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Figuring Survival Rate for 25 weeker - Page 2

post #21 of 38
6/27/08 at 3:34pm
It sounds like your baby is doing pretty well! The NICU is so stressful. You are doing such a great job!! My baby is a 25 1/2 weeker. He has terrible lungs and was on the vent for 7 weeks!! I didn't get to hold him until he was off the vent. We were prepared to lose him for about the first 10 weeks of his life (septic shock after the 6-week lung scare) I hope you are feeling hopeful about your situation! Our baby showed all the signs of being one of the unlucky ones and amazed everyone. The doctors and specialists and nurses did not expect him to survive. So, not only do statistics mean little for each baby, but even terrible realities can't predict what will happen. Hang in there! I still am. We have been in the NICU for over 100 days, but the end is in sight!!! Now he just needs to learn to eat

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post #22 of 38
7/17/08 at 1:26am
Thread Starter 
Sounds like we have alot in common. Ezekiel is 3 lbs 15 oz now. He is on vaportherm and is breathing pretty well. He would be 33 weeks gestation now. By today or tomorrow he will be big enough to get out of the Isloette, and be in a crib or bassinette. He hasn't started from a bottle yet. They will try that when he is at 34 weeks gestation I think. That is when they learn to suck and swallow
post #23 of 38
7/17/08 at 8:21pm
Sorry, I know this is kind of off topic, but this is the second time today someone has mentioned vaportherm and I've never heard of it. I gather it's kind of an alternative to CPAP?
post #24 of 38
7/24/08 at 3:36am
Thread Starter 
its an alternavie to nasal canula. See nasal canula can only go up to 2 liters of flow, while vaportherm can go beyond. My baby needs 3 liters of flow. Its how fast the oxygen/air mixture flows out of the nasal plugs. It also gives off a little more moisture than the nasal canula.


Here is a new pic of my baby. He is two months and one day old.\ and would be 34 weeks gestation now.


http://i37.tinypic.com/2dhac6x.jpg
post #25 of 38
7/24/08 at 7:49am
What a doll. Thanks for updating. Glad to hear he is doing so well. Hang in there mama!
post #26 of 38
7/24/08 at 1:46pm
Awww, he's looking so great!!!

Thats interesting to know about the canula. I was actually curious about the canulas for preemies before, do they ever have extra moisture in it unlike the adult version? Or....something to keep thei noses from drying out? I just remember how horrible it felt when I had one in for more than a day because it dried out my nose soooo bad. I'd think any extra moisture would be a help there!

Anyway, he's looking great, good job mama!!
post #27 of 38
8/6/08 at 6:52pm
Congrats on your baby.

My son was born at 30 weeks so we were able to keep him in a few weeks longer than you. Honestly you never know what complications will occure.. it's a day by day, minute by minute thing. We never plan for complications or bad things to happen.

When Hayden was 7 weeks old he was doing great, just had to get the eating out of a bottle thing down and we were golden and on our way home.

Anyway... Parainfluenza type 2 hit the nursery and Hayden had major set backs... he was already anemic and the "cold" hit and it wiped him out.... he Desated 18 times in one night.... and they had to stimulate him to get his sats back up. The next morning he had to have a blood transfusion. This set us back about 3 weeks....

so you just never know what to expect and don't know what set backs your child will have.... it depends on him .... he sounds like a fighter.

The high risk pregnancy doctor gave Hayden an 80% survival rate at 30 weeks.

Good luck... and as someone said before the NICU sucks. We just came home 2 weeks ago thank the lord above our baby is doing well now
post #28 of 38
8/6/08 at 6:54pm
Yes that's what the little tank of water is ..... suppose to add moisture..... Ours was a little square container that the canula hose hooked up to.
post #29 of 38
8/6/08 at 7:12pm
Ohhh....I saw that and didnt know what it was for. I didnt ask cause well, I didnt feel the need to, lol. Thats good to know-I cant imagine having a normal canula in for months, ouch!
post #30 of 38
8/7/08 at 12:05am
Our NICU uses, what they call, a high flow nasal cannula. It heats and humidifies the oxygen and they can get up to 4 litres. My boys are slowly weaning off the high flow and will then be put onto regular cannula.
post #31 of 38
8/8/08 at 5:58pm
Quote:
Originally Posted by 11yrsNoKid View Post
its an alternavie to nasal canula. See nasal canula can only go up to 2 liters of flow, while vaportherm can go beyond. My baby needs 3 liters of flow. Its how fast the oxygen/air mixture flows out of the nasal plugs. It also gives off a little more moisture than the nasal canula.


Here is a new pic of my baby. He is two months and one day old.\ and would be 34 weeks gestation now.


http://i37.tinypic.com/2dhac6x.jpg
What a gorgeous little boy! I can only imagine what you have been going through! So many to you, mama!

I don't know if you had a chance to look into circumcision yet, so I'll post this link which has alot of great info/studies/videos on the subject http://www.mothering.com/discussions...d.php?t=822675

I wish you little one will be home very soon, healthy, whole, perfect!
post #32 of 38
8/8/08 at 6:28pm
He is beautiful! Congratulations!
post #33 of 38
8/8/08 at 10:41pm
Hayden started out life on CPAP, then the high flow nose cannula, then to the nose cannula... then when he got down to .5 liters and did well on that for a few days they took him off... just for a day to see how he did... and they didn't put him back on it until he had the blood transfusions... each time they transfused they put him back on the nose cannula. His little tiny nostrils looked like they were going to rip. He had an NG Tube and the nose cannula.
post #34 of 38
8/9/08 at 11:50am
What beautiful boys you have!
I know the NICU is tough, but from the looks of your blog you are doing a great job, mama!:
post #35 of 38
9/18/08 at 12:53am
Thread Starter 
Update!!

Sorry it took so long to reply. My baby is home now after being in the NICU for three months. He is not on O2 or anything else. He did have eye surgery from having ROP. He isn't in the clear yet, but things are looking great. He weighs 7lbs 14.5 oz now. He is rotten, and demands all my attention. LOL...

Thanks everyone.
post #36 of 38
9/18/08 at 1:40pm
What a wonderful update! I'm glad he's home and doing so well.
post #37 of 38
9/18/08 at 4:09pm
So glad to see that he's home! I've followed your story since my twins were born at almost the same gestation as your boy. I can't believe how much he weighs, that's awesome!
post #38 of 38
9/18/08 at 5:52pm
Awesome!! Glad to hear he is home and awesome he is not on O2.
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