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post #21 of 39
7/21/08 at 9:17pm
Thread Starter 
Thank you all so much. I was talking to DH and he is thinking this may be heridetary. He had an uncle who passed when he was 8 years old (way before mark was born) due to heart problems from birth. He doesn't know exactly what was wrong with his uncle. I am trying to stay positive, but again, it is very hard to do. Thank you for your hugs and love!
post #22 of 39
7/21/08 at 9:42pm
Maryann, you probably don't remember me as I left this DDC early. But I check on you ladies from time to time and saw this post today.

I am very sorry that you are having to go through this.

However, there is a lot that can be done now. My cousin had a congenital heart defect that almost certainly would have led to an early death even 30years ago. He had surgery when he was 7 and is now a perfectly healthy 20 year old.

I am not saying this to diminish the agony and worry I am sure you are going through but just to offer some hope that even if your LO does have what DH's uncle had, it doesn't mean the outcome is going to be the same.

Bless you mama, you and your LO and your family are in my thoughts.
post #23 of 39
7/21/08 at 10:07pm
Oh Maryann,

I'm so sorry to hear this. The waiting must be killing you. I can't imagine the worry and sorrow you must be going through. Just remember that you have tons of positive energy in the universe from all of us, coming your way. And, the medical world will do all they can to make sure your babe is healthy and treated as soon as possible.

Hang in there, honey. We'll all be waiting for an update tomorrow.
post #24 of 39
7/21/08 at 10:32pm
im sorry MaryAnne..i have a ds who had a genetic disorder (noonan's syndrome) and had heart surgery when he was 2. it was very stressful and nervewracking, i wont lie..but he is great today after several surgeries for various reasons.

you are in my thoughts.
post #25 of 39
7/21/08 at 10:52pm
OH Mama....what news. I'm so sorry. Best wishes for the best results for you and your family!
post #26 of 39
7/21/08 at 11:09pm
Sending you, your family, and your little one lots and lots of love during this difficult time. I'll be thinking of you!
post #27 of 39
7/21/08 at 11:48pm
Praying for a miracle for your sweet baby. They can be wrong sometimes! I've seen two shows on tv where the parents were told before the birth that the baby would need heart surgery - major defects.

Babies were born perfectly normal!
post #28 of 39
7/21/08 at 11:50pm


This must be so hard for you. I hope it's some comfort to know that so many people are thinking of you and your baby and wishing you both all the best.
post #29 of 39
7/22/08 at 12:16am
We are definitely all with you and holding your hands during all of this. We know how much you love your LO and hope as you learn more, peace can find you. Keep us posted. You are definitely in my thoughts.
post #30 of 39
7/22/08 at 3:01am
I'm tearful, Maryann, reading your post. What terrible news! I'd be an absolute mess. Hopefully meeting with the fetal cardiologist will be empowering and helpful.

How was your cervix and the renal dilatation?
post #31 of 39
7/22/08 at 3:09am
Just now saw this thread Maryann.
I am sending you lots of love and prayers for good results tomorrow.
As Veganmama says upthread, there have been so many advances in the past few decades that whatever your DH's uncle suffered from may not be so bad nowadays.
I am just relieved that if there is a problem, they are aware and on top of it from the start. This is promising.
((((HUGS)))):
post #32 of 39
7/22/08 at 12:06pm
I also wanted to give you this link to a carepage for Evan. His mom is on Mothering and was unaware of his cardiac defect prior to birth. It was a long road for them, but he is doing so well now. Being diagnosed while still in the womb is an advantage that your baby will have.

Sending lots of love and strength your way, Maryann.
post #33 of 39
7/22/08 at 12:25pm
There are obviously no words, but i'll be keeping your baby & you in my prayers.
post #34 of 39
7/22/08 at 1:21pm
You and baby are in my prayers.
post #35 of 39
7/22/08 at 2:21pm
I sending out a million and one positive thoughts for you and your little one, Maryann. Hopefully the specialist will be able to give you some better news - I can't imagine how difficult the waiting with no info is. *hugs* to your family.
post #36 of 39
7/22/08 at 4:31pm
I am praying prayers of peace for you and that your little one will continue to grow and this problem will be easily fixed. I am sorry...wishing I could hug you!
post #37 of 39
10/11/08 at 1:35pm

AV Canal heart defect

Hi there,
My daughter was diagnosed with an AV Canal at birth and went through her open-heart surgery to repair her defect at 3 months of age. She is doing great now, but I totally understand any and all of the worries and stress you must be carrying. My husband and I feel we were put through this experience because we are meant to help others going through open-heart surgeries with this little babes. I recently started a website for congenital heart defect support (www.chdsupport.blogspot.com). If you leave a comment there with your contact info, I would be more than happy to give you a call and just chat. We found meeting with those who had been through this before was very helpful to us. However scary the near future may seem, please remember these kiddos really do quite well after these surgeries.
Cheers,
Lindsay
post #38 of 39
10/11/08 at 1:48pm

AV Canal heart defect

Hi there,
My daughter was diagnosed with an AV Canal at birth and went through her open-heart surgery to repair her defect at 3 months of age. She is doing great now, but I totally understand any and all of the worries and stress you must be carrying. My husband and I feel we were put through this experience because we are meant to help others going through open-heart surgeries with this little babes. I recently started a website for congenital heart defect support (www.chdsupport.blogspot.com). If you leave a comment there with your contact info, I would be more than happy to give you a call and just chat. We found meeting with those who had been through this before was very helpful to us. However scary the near future may seem, please remember these kiddos really do quite well after these surgeries.
Cheers,
Lindsay
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post #39 of 39
10/11/08 at 2:14pm
Lindsay,
Mary Ann already gave birth and her son had his initial surgeries last week or so. This is an old thread. She made a newer thread on here to update on that and his initial surgeries which went well.

http://www.mothering.com/discussions...d.php?t=978294
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