Originally Posted by heartmommyak
This is my first time posting here and I was hoping to get some support and advice. Background: I was diagnosed about six months ago with hypo (levels were 10.78 or so), and three months later after being on levo, it's a 1.99. So despite still feeling drained, I'm cured right? Well according to the nurse at my dr's office I should be fine, and I don't need to be tested for another year since I'm stable. Anyhow. 3-4 months ago (so after the levo should have kicked in), I'm 95% certain that I stopped ovulating and normally I run 5 week cycles, but this past cycle was 8 weeks. So I call and tell my dr's nurse about this and that I'm concerned and did bring up the hypo, but obviously something's not right. She said she'd talk with the dr (who's a family dr/ob/gyn) and I'd get a call back within two days. A week later, still no call or anything. I suppose I could call the dr office again to follow up but I don't feel like I should have to... and I'm really wondering if I should just make an appt with an endo. We have five endos in the area (actually all are just over an hour away) and I know nothing about any of them, so it would be a shot in the dark as to which one I should try going with. Also, I'm not even positive as to what my dr has tested with me so far (I know they got at least the one thyroid level, but I've read in several sources that there are several tests that should be done to more correctly diagnose the source of the thryoid problem thus leading to a better treatment). I do really like my dr and want to stay with her at least for the time being (not necessarily for the thyroid stuff, but as an ob/gyn), so I don't want to burn any bridges. But I'm so fustrated. And we want to TTC soon, so that makes want to be very vigilant in getting my thyroid properly treated (which I'm not convinced is happening at the moment). What would you do given these circumstances? How do you go about deciding which endo to go with if you know nothing about any of them? What's the norm with testing once you are pregnant? I can't remember the name of it, but there's that one type of thyroid problems shortly after giving birth... I was diagnosed as being hypo almost two years after having my dd, is that too long after having my dd to have that particular type? My dr did not suggest that, but I wondered. Thank you in advance for any information and/or advice.
Ok, a few things.
Firstly, sometimes when a person still has symptoms (usually fatigue, although there may be others as well), there is an adrenal problem which is at play. Most allopathic physicians will not test for adrenal issues beyond perhaps Addison's or one other disease of which I can't presently remember the name.
Secondly, sometimes when a person is on synthetic thyroid hormone, there is a problem with impaired conversion from T4 to T3 resulting in ok TSH results but remaining symptoms. This MAY be addressed by supplementing with selenium but that's kind of a crap shoot. This is where the natural dessicated thyroid products usually come into play and most likely why the majority of people on this thread seem to be on some form of them.
Regarding post-partum thyroiditis, I believe the "cut off" is 2 years post-partum. I was also reading recently that thyroid antibodies are usually found in this instance (as well as Hashimoto's, to be clear). The most common time for this issue to be found is approximately 6 months post-partum.
Levels should be tested at least monthly once pregnant to be certain that they are *optimal*. Optimal is particularly important in pregnancy, as even slightly lower levels of thyroid hormone *can* cause problems.
That's all I can tell you. I hope it's helpful.
eta: And I'm sorry for the diagnosis and symptoms.
I hope you find a doctor who will be helpful.