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Healing The Gut Tribe! - Page 11

post #201 of 451
Does anyone want to buy some Culturelle or Reuteri from me? Now that I'm strictly dairy-free, I'm won't be able to use these any more. I've got 2 boxes of Culturelle (30 caps each) and a bottle of Primodophilus Reuteri (90 caps) in case anyone is interested.
post #202 of 451
Quote:
Originally Posted by BeingMe View Post
2. I'm thinking the vira-stop since my last test showed really elevated levels of epstein barr. Is there any risk with this product that you know of? Or anything else I need to supplement with when using this product?
I was going to participate in the third enzymes and virus pilot study, but I never did. I still have the e-mail that Karen DeFelice sent out with detailed instructions on how to use ViraStop for a ‘therapeutic dose’ and what to expect.

PM me if you're interested and I can send it to you.
post #203 of 451
Quote:
Originally Posted by duckmom View Post
I was going to participate in the third enzymes and virus pilot study, but I never did. I still have the e-mail that Karen DeFelice sent out with detailed instructions on how to use ViraStop for a ‘therapeutic dose’ and what to expect.

PM me if you're interested and I can send it to you.
Could you PM me that as well? I have a bottle in my cupboard, but I'm not sure what to with it. We're already on Nystatin, 3 enzymes, and a probiotic. I'm not sure if it would help with all of those or not.


Chinese Pistache- If I could ship you some Nystatin in China I would! Our doc prescribed our dd 3 refills for a script I got at Walgreens which is the sugary crap and then sent another script to a compounding pharmacy to get it with stevia that also has 3 refills. Pretty sure you can't ship rx's to another country though.

On that note does anyone know if the sugary Nystatin will work??
post #204 of 451
Quote:
Originally Posted by Chinese Pistache View Post
I know. I just don't know what kind of doctor would be willing to prescribe this to me without us having common symptoms. Conventional docs hardly know anything about yeast other than "infections," and we haven't had luck finding an alternative doctor. Sigh.
Aye. We are lucky to have a holistic MD who knows all about gut issues. But if we didn't, I'd have no problems making up a few symptoms to persuade a less-than-helpful doc to give me something I thought might help me. It is a pretty safe med so it might not be that hard. You know, chronic yeast infection or something like that ...

I also have a huge bottle (and 6 refills) of the oral suspension liquid that I won't be using. I wouldn't advise taking it though as it is full of nasty stuff. Not only sugar but also saccharin, artificial colors/flavors, methyl and propyl parabens. If you want it it's yours though.
post #205 of 451
Thread Starter 
Quote:
Originally Posted by joybird View Post
But if we didn't, I'd have no problems making up a few symptoms to persuade a less-than-helpful doc to give me something I thought might help me. I
I got distracted by the baby, but was just about to suggest that often the only symptom of thrush is burning nipples ... then you're justified for a prescription for you and any nurslings..
post #206 of 451
I'd love info on virastop, too, if possible.

Quote:
Originally Posted by cahwilson View Post

Chinese Pistache- If I could ship you some Nystatin in China I would! Our doc prescribed our dd 3 refills for a script I got at Walgreens which is the sugary crap and then sent another script to a compounding pharmacy to get it with stevia that also has 3 refills. Pretty sure you can't ship rx's to another country though.

On that note does anyone know if the sugary Nystatin will work??
LOL, I'm in California, but thanks for thinking of me. I'm going to see how far I can get with our ped. I also saw an ad for an md who does homeopathy, too. Not sure if he sees infants. . .

Quote:
Originally Posted by joybird View Post
Aye. We are lucky to have a holistic MD who knows all about gut issues. But if we didn't, I'd have no problems making up a few symptoms to persuade a less-than-helpful doc to give me something I thought might help me. It is a pretty safe med so it might not be that hard. You know, chronic yeast infection or something like that ...

.
So, like what? Ds has no rash, no thrush, but his previous poop issues looked and smelled as much like yeast as they did food sensitivities (which we all know go hand in hand).
post #207 of 451
Quote:
Originally Posted by Chinese Pistache View Post
I'd love info on virastop, too, if possible.



LOL, I'm in California, but thanks for thinking of me. I'm going to see how far I can get with our ped. I also saw an ad for an md who does homeopathy, too. Not sure if he sees infants. . .



So, like what? Ds has no rash, no thrush, but his previous poop issues looked and smelled as much like yeast as they did food sensitivities (which we all know go hand in hand).

LOL sorry I was confusing you with Samama I think!

In that case I would go with the symptoms of thrush to get the rx. If they prescribe the liquid you could always get it compounded with stevia and natural flavors. Although finding a holistic doc could be very beneficial in the long run. It has been for us.
post #208 of 451
Is Lysine just as good as doing Virastop for my Epstein Barr, and little warts all over? I would like to do the Virastop but hubby thinks we have spent too much money on supplements lately. What do you think?
post #209 of 451
Quote:
Originally Posted by BeingMe View Post
Is Lysine just as good as doing Virastop for my Epstein Barr, and little warts all over? I would like to do the Virastop but hubby thinks we have spent too much money on supplements lately. What do you think?
For herpes family viruses, which EBV and warts would be, I think so. Lysine is said to be able to eliminate herpes viruses at therapeutic doses, and it's certainly less expensive than ViraStop. I would definitely give it a try if I were you.
post #210 of 451
Thanks for the info about the lysine.

Ok, got my enzymes and getting ready to start on my daughter(recap - 28 months, not autistic, but majorly speech delayed, yeast, certain food sensitivities, poor sleeper at night, and possible underlyig viral(had ringworm that spread 2 months ago). Please let me know if I have any of this wrong.

Enzymes:
1. Zyme Prime - I start slowly with giving this at meals. Starting with one meadl a day then working up to 3 meals a day. I also start by giving less than 1/4tsp (I got the powder) and slowly working up to a full 1/4tsp.

2. AFP Peptizide - Once Zymeprime is going ok, I then slowly introduce the AFP the same way I did the ZymePrime, all the while maintaining my her Zymeprime dose

3. VSL#3 - Once AFP and ZymePrime are going with meals I then introduce the heavy probiotics between meals and away from enzymes

4. Candex - Once the probiotics are taken ok, I give Candex in between meals and away from the probiotics. Again going really slowly.

5. Antifungals if we can't get this beat by the other measures.

Questions:

A. My ND said to give magnesium, even though she will be on Brainchilds vitamins and minerals(advanced sensitive and ultra-sensitive http://www.brainchildnutritionals.com/SSAS_Ingredx.html ). Do you think it's necessary to supplement more than the 10mg she will get a day? The brand of magnesium I use is Natural Calm, but the baby version has vitamin c in it(magnesium ascorbate), is this ok or should I just give her less of mine which is just magnesium citrate?

B. Calcium - is this good to supplement?

C. Biotin - Should I give her this? What time of day to give this if I give her some, between meals, etc? And if it needs more magnesium than what is in the brainchild supplement do they have to be given at same time?

D. At what point do I put the AFP and/or Zyme Prime in between meals?

E. Lysine - Is this good to give her?

F. Anything I am missing that she should be getting? She gets CLO, and soon will be getting butter oil, so that should hopefully take care of any possible Vit K issues.

Thanks for taking the time to look over this. You women are amazing and have helped me sleep better at night
post #211 of 451
Quote:
Originally Posted by joybird View Post
protease enzymes. They don't kill yeast like cellulase does, but they will help mop up toxins that the yeast release when they're killed. For that reason I think it would be a really good idea to do with the yeast-killing enzymes if you have a young nursling, to keep as much of that away from the bm as possible.

this is helpful information. thanks.
post #212 of 451
Does anyone else notice getting very cold and/or very sleepy after taking a dose of Candidase?
post #213 of 451
[QUOTE=cahwilson;12215242]LOL sorry I was confusing you with Samama I think!

Yes, you were probably thinking of me. Thank you anyway! We will try and get some Nystatin from Canada through some friends who live in another city. Will see what the Chinese postal system says about mailing meds.

We are still dealing with die-off. It is horrendous. DD seems to have a vaginal infection. Her eczema is red and angry and her moods are nuts. She has been weepy, yelling, hitting, tantruming. MUCH more than usual. She is actually very sweet and compassionate, so it is hard to see my little girl beating up her friends Oh, and she sleeps worse than ever. Wakes up and just don't go back to bed! I sure hope there is light at the end of this tunnel. To top it all off I now have thrush on my nipples. And both of us have been going crazy with the buckwheat pancakes (snacking on breakfast leftovers during the day) and honey, so that has to stop. I am straining some honey that is still in the comb and it is more than my fragile, sleep deprived will can handle right now.

So, this week we are focussing on getting rid of the grains and then I will try to switch over to something like the scd.
post #214 of 451
[QUOTE=SAmama;12231396]
Quote:
Originally Posted by cahwilson View Post
LOL sorry I was confusing you with Samama I think!

Yes, you were probably thinking of me. Thank you anyway! We will try and get some Nystatin from Canada through some friends who live in another city. Will see what the Chinese postal system says about mailing meds.

We are still dealing with die-off. It is horrendous. DD seems to have a vaginal infection. Her eczema is red and angry and her moods are nuts. She has been weepy, yelling, hitting, tantruming. MUCH more than usual. She is actually very sweet and compassionate, so it is hard to see my little girl beating up her friends Oh, and she sleeps worse than ever. Wakes up and just don't go back to bed! I sure hope there is light at the end of this tunnel. To top it all off I now have thrush on my nipples. And both of us have been going crazy with the buckwheat pancakes (snacking on breakfast leftovers during the day) and honey, so that has to stop. I am straining some honey that is still in the comb and it is more than my fragile, sleep deprived will can handle right now.

So, this week we are focussing on getting rid of the grains and then I will try to switch over to something like the scd.

I know it is so hard to see your little girl act like that when you know its not her. I can always see it in my dd's eyes that she is scared and she doesn't want to be like that. Thats what I always tried to explain to people, but they just took as an excuse for my parenting. My parents actually now notice a big difference between the "good" weeks and the bad. They are really amazed and now support me in this. Dd also has a lot of autistic behavoirs that come out when she is affected. I am sure hoping that one day it will be all good weeks. I will say though things have gotten A LOT better!
post #215 of 451
Hello all, I am looking into this healing the gut stuff and am feeling interested, confused and well, a whole lot of stuff.

First off, a little history. Mr Toona and I have been together a little over 6 years. Early on when we met, he developed something he called eczema on his hands and on the back of his leg. It is now a huge (larger than his hand) patch of scale-like skin that itches furiously. (He can't use anything short of his keys to scratch it). I never had much in the way of yeast problems before him, but ever since him, I've had scratchy bits (just external, not internal) almost everyday. We never put two and two together. His son had a very bad case of eczema from birth and so I just figured his was eczema. Cue DD being born, and we transferred to the hospital (due to my being a weenie, really no emergency), we got their stinking antibiotics because I feel like they didn't even give me the option. DD (and I) had thrush then. I didn't really ever have much in the way of symptoms, just her mouth and the early days she sometimes didn't want to latch on. We tried this that and another thing, and finally I stopped doing anything, and it seemed to be done.

BUT, I've noticed recently she will NOT nurse when I've had garlic, and now that I'm trying probiotics again, she will not consume whatever they are mixed in (EBM, haven't tried it with water yet). Mr Toona and my itching still continue. Mine is more off and on again than his. Our Doc (DO) that we found suggested that our problem was yeast (which is what I was starting to suspect). And Mr Toona claims Doc said can get rid of yeast by treating just one of us. That makes no sense to me, but who knows.

So I"m reading all this and wondering where to start. Did I mention that Mr Toona has this need (not everyday anymore, but it used to be that he'd) eat a sugar fix a day before going to bed. this means anything from a pastry to apple butter on raisin bread. I've never looked for a connection, but his itching is always the worst before bedtime and as I write this wonder if that happens most when he eats his sugar fix.

We both WOHM. I don't have the time to cook really drawn out recipes and whatnot, and I"m hoping we can figure some things that work for us, but I think we need a diet change. This won't be easy with Mr Toona's sweet fix need.

I've perused the BTVC and BED websited and I just don't know which one makes more sense. I've got the books on hold from the library. Can anyone break down the differences between these? Any tips on breaking a sugar fix habit?
TIA
post #216 of 451
Quote:
A. My ND said to give magnesium, even though she will be on Brainchilds vitamins and minerals(advanced sensitive and ultra-sensitive http://www.brainchildnutritionals.com/SSAS_Ingredx.html ). Do you think it's necessary to supplement more than the 10mg she will get a day? The brand of magnesium I use is Natural Calm, but the baby version has vitamin c in it(magnesium ascorbate), is this ok or should I just give her less of mine which is just magnesium citrate?
I give each kiddo 220mg magnesium per day (split between pre-naptime and bedtime), plus there's a little here and there in some of their other supps. If you go too high, you'll see diarrhea. I use a capsule, Perque Mg Plus Guard--I found the flavor of natural calm to be a bit, um, strong, but if it's working for you, it's supposed to be a really nice type.
post #217 of 451
Joybird, can I ask about this? (And sorry for asking about something from 4 pages ago--I live in Sugar Land, a suburb to the west of Houston, and we were without power for almost a week and I'm just getting back to my learning adventure).

Quote:
The toxins from yeast die-off will not re-settle in your body as a pp suggested. Heavy metals, yes, but that's not what we're talking about here. Your body has detox pathways and they will do their job if you support them properly and if they are not overloaded because of heavy metal toxicity.
Do you have anything I could read about the difference between heavy metals as toxins and other toxins? I would've thought any could re-settle, and with a really limited diet and little or no safe vit/mineral supplements, it seems like the detox pathways would be really hampered. But all my reading has started from the heavy metal side of things, so I've got holes to fill in (and this will be much more relevant as I start working on my husband, but that'll be after his adrenals are in a bit better shape, so now is my learning time). Anything you can share is great.
post #218 of 451

Question about Houston enzymes and scd

We use the bulk powders of Houston. Now we want to do Gaps or SCD, but cellulose seems to be on the list of illegal foods. I actually thought that the enzymes that isn't with rice bran is scd friendly. No? I quickly checked on their site, but didn't find anything. Does anybody know?
post #219 of 451
Just a quick update: I decided I'm giving up on the Candidase for now. Every time I take it I get very tired and/or my body gets very cold afterwards. These are both allergy reactions for me with food, so it worries me to have this happen with the Candidase. I don't know if I'm reacting to something in the Candidase in an allergenic sense, or if it's a die-off reaction...but either way, my instincts say to just back off for now. I'm really being drawn to do some herbal things instead, for liver support and hormonal support, so that's what I'm doing for now. I think I may try the Candidase again in a month or so. I'm going to continue the Digest Gold with meals though.
post #220 of 451
Quote:
Originally Posted by WildIris View Post
Just a quick update: I decided I'm giving up on the Candidase for now. Every time I take it I get very tired and/or my body gets very cold afterwards. These are both allergy reactions for me with food, so it worries me to have this happen with the Candidase. I don't know if I'm reacting to something in the Candidase in an allergenic sense, or if it's a die-off reaction...but either way, my instincts say to just back off for now. I'm really being drawn to do some herbal things instead, for liver support and hormonal support, so that's what I'm doing for now. I think I may try the Candidase again in a month or so. I'm going to continue the Digest Gold with meals though.
That is really interesting for me to hear... because I had terrible side-effects from the Candex, which could have been die-off but seemed all too similar to my allergic reactions. I wonder what the possible allergen is in the enzymes?
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