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X-posted in LWAB: The Nagging Feeling That Something is Wrong with DD, LONG!

post #1 of 10
Thread Starter 
I had a really super laid back easy baby the first time around and dd is high needs so maybe some of this is just high needs?

I don't know. I can't shake the feeling there is something wrong with dd. Like long-term wrong with her and my instincts have always been spot-on with her from the time she was conceived.

It's lots of little things and many things I can't really say...I guess it's just something you would have to experience, kwim?

The short list though is that she's got tons of food allergies. I know lots of kids these days have food allergies but it seems pretty extreme to me to have so many to so many basic foods. She's small, perhaps relating to the food allergy issue, but she's fallen off her growth curve entirely although she is healthy looking and even has chubby thighs.

Everything with her is an extreme. I think that's the biggest thing that makes me feel she just isn't quite "right." If she's happy she is laughing but otherwise she is probably crying and screaming. She cries way more than any other 11 mos old I have ever known. She is OBSESSED with me. And again, I know that's normal, but it seems to an extreme and it's been this way for the past 9 mos so it's not just one little phase. I still can't go to the bathroom without her freaking out. And then she'll cry even when I come out and it could last 20 minutes or more. She won't go to anyone else...she'll sometimes go to dh but not usually. And in the beginning she was actually more bonded to him than to me. If something happens that makes her cry, like my ds taking a toy from her, she will cry forever. It can't be stopped by giving her back the toy, giving her a new toy, a "forbidden" item like a cell phone, or with any sort of distraction. This morning she crawled to me and wanted up. I picked her up and she immediately started throwing a fit: arching her back, screaming/crying, pushing against me, and trying to get down. So I set her down and she freaked out even more, throwing her body around. I tried picking her up and it's even more crying. Dh tried to help but she kept pushing him away. Finally I just let her lay there and cry. I didn't know what else to do, it lasted about 20 mins.

Oh and she bangs her head on stuff all the time. Yesterday I was sitting next to her crib trying to get her to take a nap. She was happy. She was laughing because she was trying to stick her foot out and touch me. So she was not upset at all and then she started banging her head on the crib. She just kept going harder and harder. She has a bruise today from it! She never cried from it....just kept babbling happily as she did it. Isn't that weird? It just doesn't seem right.

She's also a dare devil. She's always covered in bumps and bruises because she will just throw herself off of furniture and such. She climbs everything. She LOVES being thrown around. The faster the better. I have to push her faster on the swing than I do my 4 yr old for her to really enjoy it.

And most of all I feel this all started when she was about 11 weeks old. I feel like up until that point she was high needs but pretty normal. She was growing well. She was sleeping well. And then it's like suddenly everything changed. She stopped sleeping. She went from sleeping 10 hrs straight to not going longer than 90 mins. I know babies regress in sleeping habits but she still hasn't gotten better. I'm starting to have black outs and extreme vertigo from the lack of sleep. She won't co-sleep, it keeps her awake so I have to get up all night long.
post #2 of 10
I see a lot of ds1 in there. He was so different even as a small baby and never slept. He also had multiple food allergies(now the only symptomatic ones are tree nuts, yay). His head banging started at about 10 months old and stopped at close to 2 when I totally cut down his diet to rice, beans, pears,potatoes, and broccoli. He reacted to many more foods than what he tested allergic to.

Ds1 is also autistic. He had a few more things going on at one than what your listed. Some of them I didn't see until I looked back later. I knew for sure by the time he was 18 months old.

I would keep my eye open and tell your concerns to your ped. My experience is that if you feel in your gut something is up, something is. Maybe it is just sensory processing stuff or food intolerances. Maybe it is something else.
post #3 of 10
I'm sure people will weigh in with much more expert opinions... I'm mostly responding because I had (and still have, at age 4.5!) a child with terrible sleep patterns and I just wanted to give you a for the sleep deprivation, which I know is truly awful.

The head-banging and swinging, throwing herself around raises a question mark about sensory integration for me.
post #4 of 10
Well food allergies and then the poor growth and lots of screaming and poor sleeping makes me wonder if she's in pain. Look at eosinophilic disorders for example. http://www.apfed.org/egid.htm She may be feeling horribly. Falling off her curve (below the curve altogether?) is not normal unless there are very tiny people in you or daddy's family. My son did that. He was sick. Doctors didn't catch it. Are there any signs of reflux? Is she off of gluten? Did anyone test her for celiac? How are her stools?

Are her motor skills on track--did she hold her head up, roll over, walk, etc. at appropriate times? Is her development on track--speaking, playing pretend, understanding things, etc?

My son was always really extreme emotionally (poor emotional regulation) and he also did lots of crashing around and head banging and all that stuff. He has sensory integration issues and a pdd-nos (autism spectrum) diagnosis.

Was she pointing by 12 months? Did and does she consistently respond to her name? Does she play pretend?

My inclination in what you wrote is that yes something is probably going on. Moms are almost always right about that. I think there is a good possibility she is in pain and there is something medical causing it. I also think she could very likely have sensory integration issues. Read up on sensory integration and see what you think. But my first priority would be to find out why she isn't growing well and if there is a health issue behind things.
post #5 of 10
Quote:
Originally Posted by mavery View Post
I'm sure people will weigh in with much more expert opinions... I'm mostly responding because I had (and still have, at age 4.5!) a child with terrible sleep patterns and I just wanted to give you a for the sleep deprivation, which I know is truly awful.

The head-banging and swinging, throwing herself around raises a question mark about sensory integration for me.
I was going to say the mostly the same thing. The only difference is that my almost 7yo dd suddenly started sleeping sometime between 2 and 3yo (before that she'd sleep for 15min and be up for 4hours, it was terrible). But now I have a 23mo that doesn't sleep well at all. DD also had/has sensory problems. Hers are oversensitivities, it sounds like your dd's might be sensory seeking. I know how hard it is to operate on no sleep.
post #6 of 10
Thread Starter 
Quote:
Originally Posted by sbgrace View Post
Well food allergies and then the poor growth and lots of screaming and poor sleeping makes me wonder if she's in pain. Look at eosinophilic disorders for example. http://www.apfed.org/egid.htm She may be feeling horribly. Falling off her curve (below the curve altogether?) is not normal unless there are very tiny people in you or daddy's family. My son did that. He was sick. Doctors didn't catch it. Are there any signs of reflux? Is she off of gluten? Did anyone test her for celiac? How are her stools?
She had signs of reflux when she was really little but when I went on a TED all the signs disappeared so I really believe it was due to her food allergies. Because of the TED I'm pretty confident in what she reacts to and what she does not. She does not appear to react to gluten and can even eat it herself without reactions. She does react to wheat but only whole wheat, not processed wheat, so I think she actually reacts to the wheat bran or germ. Her stools are part of why I went on a TED. They were always very green and mucousy although never any blood (and we had them tested for microscopic blood which also came back negative). I've never seen her with a "normal" diaper where it's yellow and seedy.

Quote:
Are her motor skills on track--did she hold her head up, roll over, walk, etc. at appropriate times? Is her development on track--speaking, playing pretend, understanding things, etc?
Motor skills are great actually. I'd say she's on the early side of average for pretty much everything. She started rolling over both ways before she was even 3 mos old. She learned to roll where she wanted to go by the time she was 4 mos. She's been super close to walking since she was 8 mos old although at 11 mos she seems content to be cruising and crawling to get around. I'm not sure about the speaking and stuff. My ds, who doesn't have any issues, was actually probably behind in all that stuff so I'm not sure what is normal? For example ds didn't talk until he was 2 but he basically woke up one day and was talking in sentences (and hasn't shut up since! LOL). She seems to understand some things. She is starting to use some baby sign language.

Quote:
My son was always really extreme emotionally (poor emotional regulation) and he also did lots of crashing around and head banging and all that stuff. He has sensory integration issues and a pdd-nos (autism spectrum) diagnosis.

Was she pointing by 12 months? Did and does she consistently respond to her name? Does she play pretend?
She's not 12 mos yet but she has always responded to her name...or you can tell that she hears us but is ignoring us lol. My ds didn't start doing pretend until he was over 3 yrs old so again I don't really know what is normal but she seems to play and such just fine as long as she's happy anyways.

I read through some sensory integration stuff and some of it fits but a lot of it doesn't. Maybe she is just really high needs, I don't know. I started thinking about it and I think she is a lot like how my brother was when he was little. I'm going to have to ask my mom more about it. My brother was never diagnosed with anything except some learning disabilities he outgrew but I have a feeling that he def does have sensory issues and is perhaps very slightly on the autism spectrum by the way he still acts (he's 33 years old now, super crazy smart, but has a hard time being around crowds and other over stimulating things).
post #7 of 10
I think you might want to look over the eosinophilic stuff because reflux connected to food allergies is part of that. And maybe get a celiac panel just in case. That wouldn't look like other allergies but could cause stool issues, growth issues, and even her sensory stuff. The stools don't sound normal and neither does her growth. Green mucus can mean c. diff but I think it's probably not in her case given her age and history.

Sensory stuff for sure. Look particularly at proprioceptive issues. Sounds a lot like my kiddo.

I asked about her play skills (I thought for some reason she was 20 months which is why I asked about pretend), pointing, responding to her name, etc. it was autism I was referring to; sounds like she's on track developmentally.
post #8 of 10
Thread Starter 
She doesn't seem to be in pain though. I asked dh if he felt like maybe she was in pain and he doesn't think so either. Of course it's all guesswork at this age of course since she can't communicate much at all.

Also, it all seems so transient. I mean sometimes she can sit there and play happily with some toys for 30 mins. Other days she's crying the whole time. She will go days and days without banging her head and then spend one day just nudging and hitting her head on everything as she cruises along.

We also do not currently have health insurance. In fact, dh does not have a job at the moment and we are completely without income. He just got out of the military so hopefully something will be coming along soon. But regardless we have to be really careful of where we are spending money. I've got an appointment already for her with a renowned osteopath (she even studied with Dr Weil) so we're gonna start with her and see what she has to say. If we can't get answers there I've got some good recommendations for a pediatric ND in town.
post #9 of 10
i would urge you to talk to a pediatric gastroenterologist. your dd sounds so much like my ds (same age, too) and we were getting nowhere til we saw a ped gi and ped allergist. the crying (which has nearly driven me insane, literally) in our case was due to pain, we think, as it completely disappeared when we put him on a 2 day gut-healing diet of rice dream (under his doc's supervision, and only after he had an allergic reaction to elemental formula). he was suddenly like a normal baby (he is delayed developmentally because he also has an immune deficiency and has been sick much of his life). an ED didn't help, so i am no longer giving him breastmilk (still pumping and freezing, though). we are trialing hydrolyzed milk-based formula, and most of his behaviors are back, including the inexplicable, unending crying. so i don't know what our next step is, but we are on the right path. he had scopes and biopsies a few weeks ago, and is being evaluated for an eosinophilic disorder as well.

nothing against naturopathic docs, but i really think a specialist is going to be your best bet- especially since you've done an elimination diet and she is falling off the charts anyway (as is my son).
post #10 of 10
Thread Starter 
I really very strongly feel she is not in pain. We all know our kids and how they react to things. I've seen her be in pain or uncomfortable from bumping her head, from me eating something I shouldn't have and it causing a reaction in her, and when she was sick with a high fever. It's not the same cry at all. It's like a tantrum cry except I hate calling it that because I don't believe that 11 mos old babies really throw a tantrum. She just sounds angry to be honest. I'm not saying that a GI isn't on our list of possibilities, I'm just saying it's not at the top because, again, I just don't feel she's in any pain and neither does dh.

After reading replies here and in LWAB I feel more like it's more towards the sensory issues than anything else.

Thanks to everyone for their replies. I've gotten lots of good ideas/advice from here and in the other forum. I've got lots of reading to do now!
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