homemademomma - I've been thinking a lot about this news since I saw your post a couple of hours ago. I hope you will keep coming here for support from us here on the SN forum. But I also wanted to add that I hope you are able to find other parents who have this as a diagnosis for their LOs as well. I don't know what the doctors are like and how much support they are offering, but I hope that you can find really great support as you continue on this journey. I wish you much peace and courage.