Originally Posted by whimsymom
The doctor was very gentle with DS. He did give some good news that he thought it is unlikely DS will get to the point that he can't pee or that that was any other immediate danger, which was a huge relief to me. Otherwise his opinion was pretty depressing. He said there is no need to do anything in any certain time frame, but he doesn't think that his foreskin will ever be able to retract without surgery. He said this is "true phimosis" as opposed to the kind of phimosis in intact boys. What makes it different is that DS has so much scar tissue. The pinhole that he can pee through is a tight ring of scar tissue and scar tissue does not stretch like regular foreskin. It's worse than an adhesion where a small part is attached because the scar tissue is so tight and all the way around. I'm not going to take this as the final word, but it does make me very sad.
I would definitely like a second opinion.
Very, very glad to hear the doc is not pushing for immediate surgery!
I believe he only called it "true phimosis" because he had been circ'ed and the "origional seal" had already been broken. Yulia is right, it can't be diagnosed until after puberty.
You know how scars fade over time? Well, in 13-16 years, that scar tissue is going to be MUCH smaller in proportion to the size of the penis, and is going to break down and fade quite a bit. And yep, steroid creams at that time could very well help release the adhesions, as could gentle stretching. It is very true that scar tissue doesn't have the same elasticity as unbroken skin, but it's not a complete loss. Look into foreskin restoration (Doug's Manual Restoration Site
is all drawings and info, very unintimidating, good starting point), and you will see different methods of breaking down the scar tissue, different oils to use, etc.
Hey... just had a thought: evening primrose oil is used internally for mom's that have had episiotomies to soften and break down scar tissue. I see no reason what so ever that you wouldn't be able to put a dab of EPO daily on your son until he is out of diapers! That would definately help the scar situation and not cross any boundaries-- I'm not at all suggesting you start restoring your infant's foreskin, just that you have the info to be able to present to him when he is older... and applying a natural oil after a bath to reduce scar tissue sounds like a good idea to me.
ETA: You know, I should really just read the responses before posting :P