like you have and had hg in the past? What is phenergan? Is it a form of maxeron or zofran? I was sick from week 7 to approx. 20 and was taking zofran, maxeron, gravol and diclectin.....still was hospitalized 5 times and lost 12 pounds. It sounds as if you are doing everything u can possibly do to control it....and no most people dont understand....even my husband didnt and doesnt. I am not sure where you are but there is a support/information line in toronto for hyperemesis by mother risk.
post #82 of 105
Quote:
Originally Posted by goodheartedmama View Post
Hi guys, I'm home and equipped with a beautiful zofran pump! Time will tell if it helps, I've only had it a few hours. Insurance finally authorized it, but it was still going to cost $127/day--that's more than we make! They worked with us to pay just a one time $500 fee, and they'll take insurances 70% but are not charging us the 30% we have. What an awesome thing to happen for us! We've had about a million dramatic things happen, too, while I was gone and life was just a big mess. It still is.
That's such great news!

Are you feeling better since starting this new treatment?

Just out of curiosity, how exactly does the pump work? Is there an IV site in your hand or something? Is there a device you have to carry around with you?
post #83 of 105
not GHM, but know how it works. It's a subcutaneous (in the fat) drip. You have to move its site periodically (every other day or so? IIRC), but it is a constant thing which works much better for many with HG than a pill or bolus every few hours. Typically it is on the thigh or abdomen.
post #84 of 105
Thread Starter 
It's amazing how differerent I feel. I'm also on a special diet, which seems to be helping, and phenergan, too. It's hard to explain how it works, but my pump stays in a case on my hip. It holds a syringe with the zofran, and a tube is connected from the syringe to a spot on my stomach with a small catheter. I insert it with a tiny needle in a fatty area (tummy or thigh), and change it every day or two. I've been needing to change it more frequently right now, they said some people change it twice a day, some changed it every other day. I thought I'd be scared to do it myself, but it's amazing what you'll do to feel better. It's not too bad. I can give myself a bolus (extra medicine) through the pump twice a day if I need to. The home health company I'm working with is awesome. I talk to a nurse daily, take my weight daily, check ketones keep a food/drink/vomit log, it's really helping. I was under the impression that I should eat whatever I can get down, but then they explained that I was probably making the nausea worse. The combo of the meds and food/drink diet is really working. I haven't thrown up when trying to eat at all since I got it. I usually gag and throw up whenever I start eating.
post #85 of 105
Thread Starter 
If anyone is still sick, I've found great relief in a very high carb diet. I have a nutritionist and nurse call me daily from the home health company, and they're very strict about what I'm eating and drinking. I'm not allowed to drink plain water, eat much protein. The zofran pump is helping alot, along with the phenergan, but I think the diet is working a lot, too. Some things that I'm supposed to be eating: plain baked potatoes, pretzels, crackers, frozen grapes and watermelon, lemonade, baked potato chips. Under no circumstance am I to have any dairy or red meat. I'm okay with the red meat, but I love milk and cheese. It's a good start to cutting it out after baby comes, though. I can have a bit of chicken or turkey if I want it. I'm not allowed to eat many veggies, I can have carrots, green beans, or squash. I can't have any of my favorites (broccoli, cauliflower, brussel sprouts). No citrus. I'm having a bit of trouble with liquids, because I hate anything flavored. I love water, and I love milk, and they're both no-no's right now. Anyway, thought I'd share. I had been eating whatever sounded good, but they explained how even if went down, it was affecting me later on.
post #86 of 105
Thank you so much, ghm! I was actually just about to ask what your diet is, in case it might help some of us fellow nausea sufferers. So nice of you to share!

I'm also relieved to see it's high carb, which actually sounds possible for me. I'ev vented before about people telling me I need to eat a high protein diet- sounds nice in theory but it's not happening! Are beans OK? They seem to sit pretty well with me, and if I'm not feeling too nauseated that day they taste really good to me.

Here's my update: I went to a party last night (going away party for a dear friend) and stayed out past midnight, and was standing or dancing the whole time. OMG...so sick today. I left the house with DS before 9AM because I recently hired a cleaning lady and didn't want to be here when she's here. (My mom gave me money to pay for someone to clean the house, just while I'm feeling so sick. So sweet of her!) So despite feeling queasy, I took DS out to breakfast at a local diner, something we do from time to time when I don't feel up to cooking. I had cereal and milk, and started feeling really sick partway through. Ordered a coke to try and settle my stomach. All of a sudden I was like "oh crap I'm going to throw up right NOW," grabbed DS and my purse and ran down the stairs to the bathrooms. I threw up in my mouth about halfway down the stairs. The women's room was occupied; ran into the mens and splattered vomit all over the toilet seat. Ugh. Poor DS was really freaked, I was puking and crying...not a good scene. I cleaned up the toilet afterwards with toilet paper and went back up.

Got home a few hours later after taking DS to the park, and was so looking forward to a clean house awaiting me. The cleaning lady was a no-show. She didn't call or anything and hasn't returned my call. She's been sketchy a few times before so I'm going to have to fire her and find a new one. I feel like it's such a princessy problem to be dealing with, but I really am not up to cleaning the house right now, I get dizzy and sick whenever I try, and DH works too long hours to help much.

What a crap day. Laid on the couch the rest of the day while DS watched TV and listlessly played with toys by himself. I hate feeling like I'm neglecting him.

Hopefully the diet will help; I'm totally going to start following your plan, ghmama. I do think the milk in the cereal is what triggered the intense nausea this morning. And aside from that I need more rest. Obviously going out last night was too much for me, but if I can get more rest on normal days that will help too. God I hope this is over soon. I'm so discouraged. I feel more like someone with a life-threatening disease than a pregnant woman.
post #87 of 105
Thread Starter 
Are you on any meds? Against meds? My pump is my lifesaver. Carbs are the best choice because they digest so easily and quickly. You need to eat more often, but then you feel better from that. Protein is harder to break down, which can make nausea worse. I'm not allowed to have anything with oil or butter, no fats like that. Having a nutritionist who knows a lot about hyperemesis helps a lot...is that an option for you? Anyway, I'm more than happy to share my food success with other people. I wasn't a big fan of eating saltines and stuff, but it really is seeming to work. I was told that beans are okay, but anything high in protein like that needs to be at a minimum right now. Water is a huge no-no, by the way. Kool aid is okay, non-acidic juice is okay, they told me to eat popsicles and drink icees and such. I hate that stuff, but I'm doing okay with it.
post #88 of 105
icees are heavenly! toxic and horrifying but heavenly on the HG!

dairy I'm doing because I can't do much else, but I totally agree with the high-carb! I'm HAVING to do brewer's right now for my Bp and it's torture. protein + HG do not mix well.
post #89 of 105
I empathize with the sick mamas. I was sick the entire time last pregnancy. This time I only get the odd twinge of morning sickness if I don't eat right away (within 20 or so minutes) or if I have some mucous in my throat, etc. But so little that I barely notice it compared to last time when I needed to eat every hour on the hour AND take diclectin AND give up my entire life to the "nausea gods".

I also rolled my eyes at the people who wanted to be helpful by suggesting the "typical" solutions to nausea that didn't work.

Peace to you, sick mamas. I empathize and hope that it will be over soon and that you may take comfort in the coming new life at the end of the long nauseous ride!
post #90 of 105
Quote:
Originally Posted by goodheartedmama View Post
Are you on any meds? Against meds? My pump is my lifesaver. Carbs are the best choice because they digest so easily and quickly. You need to eat more often, but then you feel better from that. Protein is harder to break down, which can make nausea worse. I'm not allowed to have anything with oil or butter, no fats like that. Having a nutritionist who knows a lot about hyperemesis helps a lot...is that an option for you? Anyway, I'm more than happy to share my food success with other people. I wasn't a big fan of eating saltines and stuff, but it really is seeming to work. I was told that beans are okay, but anything high in protein like that needs to be at a minimum right now. Water is a huge no-no, by the way. Kool aid is okay, non-acidic juice is okay, they told me to eat popsicles and drink icees and such. I hate that stuff, but I'm doing okay with it.
Hey there! I'm only taking Premesis, which is a prescription prenatal w/ time release B6 & calcium. It helps a lot; I went from waking up at 3AM vomiting bile to only throwing up every few days. I take unisom in the evenings if I'm feeling really sick that day, and the effect seems to carry over to the next morning. I'm not opposed to stronger drugs, but I'm not sure they're warranted in my case. I feel crappy, but I am able to eat, usually three meals a day. I'm not losing weight; in fact I've gained 10 pounds (probably because all this sugar is horrible for me. : ) I guess if I'm still feeling this sick by my next midwife appointment I'll talk to her. She's very antidrug though so I suspect she'll just tell me to wait it out. It's tough because if I were seeing my old OB (or any OB group), they'd give me zofran in a heartbeat....but they'd probably section me when it came time to have my baby.

Anyway, I started the new eating plan last night and will get more stuff for it at the store. Hey just out of curiosity- why no plain water? It seems so neutral.
post #91 of 105
I was reading the posts and found something kind of funny......I have hyperemesis (had it with all pregnancies) and everything the drs/nurses said to eat helped too including not eating/drinking at the same time. I was told to eat anything that I felt I might keep down by my nutritionist ( they were worried because I was losing weight...more than 12%) and the only things that helped me was milk and protein I remember going everyday to Alberts restaurant to order their steak and egg dinner....my husband was horrified. The drs/nutritionist gave the same recommendations with regards to everything else you said (eg. no water, eat watermelon, crackers etc) but encouraged me to try to look for foods that might sit ok with me as long as I made absolutely sure not to eat and drink at the same meal. For me, the carb. would have made me much worse. Maybe there is something in my system that needed the protein? I am now 6 months and beginning to feel better
post #92 of 105
Thread Starter 
Quote:
Originally Posted by Katielady View Post
Hey there! I'm only taking Premesis, which is a prescription prenatal w/ time release B6 & calcium. It helps a lot; I went from waking up at 3AM vomiting bile to only throwing up every few days. I take unisom in the evenings if I'm feeling really sick that day, and the effect seems to carry over to the next morning. I'm not opposed to stronger drugs, but I'm not sure they're warranted in my case. I feel crappy, but I am able to eat, usually three meals a day. I'm not losing weight; in fact I've gained 10 pounds (probably because all this sugar is horrible for me. : ) I guess if I'm still feeling this sick by my next midwife appointment I'll talk to her. She's very antidrug though so I suspect she'll just tell me to wait it out. It's tough because if I were seeing my old OB (or any OB group), they'd give me zofran in a heartbeat....but they'd probably section me when it came time to have my baby.

Anyway, I started the new eating plan last night and will get more stuff for it at the store. Hey just out of curiosity- why no plain water? It seems so neutral.
Water just sits in your stomach. It doesn't digest like other drinks.

Quote:
Originally Posted by veronicalynne View Post
I was reading the posts and found something kind of funny......I have hyperemesis (had it with all pregnancies) and everything the drs/nurses said to eat helped too including not eating/drinking at the same time. I was told to eat anything that I felt I might keep down by my nutritionist ( they were worried because I was losing weight...more than 12%) and the only things that helped me was milk and protein I remember going everyday to Alberts restaurant to order their steak and egg dinner....my husband was horrified. The drs/nutritionist gave the same recommendations with regards to everything else you said (eg. no water, eat watermelon, crackers etc) but encouraged me to try to look for foods that might sit ok with me as long as I made absolutely sure not to eat and drink at the same meal. For me, the carb. would have made me much worse. Maybe there is something in my system that needed the protein? I am now 6 months and beginning to feel better

I crave protein, too. Anyway, the nutritionist is a specialist in hyperemesis. My MIL is a nutritionist and was shocked at my diet, too, but it's a common diet among nutritionists who are very knowledgable about hyperemesis. I was under the impression that I should eat whatever I could, but they've helped me understand why those choices weren't always great choices and how they could hurt me more. I'm really learning WHY I should eat what they're telling me to eat and WHY I should avoid what I'm not supposed to eat. It's nice to know the reasons, not just be told to eat it because they said so.
post #93 of 105
I crave protein, too. Anyway, the nutritionist is a specialist in hyperemesis. My MIL is a nutritionist and was shocked at my diet, too, but it's a common diet among nutritionists who are very knowledgable about hyperemesis. I was under the impression that I should eat whatever I could, but they've helped me understand why those choices weren't always great choices and how they could hurt me more. I'm really learning WHY I should eat what they're telling me to eat and WHY I should avoid what I'm not supposed to eat. It's nice to know the reasons, not just be told to eat it because they said so.[/QUOTE]

The nutritionist I saw was an expert on hyperemesis also. She and the drs (also experts in hyperemesis) were concerned that I had lost approx. 12% of my body weight which is not good. They gave the same advice on what and what not to eat but they also tried to encourage me that if there was ANYTHING my body could tolerate to go for it. At that time, I was not eating at all and was losing weight rapidly. They were concerned about calories for me and the baby. I was at the point where I was not eating at all and could not tolerate anything. I was subsisting on the i.v alone. When I asked why the protein helped in my case, they told me that what one person can tolerate another cannot. I threw up trying to eat crackers, watermelon etc. The only thing that handled my nausea was protein. It may not work in all cases but it most certainly worked in mine.

How is hyperemesis gravidarum treated? Your treatment will depend on how bad your hyperemesis is. Always work closely with your caregiver to find the treatment that is right for you. You may need to receive more treatment in the hospital if you cannot control your hyperemesis at home. Some of the treatments for hyperemesis may include:

Diet:


Avoid foods that make you feel sick to your stomach. Foods that have strong odors may cause nausea for some women.


Avoid having an empty stomach. Eat small meals often throughout the day.


"Eat low fat, high protein foods. Examples of these foods are lean meat, beans, and turkey or chicken without the skin."


Eat bland foods such as dry toast, dry cereal, noodles, and bread. Other bland foods are bananas, apples, rice, and popcorn without butter. Avoid spicy and greasy or fried foods.


Eat crackers or dry toast before you get up from bed in the morning. Get out of bed slowly. You may also try eating a snack before you go to bed at night. Keep crackers or dry toast at your bedside to eat during the night if you wake up hungry.


If drinking liquids with meals makes you sick to your stomach, drink liquids between meals instead. Wait at least 30 minutes after eating before drinking liquids. Drink small amounts of liquids often.


On days when you feel better, eat a variety of foods from all the food groups.
http://www.drugs.com/cg/hyperemesis-gravidarum.html
post #94 of 105
Thread Starter 
Well, you can't argue with what works! I've been there, too, not able to eat anything at all. I also was sustained on IVs for awhile. I was eating whatever I could get down, but I was making really bad choices (like pizza, the only thing I could stomach), but I was making myself sicker from it. I'm finally at a point with the pump and phenergan that I can eat things like crackers and frozen grapes and baked potatoes, which is what my diet now consists of. I want more, but I'm finally able to stomach these things and I'm finding that I'm getting better. If protein works for you, go for it! I just don't think my body could digest it easily like it can the carbs.
post #95 of 105
Yeah, that is what I was told when I questioned them about the protein. I thought it was kind of weird. They said the same thing....what will work for one will not work for another. When the extreme nausea went down to "normal" you would not believe the amount of protein I seemed to crave. I mean, 5 eggs a day! I know I know not good and I have stopped now. I asked why and dr mentioned that the baby needed protein for growth and that I had been without eating sooo long that my body was trying to make up for it. Now, it is more normal but I still find that I HAVE to have some sort of protein for breakfast or I end up throwing up all day. You mentioned frozen grapes: I still love them. It seems almost like food cravings..what one craves others dont or find disgusting
post #96 of 105
I forgot to add something....Pizza!!??:Puke That would have made me so sick The grease in it would have killed me I think. In my case, I found that eating something with protein was the only thing that "might" stay down and make me throw up a bit less (eg 8x instead of 12x etc). My poor husband kept trying to bring mcdonalds/wendys/kfc etc and I couldnt tolerate them at all. Just the beef (not chicken....still cant even look at it) and hard boiled eggs. You sound like you were in the same boat as me I was also on the iv and hospital 6 times (boy am i sick of hospitals. Did you have a picc line? I mean the home iv therapy? I am betting you did also. It helped me a bit but I ended up getting a picc line blood infection and was in intensive care that I am still recovering from. How are you doing now?
post #97 of 105
Thread Starter 
No, no PICC line. They were going to do one, but wanted to see if the zofran pump worked first. It does for the nausea, but I'm going to end up with a PICC if I don't start drinking. I haven't had over 20 oz/day in the longest time...I was severely dehydrated at the hospital, but I had the constant saline running through me for a week. My ketones have turned from negative to trace, I've been home 5 days now. They're on me to start drinking, but oh it just makes me so sick to drink anything.
post #98 of 105
Thread Starter 
http://zofranpump.shutterfly.com/action

Here are some pics of my pump, the needle, and the catheter for those interested.
post #99 of 105
I had begun to feel so much better. I was taking my meds *maybe* once a day, and just in the evening. Many days I didn't need meds at all! Now the past 3-4 days I've had to start taking my meds again . It's so frustrating!!! I don't understand why things are going downhill again! I've started getting migraines everyday now. The meds I take for them help sometimes, and other times doesn't do anything but make my nausea even worse and make me shaky. I hate this!!
post #100 of 105
Thread Starter 
Greenflower, how many weeks are you? Sorry that you're sick again.
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