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Full/Near-term NICU support thread-- May/June 08 - Page 2

post #21 of 135
Hi everyone, I'd like to subscribe if that's ok!

I'm due anyday now, but if my babe isn't here by the 28th (I'll be full term on the 30th) I'm having another c-section. I'm hoping and praying for a VBAC.

I know my babe will be in the NICU but not sure for how long. He's been diagnosed with a slow growing, benign brain tumor so he'll be there initially for observation and testing. If things look 'bad' which is a very slight possiblity, he'll be transported to another hospital for brain surgery right away. Ideally they'd like to wait a couple of months for him to get bigger. The bigger he is, the more blood volume he'll have and the more chance he has to survive the surgery.

Thanks for starting this thread, I've lurked here a lot trying to gather some information but as my little one will be full term, I haven't found too much.
post #22 of 135

long

Quote:
Originally Posted by eilonwy View Post
Lilsparrow-- would you mind posting a bit more about your son's birth & development? After two years, I'd be concerned about something else going on; As you said, most premature infants (all but the very youngest) are developing more normally by age two.

That said, while my Bella is fairly average for two, she's so different from her siblings that it doesn't quite *feel* average to me. She is, however, making progress.. and I suppose that's the most important thing.
Bean was very skinny, and wrinkled. he weighed six pounds, but he was VERY skinny. And he had a different look about him then my other three, he looked *not done.* When my visitors saw him, everyone said, "Awwwww," but not in a "he's so cute" kind of way. More of a "poooooor little thing." His look evoked pity. He looked very very vulnerable, like a baby bird.

I had mentioned in the hospital, that I was neglected and abused. In one instance, after two days of laying on the same bloody sheets, (they had by that time gathered around my feet) and I was lying directly on the plastic mattress cover. Bean had a lot of trouble latching because he was very sleepy and weak. I was on pain medicine because of my surgery and I was having trouble holding on to him because of the slippery mattress cover. I needed something with more grip because the one tiny pillow I had kept slipping. My nurse button was being ignored as usual. Bean was crying and I was crying because I couldn't feed him. Finally a nurse came in on her rounds to see if the baby had eaten. SOBBING, I told her no, that I couldn't feed him because of the sheets, and I needed another pillow, the baby kept slipping. She said, "Okay, I'll mark that on my chart, and she NEVER came back!!

I felt abandoned and helpless and powerless to feed my baby, it was a horrible feeling and one I can only describe as traumatizing. I have never felt so alone in my life. I decided that I was going home the next day. My then dd6 could have taken care of me better. She would have at least got me a pillow.

I informed the next day nurse, that I was leaving AMA. She said that I could leave but that I couldn't take the baby because according to the chart he WASN'T EATING ENOUGH. I don't remember exactly what I said, but I do know I was primal, and when I was done my speech of rage, she did not argue with me anymore, but did convince me to stay through the next morning so the doctor could sign me out. BIG MISTAKE. That night, the evil nurses come out at night I suppose, I was left without pain medicine, AGAIN. I had to walk to the nurses lounge to find a nurse for my previous dose. This time I woke up two hours, after I was supposed to get my next dose. The pain from the c-section was EXCRUCIATING! After ignoring my button forever, the nurse came in and exasperatedly asked me what was the problem. I told her I needed my pain medicine, and complained that it wasn't given to me on time. She responded that the prescription said "if needed." I told her, ( I was really pissed), "I just got my f*2#$ abdomen sliced open ... ASSUME I need it!" So, she went to get the medicine, plopped it in my hand and left. No drink to take it with, nothing. So, I called her back and she brought me a drink and set it on the other side of the room! Well, my husband who before this didn't believe me, happened to be there sleeping (we thought) in the recliner, and he heard and saw the whole thing. He was really mad and packed my things and we left. Fled is more like it. They were evil.

Enough about me, bean has not been vaxed. He had trouble keeping on weight. he lost 11 oz. in the hospital. It got only slightly better, when we got home. Also, I was so wigged out about the doctors and nurses the only only one I would talk to was the LC. She was LIVID about my treatment at the hospital, and the only one I trusted.

He had bronchiolitis a lot, and he would lose the weight we worked so hard to put on. So, he was yo yoing for a while. it was really hard, because he had such a weak suck, and I was very inexperienced. When he was four months old, my then ds8 was diagnosed with Type 1 Diabetes. It was very sudden and within 24 hrs I found myself back at the same hospital I had fled 4 mos. earlier, and SWORE I would never set foot in again. And needing to depend on the peole I hated and distrusted to care for my son. It was very surreal.

I tried to pump the first day, and the stress of it all was just too much for me and I weaned him, even though I didn't want to. I just didn't have it in me. The room in the hospital was not conducive to pumping, and I didn't know how AND I had a crappy manual pump AND I was so devastated about my ds8, I just didn't have it in me. BUT when he started the formula, he didn't have trouble with the weight anymore. He finally started to look better.

Bean hit ALL of his milestones, either on time or early, until six months, when he should have started to sit up. Then he just stopped. He was saying the syllables ma and da, then he just stopped. It was like he stayed at 10 mos. FOREVER. He finally sat up at 14 months, and now at two is still in the beginning stage of walking. He just discovered his toys a few weeks ago.

He has always enjoyed a lot of social interaction, he just always seems alot younger than he is. His hearing and vision are good. When he was accessed for speech, physical and cognitive development right before he turned two, he was given the range of 9-18 months, depending on the category.

Ok, this was long. Excuse the mini vent in the beginning.

Oh yeah .. a couple of nights ago in bed, I was laying my head on his chest and it sounded like his heartbeat was irregular. But, wouldn't the doctor have noticed that at his check ups? He listens to his heart. Bean was just there a couple of weeks ago.
post #23 of 135
i'm so sorry mama.
post #24 of 135
lilsparrow - your treatment in the hospital is heartbreaking - I wish your DH could have been there for you more, too.

What does your ped say about bean's growth and development? Have you contacted Early Intervention in your area? (I know it's free.) I would definitely get ahold of them.
post #25 of 135
I think I might belong here too. I charted for pregnancy with DS2 and am POSITIVE of my dates and he was born @ 40 weeks, 1 day. The problem is that he came out weighing 6 lbs 4 ozs and COVERED in vernix. He was a HB and the MW did an assessment on him and agreed he looked "pre-term". She mentioned something about ear curling and of course the vernix and size.

Cut to 2 weeks later, he had a cough that got worse and worse along with periods of rapid breathing that became more and more frequent. I e-mailed my MW to ask if it was normal and told her I felt "paranoid" she said she would come over the next day to check him. She came over and sent us to the ER.

ER said he was fine and he was being discharged. We called MW and she actually came to the hospital so they would not send us home. Shortly after they tried to take blood and DS turned blue. They discovered he was having congestive heart failure and transported him 90 mins away to a children's hospital and they discovered a life-threatening heart defect. They called the cardi surgeon in @ 4 am and had him in surgery by 7 am. 8 hours later and he was fixed. We spent 9 more days in the CVICU and they sent us home.

That was almost a year ago and it is still hard to type it out. It fills me with anxiety and sadness. DS's heart appears to be doing well - he had Total Anomolous Pulmonary Venous Return. Now his issues are hypotonia and low weight. He's losing weight We start PT next week and are meeting with a nutritionist. He's BF and eats lots of fatty solids.

Nice to "meet" you all. It feels nice to know I'm not alone.
post #26 of 135
Quote:
Originally Posted by Jilian View Post
I think I might belong here too. I charted for pregnancy with DS2 and am POSITIVE of my dates and he was born @ 40 weeks, 1 day. The problem is that he came out weighing 6 lbs 4 ozs and COVERED in vernix. He was a HB and the MW did an assessment on him and agreed he looked "pre-term". She mentioned something about ear curling and of course the vernix and size.

Cut to 2 weeks later, he had a cough that got worse and worse along with periods of rapid breathing that became more and more frequent. I e-mailed my MW to ask if it was normal and told her I felt "paranoid" she said she would come over the next day to check him. She came over and sent us to the ER.

ER said he was fine and he was being discharged. We called MW and she actually came to the hospital so they would not send us home. Shortly after they tried to take blood and DS turned blue. They discovered he was having congestive heart failure and transported him 90 mins away to a children's hospital and they discovered a life-threatening heart defect. They called the cardi surgeon in @ 4 am and had him in surgery by 7 am. 8 hours later and he was fixed. We spent 9 more days in the CVICU and they sent us home.

That was almost a year ago and it is still hard to type it out. It fills me with anxiety and sadness. DS's heart appears to be doing well - he had Total Anomolous Pulmonary Venous Return. Now his issues are hypotonia and low weight. He's losing weight We start PT next week and are meeting with a nutritionist. He's BF and eats lots of fatty solids.

Nice to "meet" you all. It feels nice to know I'm not alone.
OK Jillian, I watched your montage and now I am BAWLING!! The pics of Evan after his surgery are heartbreaking!! You poor mama! I am so glad he made it through, so glad he is recovering well. I bet it was hard typing that out. I had Bean 2 yrs ago, and didn't have NEAR the stressful situation you had, and it was hard to type out mine. You have a beautiful family, I hope Evan grows stronger everyday. My d10 with type 1 watched the montage and was very touched. He couldn't believe how little he was and his heart melted when he saw him after the surgery, then he was so relieved when the progressing pictures showed him looking healthier and "fatter" in my sons words.

to you and : to your family.

ETA: Jillian, did you see anything in my post that would make you think I should get my LO's heart checked?
post #27 of 135
Thank you Justmama and veganone. My ped is about as helpful as Jillians was. I did contact Early Intervention. They were the ones who assessed him. He is receiving services for occupational and physical therapy, and speech. Seems like a great program.

I love my Bean, and after reading Jillians post, I am very grateful and I am going to go and give him a great big hug.
post #28 of 135
Quote:
Originally Posted by lilsparrow View Post
Oh yeah .. a couple of nights ago in bed, I was laying my head on his chest and it sounded like his heartbeat was irregular. But, wouldn't the doctor have noticed that at his check ups? He listens to his heart. Bean was just there a couple of weeks ago.
You can ask for an EKG - it is really non-invase and can detect any arrythmia (abnormal heartbeat). Or, if you REALLY want heart answers ask for an echo - it is a u/s of the heart and will show the entire anatomy. Most heart defects have a murmur that can be heard just from listening to the heart. It sounds like a "whoosh" between beats. But nothing you've said really screams heart issues. The biggest warnings are blue lips and/or nailbeds and periods of rapid breathing with lots of "work" like chest retractions. Sadly I no longer trust doctors to do what they are supposed to so I check a lot of things on my own. I have an entire medical closet of tools - stethoscope, blood pressure cuff, glucometer, etc

It is scary when you're little one is behind. I completely understand. I go back and forth between wondering if he is just delayed to wondering what other scary surprises are in store for us. Not knowing is the worst. Have they checked your LO for malabsorbtion? I think that is next for us. If he loses weight again they will freak out for sure. I'm trying to ignore it for now and hope for the best. Evan's 1 yr surgery follow up is in a few more weeks and I'm really excited to see the echo and hear how his heart is doing.

Tell your son thanks for watching the montage! How sweet
post #29 of 135
Quote:
Originally Posted by Jilian View Post
You can ask for an EKG - it is really non-invase and can detect any arrythmia (abnormal heartbeat). Or, if you REALLY want heart answers ask for an echo - it is a u/s of the heart and will show the entire anatomy. Most heart defects have a murmur that can be heard just from listening to the heart. It sounds like a "whoosh" between beats. But nothing you've said really screams heart issues. The biggest warnings are blue lips and/or nailbeds and periods of rapid breathing with lots of "work" like chest retractions.
No woosh sound for sure. It was more like a regular heartbeat and every 25-30 beats or so it would skip a beat. It was pretty consistent. Maybe it was the way I was laying my head on him. I think I'll get him checked out to make sure.


Quote:
Sadly I no longer trust doctors to do what they are supposed to so I check a lot of things on my own. I have an entire medical closet of tools - stethoscope, blood pressure cuff, glucometer, etc
I am with you there, Jillian.

Quote:
It is scary when you're little one is behind. I completely understand. I go back and forth between wondering if he is just delayed to wondering what other scary surprises are in store for us. Not knowing is the worst.
I don't know anything about heart defects. What are the typical concerns after heart surgery? I noticed you mentioned weight gain, are there other complications? Is his life span impacted, and will he need special considerations for physical activities and things like that? What is the best/worse case scenario?


Quote:
Have they checked your LO for malabsorbtion? I think that is next for us.
No, he is actually quite chubby now, praise God. Except he seems a little vertically challenged.

Quote:
If he loses weight again they will freak out for sure.
Praying hard for Evan.


Quote:
I'm trying to ignore it for now and hope for the best. Evan's 1 yr surgery follow up is in a few more weeks and I'm really excited to see the echo and hear how his heart is doing.
I hope, hope, hope it goes well.

Quote:
Tell your son thanks for watching the montage! How sweet
He's a great big brother, and I know he couldn't help but think of what it would have been like if that was our Bean. Aiden looks like a great big brother as well. I imagine this has been difficult for him too, God bless him.
post #30 of 135
Quote:
Originally Posted by Jilian View Post
I think I might belong here too. I charted for pregnancy with DS2 and am POSITIVE of my dates and he was born @ 40 weeks, 1 day. The problem is that he came out weighing 6 lbs 4 ozs and COVERED in vernix. He was a HB and the MW did an assessment on him and agreed he looked "pre-term". She mentioned something about ear curling and of course the vernix and size.

Cut to 2 weeks later, he had a cough that got worse and worse along with periods of rapid breathing that became more and more frequent. I e-mailed my MW to ask if it was normal and told her I felt "paranoid" she said she would come over the next day to check him. She came over and sent us to the ER.

ER said he was fine and he was being discharged. We called MW and she actually came to the hospital so they would not send us home. Shortly after they tried to take blood and DS turned blue. They discovered he was having congestive heart failure and transported him 90 mins away to a children's hospital and they discovered a life-threatening heart defect. They called the cardi surgeon in @ 4 am and had him in surgery by 7 am. 8 hours later and he was fixed. We spent 9 more days in the CVICU and they sent us home.

That was almost a year ago and it is still hard to type it out. It fills me with anxiety and sadness. DS's heart appears to be doing well - he had Total Anomolous Pulmonary Venous Return. Now his issues are hypotonia and low weight. He's losing weight We start PT next week and are meeting with a nutritionist. He's BF and eats lots of fatty solids.

Nice to "meet" you all. It feels nice to know I'm not alone.

DD2 was covered in vernix as well, I was shocked at how much. She was born at 38wk and 6d, she came naturally at home as well. DD1 had also decided to come at 38 wks, no vernix at all. The one year anni is hard, I wasn't prepared for how hard it would be. It was difficult when Gabrielle turned 1, when she got sick, and right now I'm facing when she got off O2. Which I didn't think would mean much, but I guess when it was such a part of our lives, it does. It was the last day of May last year, it's all I've been thinking about all week, I can't believe it was only a year ago.



LOL, and I hear everyone about all the medical equipment, we have a number of things as well. I have a great pedi but I've found that I still have to speak up, be very proactive, and push for the things I want. If I feel something didn't get discussed in enough detail then I make another appointment, and another if I feel like it. Early intervention in my area has been a joke, not helpful at all for DD1. I have been debating about waiting a bit longer to see if DD2's speech increases or going the private route. . I totally understand the scary surprises, I just wish they all would go away.
post #31 of 135
Quote:
Originally Posted by Peony View Post

LOL, and I hear everyone about all the medical equipment, we have a number of things as well. I have a great pedi but I've found that I still have to speak up, be very proactive, and push for the things I want. If I feel something didn't get discussed in enough detail then I make another appointment, and another if I feel like it. Early intervention in my area has been a joke, not helpful at all for DD1. I have been debating about waiting a bit longer to see if DD2's speech increases or going the private route. . I totally understand the scary surprises, I just wish they all would go away.
Good for you for being such an advocate for your child.

My ped is pretty much useless. I go to him to cover my bum from CPS, and so that I can tell him what is wrong with my child, and then pay him for the privelidge.
post #32 of 135
Jilian - I've seen your posts about Evan - I believe you even wrote supportive stuff for me when we first found out about DD's VSD - thank you... I'm so sorry it was so hard for you at first - I just can't even begin to imagine.

DD had a ton of vernix and lanugo.

I know we were super lucky that she is doing as well as she is. It was so hard at first, but she's doing really well now.

I still worry about her heart a lot - the murmur is LOUD and I keep dreading the possibility of surgery. Next checkup on that is next month.

Have those of you with LOs with special needs/delays checked out the Special Needs forum? I know they have a lot of really supportive mommas who know a lot more about delays and special medical needs than I do for sure...

Lilsparrow - I'm glad you're getting help from EI.

I have learned that the only way to deal with doctors is to be really, really insistent, do your own research, and don't give up until you get answers. We changed insurance to a PPO for A LOT more money (we're lucky we have the option) so that we could see a ped. we like.
post #33 of 135
I am still crying from reading all your stories! and I wanted to offer to all of you and your little ones!

Esp. to lilsparrow...I can't find words....I hope you find some answers for your little one. You are an amazing mom! I hope, if you haven't already, that someday you can write a letter to someone in the hospital where you delivered. I think they need to know about the treatment you received!!!!

I personally had excellent care for my youngest (micro-preemie) and she was watched like a hawk. You know what? My other 2 pre-term (35(?) and 38 weekers) have far more issues than my micro. They too came into this world struggling but their problems were majorly overlooked by the medical profession. As a mom I knew things were not ok w/them and yet I feel as though my opinions were largely ignored. I wonder if my 2 elder children might not have the issues they have today if they had had the care and services that were offered to my youngest! Makes me very angry!!
post #34 of 135
Quote:
Originally Posted by lilsparrow View Post
I don't know anything about heart defects. What are the typical concerns after heart surgery? I noticed you mentioned weight gain, are there other complications? Is his life span impacted, and will he need special considerations for physical activities and things like that? What is the best/worse case scenario?
I am always thankful that he ended up with TAPVR and not another, more complicated heart defect. His defect was life-threatening, but once it was fixed, it was fixed completely. His pulmonary veins were not attached at all. They are supposed to attach from the lungs back to the heart - instead they formed into a weird vessel and headed towards the liver. So the dr just tied off that vessel and attached the veins. He also patched a hole called a PFO (patent foramen ovale). The hole was the only thing allowing drainage between the right and left side of his heart - so he is alive because of that tiny hole

But it should be a one-time repair. And so far his echos have been perfect. He will need cardiology follow-up care for life to make sure the repair is growing with him. They also watch for arrythmia and vein narrowing (this requires more open heart surgery - yikes!). BUT, once he makes it to one year post-surgery his chances of vein narrowing go way down. So this is an exciting appointment coming up!

They say he should live a normal life and can even play football But his defect is "new", so the oldest child I know of who has survived with it is only 15. 20 years ago children with this defect were dying and it was being ruled a SIDS death. They only discovered it when they started doing autopsies on babies who had died of "SIDS". The pulmonary veins go behind the heart so this defect is so hard to detect - and is often found after it is too late.

So some of the worst cases are he'll need another open-heart surgery to repair vein narrowing. And once he gets vein narrowing it will likely keep coming back and he'll keep needing surgery and possibly artificial veins. Some TAPVR kids end up with pacemakers. Best case scenario he'll never need another procedure again and will have yearly follow ups if all continues to go well.

But his pedi did mention that children with one congenital defect often have multiple congenital defects so that has been scaring me. That is why he's being so proactive about the hypotonia and low weight - to make sure we're not missing something else. In my gut, I think he'll be ok. But I still have moments of worry and sadness.
post #35 of 135
Quote:
Originally Posted by aris99 View Post
Esp. to lilsparrow...I can't find words....I hope you find some answers for your little one. You are an amazing mom! I hope, if you haven't already, that someday you can write a letter to someone in the hospital where you delivered. I think they need to know about the treatment you received!!!!
Thank you so much for your compassion, aris. it is only now, two yrs later that I feel able to talk about it. Oh, and I didn't even mention that the anasthesia for my c-section didn't work and I FELT EVERYTHING. That's another reason, I was so angry they were playing stipid abut my pain meds. I was so traumatized by the whole thing that I just wanted to forget it and NEVER go back there, (even in my mind.) I am suffering from PTSD because of it and it is impacting my life greatly. I now have this fear of hospitals, that has trickled down to Drs. and even Drs. offices as well. Drs appts have me dry heaving for days beforehand, and I would be so anxiety filled, I would have to schedule them on days my mother could go with me. It is slowly getting better. After reading others stories, I really feel very blessed. The majority of the actual hospital trauma fell on me, not Bean, and I am very grateful that he is as healthy as he is, even with his problems.

Quote:
I personally had excellent care for my youngest (micro-preemie) and she was watched like a hawk.
I am so glad to hear they took such good care of your baby. Hearing that and seeing the miracle they performed on Jillians baby (truly AMAZING) helps to restore my faith in *some* doctors anyway.

Quote:
You know what? My other 2 pre-term (35(?) and 38 weekers) have far more issues than my micro. They too came into this world struggling but their problems were majorly overlooked by the medical profession. As a mom I knew things were not ok w/them and yet I feel as though my opinions were largely ignored. I wonder if my 2 elder children might not have the issues they have today if they had had the care and services that were offered to my youngest! Makes me very angry!!
Yes!! There seems to be a real danger of these babies falling through the cracks! I am glad to see a recent movement towards awareness, of the complications that can arise for these pre-term babes. I also share your frustration at knowing *something* is wrong and being ignored! If my stupid OB would have honored my concerns, instead of patting me on the head, they would have caught the "clerical error" and my Bean would not have been ROBBED of his last month in the womb! BUT, I blame myself. I should have insisted. I should have listened to my gut. And like you, I wonder about what could have been. Would he have these problems, if things had gone differently?

Why do Drs. place so little importance on the mother's instinct? It is a gift, and should be utilized and a crucial part of medical care IMO. And this seems to be a common attitude among doctors. Jillians case is another ex.
I, for one, am TIRED of being blown off by arrogant doctors. (fume)

wendy
post #36 of 135
Jillian, after reading your post I am relieved, and much more educated. thank you for taking the time to write such an informative post. The best case scenario ...Well, that is good news as far as bad news goes. And I am going to be praying hard ... NO VEIN NARROWING FOR EVAN! :


Quote:
Originally Posted by Jilian View Post
But his pedi did mention that children with one congenital defect often have multiple congenital defects so that has been scaring me. That is why he's being so proactive about the hypotonia and low weight - to make sure we're not missing something else. In my gut, I think he'll be ok. But I still have moments of worry and sadness.
I bet you do., but this sentence ...
Quote:
In my gut, I think he'll be ok.
... reassures me greatly. Momma knows best.

ETA:Let us know how his appt. goes!

Wendy
post #37 of 135
Quote:
Originally Posted by veganone View Post
Jilian - I've seen your posts about Evan - I believe you even wrote supportive stuff for me when we first found out about DD's VSD - thank you... I'm so sorry it was so hard for you at first - I just can't even begin to imagine.
What is VSD?

Quote:
I know we were super lucky that she is doing as well as she is. It was so hard at first, but she's doing really well now.

I still worry about her heart a lot - the murmur is LOUD and I keep dreading the possibility of surgery. Next checkup on that is next month.
What are the chances that she will need surgery? Will the murmer go away on it's own, or is it something that will have to be monitered for life? : to your little one and next months check up.


Quote:
Have those of you with LOs with special needs/delays checked out the Special Needs forum? I know they have a lot of really supportive mommas who know a lot more about delays and special medical needs than I do for sure...
Lilsparrow - I'm glad you're getting help from EI.
I did post over there upon your suggestion. I had actually forgot about that place (MDC is so big), and you're right, it is a good place for me to get support, esp. now that it seems Beans developmental delays are going to continue to umm, be delayed, I guess.

I have been REALLY pleased with EI, and I have learned a lot and noticed improvements already!

Quote:
I have learned that the only way to deal with doctors is to be really, really insistent, do your own research, and don't give up until you get answers.
Yes, unfortunatley that seems to be the case. I just wish I knew then what I knew now. I was very naive and trusting.

Wendy
post #38 of 135
Liesbet was born at 35 weeks, weighing 4lbs 15 oz. she spent four days in the Level III NICU and 12 days in the Level II. it was stressful as i had a cesarean and we had no car so i had to beg and borrow rides from friends to visit her. (and dh made me take the subway one week after my cesarean : ) i am pregnant again and am nervous about having pre-e again and another preemie.
post #39 of 135
gwerydd - I am so scared of having another preemie as well, and we didn't have nearly the NICU stay you did... Do you know why DD was early? I already know I'll be on bedrest from 31 weeks if we do this again, and can't imagine doing that with a toddler...
post #40 of 135
Quote:
Originally Posted by lilsparrow View Post
What is VSD?
What are the chances that she will need surgery? Will the murmer go away on it's own, or is it something that will have to be monitered for life? : to your little one and next months check up.

Wendy
Hi Wendy - VSD is a hole between the ventricles of her heart. Most of the time they close on their own at some point, or shrink enough that surgery isn't needed, but if they don't then they surgically close them. She's doing really well - I think if it closes on its own they won't need to monitor her forever, but if it doesn't they will.
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Mothering › Mothering Forums › Baby › Life With a Baby › NICU & Preemie Parenting › Full/Near-term NICU support thread-- May/June 08