Originally Posted by irangel
We're working to get approval for Dakota's 3rd full season of Synagis. She was denied off the bat due to age (2.5yrs) but we're appealing. She has significant lung damage, is oxygen dependent, requires a vibrating vest, breathing treatments q4hrs and even the simple cold puts her in the hospital. I am hopeful, based on what the pulmo has said, that we'll be approved but still worried we may not be. It's great to hear others have fought and won!
Last year we were denied because of the age... They didnt even look at the medical problems. Just automatically said he is too old.. But he had trach, vent oxygen, IPV, etc.. The year prior to that he did not have his trach and stuff but they denied him because he "should be off of the oxygen by now according to his age blah blah blah".. Mind you, he was still on oxygen and in the hospital. He is now 3.5 and this will be his 4th year if we get it. He still has his trach, vent, oxygen and stuff
It just makes no sense that they wont even look at the medical reasons .. I guess they just think most parents wont even fight it.. or at least hope they wont.