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The Thyroid Thread (Part II) - Page 26

post #501 of 862
I jumped the gun. Talked to doctor's office again (now that the doctor's actually there) and she is recommending a slight increase in medication (no idea what "slight" is) so they're calling that in today. Which is both great and irksome since we went to the city yesterday to fill my (useless) prescription (the apothecary is closed on the weekend and DH had to be at work today and today was my last day of medication... not cutting it TOO close I was actually hoping to get my new dose before refilling.). I guess I'll take advantage of their mailing option so that we don't have to drive back over again and I get my (hopefully) proper dosage sooner.
post #502 of 862
I wouldn't do Coromega or any other "stripped" form of fish oil. We want natural high vitamin cod liver oil with the vitamins A and D. A deficiency alone in these can contribute to thyroid malfunction. Also there is evidence that taking the polyunsaturated fatty acids (PUFA's) without vitamins A and D lead to oxidization of the oils in the package and the body (formation of free radicals).

http://www.westonaprice.org/Cod-Liver-Oil/

JR,


Selenium and lots of magnesium are vital. Are you taking full complement of B vits? Enough vitamin A and D?
post #503 of 862
Quote:
Originally Posted by JaneS View Post
JR,


Selenium and lots of magnesium are vital. Are you taking full complement of B vits? Enough vitamin A and D?
I take 250mg Selenium daily (total) and 1150mg Mag.
I take a (Vital nutrients) B-complex and a (Thorne) prenatal vite. I get 2000 IUs of preformed A, 3000 IUs of caretenoids and 2600 IUs of D daily. And I recently (a couple of months?) started vitamin E.
I had started iodine, but was starting REALLY low and slow (as in, I added an extra 75mcg) but just read on Stop The Thyroid Madness that people with Hashi's should be on 50mg (following an iodine loading test). Yeesh.
Being sick is expensive. And that's not even mentioning the social costs.
post #504 of 862
JR, wandering a bit off-topic, when you run out of your Thorne prenatals, maybe consider the Thorne Basic Nutrients? Much higher level of Bs plus a lot more folate, and you can get them without copper. Might not need a separate B complex then.
post #505 of 862
Quote:
Originally Posted by TanyaLopez View Post
JR, wandering a bit off-topic, when you run out of your Thorne prenatals, maybe consider the Thorne Basic Nutrients? Much higher level of Bs plus a lot more folate, and you can get them without copper. Might not need a separate B complex then.
Just looked at this quickly but...
Firstly, my B-complex and my prenatals atm = 4 pills. The Basic Nutrients is 6. I'm trying to DECREASE my pills (even though I keep increasing instead ). And the Basic Nutrients actually has the same amount of folate in those 6 pills as my 3 prenatal pills. Everything else is higher than my prenatal alone, but... I'll make a spreadsheet in a sec to compare.
post #506 of 862
Quote:
Originally Posted by JacquelineR View Post
I get 2000 IUs of preformed A, 3000 IUs of caretenoids and 2600 IUs of D daily. And I recently (a couple of months?) started vitamin E.
I had started iodine, but was starting REALLY low and slow (as in, I added an extra 75mcg) but just read on Stop The Thyroid Madness that people with Hashi's should be on 50mg (following an iodine loading test). Yeesh.
Being sick is expensive. And that's not even mentioning the social costs.
Tell me about it!!! socially, emotionally, marriage-ally...

The WAPF recommends standard amount of vitamin A should be 20,000 IU per day from all sources (traditional foods included that is) as a regular amount and up to 90,000 IU per day in times of illness.

That amount of D was still giving me low blood level tests. I had to up to 10,000 IU per day for a couple months then dropped down to 5,000.

Yes, iodine researchers have said that low iodine is key cause of Hashi's (and all thyroid disorders). I have detox issues too. I haven't been brave enough to go up so high despite people on the Iodine Yahoo group saying they feel better at higher doses.
post #507 of 862
Quote:
Originally Posted by JaneS View Post
Tell me about it!!! socially, emotionally, marriage-ally...

The WAPF recommends standard amount of vitamin A should be 20,000 IU per day from all sources (traditional foods included that is) as a regular amount and up to 90,000 IU per day in times of illness.

That amount of D was still giving me low blood level tests. I had to up to 10,000 IU per day for a couple months then dropped down to 5,000.

Yes, iodine researchers have said that low iodine is key cause of Hashi's (and all thyroid disorders). I have detox issues too. I haven't been brave enough to go up so high despite people on the Iodine Yahoo group saying they feel better at higher doses.
That's a LOT of A! I'm also looking at another Thorne vitamin atm called Immune Support or something with 57,500 IU of A- but it's 12 pills per day .
I took 150,000IU of D a week for 6 months to get my levels up to par then my ND told me to cut back to 2000.

Still doing my spreadsheet up here. Although it looks like the Basic Nutrients falls short on most of the Bs (eta: as in, it doesn't have as much as my prenatal AND my B complex together), it's higher in some other things.
post #508 of 862
*sigh*
Well, my analysis is:
No matter which way I go, in order to get all of the nutrients at optimal levels according to all 3 supplements, I would need to take (minimum) another 10 pills per day.
post #509 of 862
Can you do the A with cod liver oil? Not sure if a spoonful of oil is better or worse, but it may really reduce the # of pills.

I didn't realize the prenatal had more than 400mcg folate, my memory _is_ what it used to be.
post #510 of 862
Quote:
Originally Posted by TanyaLopez View Post
Can you do the A with cod liver oil? Not sure if a spoonful of oil is better or worse, but it may really reduce the # of pills.

I didn't realize the prenatal had more than 400mcg folate, my memory _is_ what it used to be.
That estimate was assuming that either a) I found a supp which supplied nearly 50,000IU of vitamin A in ONE pill or b) I used the Immune Support complex by Thorne.

eta: And believe me, I understand about the memory.
post #511 of 862

Just diagnosed--please help!!!

I just got back from the endocrinologist and was diagnosed with hypothyroidism. I had a hoshimotos diagnosis right before getting pregant and my TSH levels were completely normal throughout the pregnancy (between one and two). My thyroid was enlarged though, with increased blood flow, which he said was consistent with the autoimmune condition. Now, at 6 months postpartem, I went for a checkup and my TSH is at 78.41!!! The doctor couldn't believe it when I said I was feeling fine. I'm tired, but no more tired than you'd expect taking care of a small baby. I had a virus a week ago and have been a bit sluggish since, but I figured that was just from being sick. The doc prescribed Levothyroxine sodium 50 mcg and told me to take one a day. I told him I'd heard that the T3 and T4 combined drugs are better (but haven't really done the research) and he said that he didn't agree with that and wouldn't prescribe it for me. I'm breastfeeding exclusively and he said if I don't act quickly and start taking the prescription, it could become hard to breastfeed and function normally. He said if I bottom out it will be weeks before I feel normal again and it could affect how I interact with my baby and husband. I am so scared and so upset. I don't know what to do. I guess I should fill the prescription...but I'm thinking maybe have the test done again and see another doctor first? I'm also about to move cross country and am incredibly stressed. Please give me some advice. I'm really at a loss here...
post #512 of 862
Quote:
Originally Posted by KermitII63 View Post
I just got back from the endocrinologist and was diagnosed with hypothyroidism. I had a hoshimotos diagnosis right before getting pregant and my TSH levels were completely normal throughout the pregnancy (between one and two). My thyroid was enlarged though, with increased blood flow, which he said was consistent with the autoimmune condition. Now, at 6 months postpartem, I went for a checkup and my TSH is at 78.41!!! The doctor couldn't believe it when I said I was feeling fine. I'm tired, but no more tired than you'd expect taking care of a small baby. I had a virus a week ago and have been a bit sluggish since, but I figured that was just from being sick. The doc prescribed Levothyroxine sodium 50 mcg and told me to take one a day. I told him I'd heard that the T3 and T4 combined drugs are better (but haven't really done the research) and he said that he didn't agree with that and wouldn't prescribe it for me. I'm breastfeeding exclusively and he said if I don't act quickly and start taking the prescription, it could become hard to breastfeed and function normally. He said if I bottom out it will be weeks before I feel normal again and it could affect how I interact with my baby and husband. I am so scared and so upset. I don't know what to do. I guess I should fill the prescription...but I'm thinking maybe have the test done again and see another doctor first? I'm also about to move cross country and am incredibly stressed. Please give me some advice. I'm really at a loss here...
My results were a little higher than yours (just over 100) when I was dx'ed at 6 months pp. I was in much worse shape but had only been having truly obvious symptoms (rather than "no more tired than you'd expect with a baby") for about a month- my milk supply dropped, I started falling asleep anytime I sat down to nurse, was SO tired that I slept for 19 hours several days a week... Yadda yadda. It has taken more than "a few weeks" to get back to normal (and I still don't consider myself at "normal" and honestly wonder if I ever will be again). It took me a couple of months of pumping for 20 minutes every 2 hours and nursing then nursing more then nursing with a (can't remember the word- like a Lact-aid?) SNS to get my supply back to where it needed to be. I took the Levothyroxine when they gave it to me (I could barely think to put 2 words together at the time- I seriously forgot what I was saying in mid-word, much less mid-sentence.). It got me functional and then I started researching and asked my doctor to switch me to Armour- she refused (also refused to run antibody testing). I showed her the door and went to my ND who ran tests and switched me to Nature-Throid (6 months post dx) then Armour (last January) and am now on compounded thyroid (since January). I also have a new doctor who is much more receptive.
This has been my experience. I know there are other people on this board who've had different experiences.
Two very informative sites are stopthethyroidmadness.com and ithyroid.com, fwiw.
post #513 of 862
Quote:
Originally Posted by JacquelineR View Post
but just read on Stop The Thyroid Madness that people with Hashi's should be on 50mg (following an iodine loading test). Yeesh.
Being sick is expensive. And that's not even mentioning the social costs.
Duuuuuuuuude, that is a lot of iodine. I mean, I don't doubt that some people need that much, but wow, it would take me a long time to work up to that. I am taking just a few drops of Iosol and it has increased needs for mag and C like crazy. The package says it has 1800 micrograms per dropperful. So even if I took the whole dropperful, that is only 1.8 milligrams.
post #514 of 862
Quote:
Originally Posted by KermitII63 View Post
I just got back from the endocrinologist and was diagnosed with hypothyroidism. I had a hoshimotos diagnosis right before getting pregant and my TSH levels were completely normal throughout the pregnancy (between one and two). My thyroid was enlarged though, with increased blood flow, which he said was consistent with the autoimmune condition. Now, at 6 months postpartem, I went for a checkup and my TSH is at 78.41!!! The doctor couldn't believe it when I said I was feeling fine. I'm tired, but no more tired than you'd expect taking care of a small baby. I had a virus a week ago and have been a bit sluggish since, but I figured that was just from being sick. The doc prescribed Levothyroxine sodium 50 mcg and told me to take one a day. I told him I'd heard that the T3 and T4 combined drugs are better (but haven't really done the research) and he said that he didn't agree with that and wouldn't prescribe it for me. I'm breastfeeding exclusively and he said if I don't act quickly and start taking the prescription, it could become hard to breastfeed and function normally. He said if I bottom out it will be weeks before I feel normal again and it could affect how I interact with my baby and husband. I am so scared and so upset. I don't know what to do. I guess I should fill the prescription...but I'm thinking maybe have the test done again and see another doctor first? I'm also about to move cross country and am incredibly stressed. Please give me some advice. I'm really at a loss here...
No one can tell you what to do. You have to decide for yourself, but I can say that I personally wouldn't leave a tsh that high untreated. This is just based on my experience living with this disease. I guess everyone is different. One time my tsh got up to 11 and I felt like hell. You have a few options

1. Go see a naturopath next week that can start you on some kind of natural treatment.

2. Just take the levothyroxine and see how you feel

3. Temporarily start the levothyroxine until you find an MD that is natural minded.

Moving is really stressful. B complex has helped me with stress in the past. I started with 50 mg. Something simple you can add that really can't hurt is sea salt. Also, some people find magnesium helpful for stress (including me!). Just start slow. If you take too much magnesium, you will know b/c your bowels will loosen. Those are just some things that have helped me with my stress while trying to find a good dr and get well. Sometimes finding the right dr and treatment is a journey. I'm sure moving complicates that for you.

The sites recommended by JacquelineR are really helpful.
post #515 of 862
Quote:
Originally Posted by nichole View Post
Duuuuuuuuude, that is a lot of iodine. I mean, I don't doubt that some people need that much, but wow, it would take me a long time to work up to that. I am taking just a few drops of Iosol and it has increased needs for mag and C like crazy. The package says it has 1800 micrograms per dropperful. So even if I took the whole dropperful, that is only 1.8 milligrams.
I don't suppose you know how much that is per drop?
post #516 of 862
Quote:
Originally Posted by KermitII63 View Post
I just got back from the endocrinologist and was diagnosed with hypothyroidism. I had a hoshimotos diagnosis right before getting pregant and my TSH levels were completely normal throughout the pregnancy (between one and two). My thyroid was enlarged though, with increased blood flow, which he said was consistent with the autoimmune condition. Now, at 6 months postpartem, I went for a checkup and my TSH is at 78.41!!! The doctor couldn't believe it when I said I was feeling fine. I'm tired, but no more tired than you'd expect taking care of a small baby. I had a virus a week ago and have been a bit sluggish since, but I figured that was just from being sick. The doc prescribed Levothyroxine sodium 50 mcg and told me to take one a day. I told him I'd heard that the T3 and T4 combined drugs are better (but haven't really done the research) and he said that he didn't agree with that and wouldn't prescribe it for me. I'm breastfeeding exclusively and he said if I don't act quickly and start taking the prescription, it could become hard to breastfeed and function normally. He said if I bottom out it will be weeks before I feel normal again and it could affect how I interact with my baby and husband. I am so scared and so upset. I don't know what to do. I guess I should fill the prescription...but I'm thinking maybe have the test done again and see another doctor first? I'm also about to move cross country and am incredibly stressed. Please give me some advice. I'm really at a loss here...


I just found an endo who believes in a combo of T3 and T4 drugs. So if that's what you want....keep looking. Your current doc may not be right for you.
post #517 of 862
Quote:
Originally Posted by nichole View Post
Duuuuuuuuude, that is a lot of iodine. I mean, I don't doubt that some people need that much, but wow, it would take me a long time to work up to that. I am taking just a few drops of Iosol and it has increased needs for mag and C like crazy. The package says it has 1800 micrograms per dropperful. So even if I took the whole dropperful, that is only 1.8 milligrams.
50 MG/day is recommended by the Iodine Project Researchers for thyroid problems, with mangesium rather than calcium emphasized supplements, and C and B.

http://www.iodine4health.com/ortho/ortho.htm
http://www.optimox.com/pics/Iodine/opt_Research_I.shtml
post #518 of 862
Quote:
Originally Posted by JaneS View Post
50 MG/day is recommended by the Iodine Project Researchers for thyroid problems, with mangesium rather than calcium emphasized supplements, and C and B.

http://www.iodine4health.com/ortho/ortho.htm
http://www.optimox.com/pics/Iodine/opt_Research_I.shtml
I'm not putting it down, but I'm certainly not ready to go up that high yet.
post #519 of 862
I have a question ... I just got a cortisone shot because I'm really sick with bronchitis/pleurisy and was wondering if this will affect my thyroid/meds at all. I'm supposed to go in this week for my endo visit and blood test and was wondering if it would hurt anything.
post #520 of 862
Quote:
Originally Posted by Adamsmama View Post
I'm confused... are you not supposed to take medicine before getting the TSH test done? No one told me that...
I was going off what Jacqueline said; that she took them but she wasn't supposed to.

I don't have specific knowledge either way. Just if you're not supposed to take something for bw and do, it might be a good idea to redo it.

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