My DD has multiple food sensitivities/ allergies - dairy, soy, eggs, and oats and those are just the ones we've figured out so far. But she's totally negative on a RAST. Her symptoms seem to be all GI - mucousy, bloody diarrhea and excessive refluxing/ projectile vomiting.
The GI clinic is done with us. We cancelled the colonoscopy they wanted to do - all the things they said they were looking for didn't match her symptoms in my opinion. I knew it was reactions to food but they didn't think so. Once I had proof it was the food I called back and asked if they wanted to address it more and they said "As long as she's doing well there is no need for her to come back". Well, she's only doing well because neither she nor I is eating much of anything, but I guess that's not their concern. And even at that "well" is a bit of a stretch since she hasn't really gained weight in 2+ months.
The allergist has a 3 month wait and I'm not very hopeful of answers from there since she appears to have non-IgE mediated responses.
On one hand I would really appreciate a doctor who wanted to help me find some answers. On the other hand, the appointments cost money and are a waste of time - the answers are in the heads of other parents going through similar issues, not to be found at medical clinics it seems.
Am I not giving the docs enough credit? Should I be more optimistic about the allergy appt, or possibly try a different GI clinic?
Anyone having similar frustrations?
The GI clinic is done with us. We cancelled the colonoscopy they wanted to do - all the things they said they were looking for didn't match her symptoms in my opinion. I knew it was reactions to food but they didn't think so. Once I had proof it was the food I called back and asked if they wanted to address it more and they said "As long as she's doing well there is no need for her to come back". Well, she's only doing well because neither she nor I is eating much of anything, but I guess that's not their concern. And even at that "well" is a bit of a stretch since she hasn't really gained weight in 2+ months.
The allergist has a 3 month wait and I'm not very hopeful of answers from there since she appears to have non-IgE mediated responses.
On one hand I would really appreciate a doctor who wanted to help me find some answers. On the other hand, the appointments cost money and are a waste of time - the answers are in the heads of other parents going through similar issues, not to be found at medical clinics it seems.
Am I not giving the docs enough credit? Should I be more optimistic about the allergy appt, or possibly try a different GI clinic?
Anyone having similar frustrations?
:
This is awful. And many of the doctors don't help much. It's not your imagination. You are probably giving them ample credit. They don't know much about intolerances, and most medical schools are still leaving "I don't know" off of their curriculum. I think you were fine not doing the test, since the blood in the stool is proof of inflammation. The test would just confirm the inflammation, not tell you why it was there. We too have been discharged by several departments, not yet having been helped. i think they just don't want us around to remind them they can't help all the patients who come to them.
