Pectus ExcavatumI had a severe pectus excavatum, and my 13-year-old son now has a serious one. I had surgery as an adult. My heart was completely displaced into the left side of my chest, and my right ventricle was not operating properly when I exerted myself and my lung capacity was reduced. We also were diagnosed with a connective tissue disorder, Marfan Syndrome. DO NOT listen to your pediatrician. This surgery is not done on infants or even young children, at least not that I have heard of. Most children are operated on in early adolescence and, in children with connective tissue disorders, surgery is sometimes postponed until the growth spurt in late adolescence. I grew up with a pediatrician who said two stupid things: 1. I was causing this by slouching, and 2. when I became an adolescent and grew breasts, you wouldn't even notice it!! BOTH ARE FALSE, mine developed from age 9 or 10 and worsened even into my 30s, and mine interfered with breast development, so I had no breasts to speak of ever. Slouching does not CAUSE PE, it is a result of it. I have had my own issues with pediatricians with my son. I was told by my now regular doctor, that the amount of information given to them in medical school regarding PE was the equivalent to around a paragraph or two and this is the crux of it: Pectus excavatum is cosmetic and causes no problems.
THIS IS NOT TRUE, at least for many people. PE can cause heart displacement, right ventricle compression, lung capacity reduction, increased respitory infections, shortness of breath as well as psychological issues from having a serious deformity. Find another pediatrician, see if they feel you should have your child checked by a geneticist for a connective tissue disorder (there would be other physical anomalies or illnesses, but many would not show as an infant-I did not have a caved in chest as an infant, mine developed over time) Do research, but there is conflicting info so you will have to just do your best to sort through it! let me know if you have any questions. For now, you will just need to monitor your child, and when they are older, if the deformity progresses, make sure that you don't just rely on echocardiograms-a stress test is necessary as well as lung capacity test, to see if there are problems. My echos were normal, my exercise stress test was not.