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EI Services Slashed  

post #1 of 12
Thread Starter 
I'm not sure if this is the right place to post this . . . maybe it should go under Special Needs in Parenting. THere's no political action per se, that I know of, though I intend to write at least one letter to the Early Intervention section of the Health Dept. of my city.

My son is getting Early Intervention services, and just recently 38 centers providing such services were closed city-wide. The budget can't support them. I've heard it has to do with the federal lack of aid to the states, but am not sure. I just wanted to post here because I am so upset and because it is such a huge, sweeping, and harmful cut in services. The center ds was going to is closing and his last day is Friday. Our center alone closing means that about 40 families can't get their services there. We were very lucky and got another spot for him in another school, not too far away. But a lot of those other families aren't as lucky. They are really having to scramble. I hope that none of them have to go without services at all but our coordinator said that a few of them will. Or will get them home-based which is better than nothing but for some kids (my son is definitely one of these) it's the socialization that really mattered. I can't express enough what a difference these services have made to us and having them free, accessible, and so comprehensive has made an enormous contribution to our son's development and social and emotional well-being. I just felt like getting the word out there about this. I know, there just isn't enough money and they have to cut the budget somewhere, it just seems obvious to me that cutting it here is only going to mean spending more on down the line. When kids are older and their developmenal delays are learning disabilities and are are much harder (and expensive) to deal with.
post #2 of 12
Yes, well, waging war on other countries and giving ludicrously huge tax cuts to the wealthy and to corporations are FAR more important than the needs of a bunch of children, right?



Maybe a resident billionaire will donate some of his/her $8-plus million tax cut to special needs. You know - a thousand points of light and all that. :
post #3 of 12
Right. Leave no child behind, except for, hey, well, those over there and a few over that way ...



Aren't you in NYC? Who should I write to? I'm ready ...
post #4 of 12
*sigh*

It's happening everywhere. Isn't it something like 42 of the 50 states are bankrupt?

Here in IL our former gov, George Ryan, slashed EI over 2 yrs ago. We were at Easter Seals getting services..........the halls went silent. All those kids who needed the hand up - if you did not have a specific diagnosis you were sunk..........I was never so glad (!) for Duncan's down syndrome because we did not have to "prove" disability.


The states and, more importantly, the fed gov't are deeply in the red.............it is going to hurt a helluva lot more before it gets better. Especially with all the borrowing to spend in Iraq.........my god I cannot stand the thought of the debt we are leaving our children and the price we pay today (cuts to social programs).



El
post #5 of 12
My goodness! I didn't know about this. We are supposed to be having our son evaluated next week. Well, actually it was supposed to be today, but they called and asked to change the evaluation date.
We are having in-home services, but that might change if we need to go further with EI.

I hope everything turns out well for you and your son.

It makes me sick to know that the gov't would cut EI.
post #6 of 12
Thread Starter 
Hey, thanks for all the replies!

Merpk, I am in NYC and I will find out exactly who to write to and let you know.

It's true, it's hard to stomach the tax cuts that happened this year in light of this sort of thing.

Like I said, we are one of the lucky families. Phew. But thanks for good wishes. I wonder though what cuts are on down the road for public schools and the like, for our son.
post #7 of 12
Seems like I got something in the mail not too long ago saying that ECI service recipients here are going to have to start paying a co-pay. IMO that's not much better than closing down facilitites because so many of those that need it most are the least able to support that extra weekly expense.
post #8 of 12
amnesiac,

I work for ECI in TX. Yes, some ECi families will be paying a small copay. They don't start until 200% above the poverty level, and then are starting at $10 a month (I think). I actually have my training next week. I will correct if I am wrong. We will also be required to bill private insurance if the family has it, although there will be NO insurance copays/deductibles. There were also some slight eligibility requirement changes, basically some kids would no longer qualify that may or may not have been truly benefiting from services. Better overall than a toal program cut, as is happening elsewhere.

jempd,

in TX all services are natural environment based, meaning usually home or daycare. Statistically overall, there is no benefit to home or center based programs, although for specific kids, the socialization is a big part, and there seems to be a slight beneift to a combination program, although logistically, difficult to do. For ds, he entered PPCD at the public school when he was 3 after 3 years of ECI in 3 different programs, and he gained mostly in indiviidual areas like speech and fine motor while one on one, and in socalization and social skills once he started school.
post #9 of 12
I may not be 100% correct here but I'm pretty sure that according to IDEA (Individuals with Disabilities Education Act) it is illegal for anyone with a disability to be denied services. So, even if centers are closed EI is required to provide services for all children with disabilities. We are in DC and have hired an advocate/lawyer to fight for speech therapy for our son who has Down Syndrome. Also according to IDEA, families are entitled to free mediation/representation if they are not happy with services received. IDEA is federal legislation. The link below gives a lot of useful information. Hope you are able to get the help you need for your son! Brook

http://www.ideapractices.org/
post #10 of 12
Ilabrook,
That was my understanding in general as well. When I questioned it (before we knew what changes were going to be made and the possibitly of program cuts was still real), it was explained to me that IDEA in birth to 3 programs only guarantees visual and hearing services for children with VI or AI, and some services for children with specific medical conditions. The rest was up to state legislature. After 3, they were considered in the public school system, and educational rights were guaranteed.

Basically, IDEA and FAPE require not discriminating, so if it not offered to any children, they are not in technical violation. That is just my undersanding here though, it may be different elsewhere.
post #11 of 12
That's quite possible. DS has Down Syndrome which is generally considered to be one of "those medical conditions" you mentioned. I guess in some ways we're lucky! Brook
post #12 of 12
my son has Asperger's Syndrome. It would be a lot harder for us to get services than for someone whose disability is more evident.
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