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Tips for my family during *my* 72 hour eeg

post #1 of 10
Thread Starter 
They say I can't shower or anything, which will be great for my OCD . They say it has a battery backup but that the battery only works for about an hour so I pretty much have to be hooked up to an outlet.

How am I going to explain this to my kids? How do I keep this from making them anxious? And then how do I keep them from ripping off the sensors and trying to wrestle with me and stuff? And how do I help dw out with the kids?

I almost asked them to admit me into the hospital instead. But I think that might be worse for the kids. Oh, I don't know. Anyone ever managed this?
post #2 of 10
I have no clue - the hospital does sound easier on you but like you said might be worse for the kids. How old are the kiddos again? We do social stories for *everything* in our house so that's the first thing that comes to mind. Draw a picture of a mommy with wires poking out of her head hehe.

GOOD LUCK!
post #3 of 10
Make their own head gear hook ups like yours. Use yarn or some other stiff string, tape them on their heads with a little bit of aluminum foil around the tip, make and connect to a little box (maybe mac and cheese box) as the receiver. Have them try to keep them on, maybe a contest to understand that being still keeps them attached. Make a belt to hold the box...

If you make it fun, I imagine they'll get caught up in the pretend play. Not sure why you are having it done clinically, but a simple explanation about how our nerves help us to be awake or sleepy or weak/tired, could cover it generally.


HTH, Pat
post #4 of 10
Thread Starter 
Thanks to both of you for the good ideas, and for the wishes of good luck.

In answer to the questions, my kids are two (almost two and a half) and three (three and four months), both developmentally a little on the younger side though both are super ALERT. Clinical reason for the EEG is verification of (I am assuming subclinical) seizures and to get more information about the origin and pattern of seizures. I already had abnormal sleep study followed by abnormal standard EEG.

For what it is worth, my ds has had an EEG before, but it was some time back and I'm not sure whether he'd have more than a vague memory of it. Neither kid has had a 72 hour EEG.


Edited to add: My kids are pretty accustomed to medical stuff because I have type I diabetes and my ds also had a lot of medical needs in his first year and a half of life. They like to help me prime my insulin pump and stuff LOL. But still, mommy having to be hooked up to an outlet for several days is just weird.
post #5 of 10
Oh, and get a 50 ft extension cord!


Best wishes,
Pat
post #6 of 10
Yea I'm voting for the extension cord as well. Definitely make it a fun event, play is awesome for working through any anxieties that the kids may have from it. I'm guessing by the end of day 1 they'll have acclimated to it.
post #7 of 10
id be admitted :/ but thats just me
post #8 of 10
Thread Starter 
LOL

Thanks ya'll. Oh, and an extension cord...never would have thought of that!
post #9 of 10
My dh just had a 5-day, but it was in-patient. GL!
post #10 of 10
Quote:
Originally Posted by Sierra View Post
LOL

Thanks ya'll. Oh, and an extension cord...never would have thought of that!

Hook the kids up with a pretend one too. You all will be a tangled, silly mess. Like "Twister".

Maybe "practice" in advance, so it all becomes a game. Then they can play with their imaginations with it. Hook up dolls, trucks, stuffed animals, books, trains to "EEGs".


Pat
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