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I need advice about a "support group"  

post #1 of 7
Thread Starter 
Ok, I am trying to make a really long story short. I had as child with health issues 4 years ago. He had a cleft lip and palate along with other anomalies. I attended a local "support group" at our local hospital. Well, my baby was failure to thrive. A particular LC took interest in our case and felt that I must have been neglecting or harming my child. She also worked for the county through WIC. She had me sign up for wic, had a health nurse come out, and basically got two different people to call CPS on us through backdoors, so that it was never her who did it. I found our it WAS all coming through her through one of my son's specialist who happened to be friends with this lady's(the LC) boss. So, of course I quite attending this support group. I EP'd for my son for 6 more months, btu was really scared my milk was making him not grow, so I put him on a medical grade formula(with Dr.'s reccomendation of course). NOw, had this lady never questioned my every move with my son and making me feel inferior in her doing, I'd have deffinately pumped longer. I was dying for him to nurse. He never did. Ended up tube fed, etc. He still is.

Anyway, I had another child this past year(she's almost 1 now!). I reluctantly went back to this group because I was having a hard time getting her latched on. I delivered at a hospital about 45 minutes away because we were worried that something might be wrong with her, given my son'd history. Well, she was healthy and still is. I did, however develop a heart block and was feeling pretty horid after delivery. I went to this public support group for help. I did not want them to weigh the baby and I refused to sign the new release they now have that they can share your info. with WIC, etc(something not in place when I had my son). THis particular LC did not used to be there most of the time. ANyway, she wasn't there at first and all was well, I was socializing with other mom's, etc. One LC who I LOVE, helped me latch my daughter, life was good. I just ignored the ignorant one when she came in. WEll, at the end, she asked to speak with me. She told me I was not welcome back. I was shocked. I told her I thought that was really immature and dumb. She just shrugged. I then went outside and cried to another mom who I knew from when my son was there(she had a new baby as well).

A hospital worker heard what happened and said "I know this is not what our hospital stands for" and got the LC's supervisor to meet with me in "guest relations" After I cried to her for a few minutes, she had the LC come in to "defend" herself. SHe looked through me the whole time and was totally emotionless while I am blubbering. I didn't get into the heart condition I had aquired but they stood by me not being allowed back. They said that because my husband threatened to sue, their legal dept. didnt' want me back. That, I almost had their "baby"(yes, the refer to their program as a "baby") taken away. Now, we did NOT sue. My husband DID say that in anger. He was applying to the police force at the time and lost his opertunity because of an open "neglect" case. It was all ruled out and closed, but it was done to us twice. Non the less, my thought is, they aren't allowed to kick me out of a public group are they? I mean, this seriously eats at me. I HATE what they did to me. I hate that this woman has made me second guess my mothering. I hate that I sat in that office and defended myself. She actually said they couldn't provide the type of "support" that "I" needed. Now, I am no different that any other mama. I do have a special needs child and THREE healthy ones. THis is the only group like this in my area.

Anyway, I want to do something that proves a point. What can I do? ANy ideas. I really want an apology but know I won't get that. I am tempted to go sit outside the door and nurse my healthy, fat, one year old.lol I know that's so dumb. We just overcame sooo many nursing hurdles that I could've used help with and it angers me that they turned me away because of misguided judgement. I mean, this woman totally overstepped her bounds. I know anyone can call CPS, but let them do their job and don't not believe them, the mom, the Dr.'s you spoke to(yes, I even allowed her to call my son's dr.'s at the time) and think your judgement is right over all of them. KWIM?

If nothing else, just send let me know if I make sence and my feelings are valid.

Thanks
post #2 of 7
I'm sorry you've been through so much with your baby and with this woman and social services. I think it all sounds extremely upsetting. I would write a letter detailing your experiences with her and send it to the "higher-ups" but I personally would not feel comfortable attending that group with her there. Perhaps you can contact the "good" lactation consultant and ask about smaller get-togethers/playdates and such in your area? Keep us posted on how things go for you and what you decide to do.
post #3 of 7
Thread Starter 
THe first time, when they called CPS, I did write a long letter detailing her faults. This time I did not. I basically got a denial back in wrinting from the hospital!lol (like, she never even touched your baby). I wish I could think of something creative to do to prove a point, but some people you will never get past I guess. I lesson i learned through this. She has her higher ups believing her.
post #4 of 7
Wow, what a terrible situation. I'm sorry you had to be treated that way, while only seeking help for yourself and your little one. Honestly, from your post it doesn't sound like there's much you can do to change this person, or even "make a point". She isn't worth the effort or your time, really. Can you find another support system? Or something else to focus on so this doesn't keep eating at you? I know, easier said than done... Just take care of yourself. Some people will always be cruel, unfortunately.
post #5 of 7
Thread Starter 
Yeah, I do attend LLL meetings. I don't stew over it all the time, but it does occasionally eat at me and I was just hoping to somehow prove my point. THere are other really nice LC's there and I really wish that they could see her for who she really is. It just really irks me. I guess I'll just try to forget about it. I deffinately don't need the group anymore and wouldn't attend if she did let me back in at this point. I only had gone back out of desperation of my new baby not nursing as well as I had hoped. I did also want the fellowship of other mom's, but I can find that outside the group.
post #6 of 7
I'm so sorry for what happened to you. Personally, I would want to stay as far away from those people as possible.

If you want an apology, I would write a basic letter explaining your issues to the president/CEO of the hospital, naming the LC and the fact she made repeated efforts to hurt your family through false CPS allegations. I would also complain about how this support group did not offer you support. I would recommend to the CEO that the LC be reprimanded in her record over what happened, and that you are moving on with your life, your family is great now, but you want an apology from her and/or the hospital for the negative experiences. I would also ask the CEO to have the support group's practices completely reviewed and recommend a change in leadership and structure of the group to ensure that all families are welcomed, that families with special needs children or struggling with feeding are not harassed or rejected, and that the group's spirit is one of compassion and helpfulness, not exclusion and suspicion. I would say that under the current leadership this group hurt your family and failed the hospital. I'd also say that it's important that the hospital consider how this support group's actions is out of alignment with its mission to be a caring organization. I would offer to meet with the CEO personally or take a phone call from him or her to discuss the specific problems and why this support group needs to be changed. (I would not get into your hurt feelings and too may of the details so much as let them know how this support group was discriminating and harassing to you.)

Then, I would see what kind of response you get. I would hope that you would get an apology on behalf of the hospital, and that the hospital would take some actions to review the group.

ETA: Now that I see you've written a letter and that this was probably a few years ago.... I think you should move on. There are some horrible people, and there are people who make horrible mistakes. I don't think it's your responsibility to educate or change this person, because I don't think it's possible, and you will be happier spending your time nurturing and loving your family. (It is up to you if you want to write another letter or not, but you will need to include facts, and if this is an issue that is old, more than 12 months ago, I don't think it will get the LC reprimanded, but it might get the group reviewed. You do need to go to the head of the hospital though, because only the person at the top can really make things happen and shake things up.... the others will all be in ass-covering mode.)

Then, I would never go to that group again. There is no reason to torture yourself and dwell on that awful experience. I would let the leadership of the hospital handle it.

It sounds like your family is now doing well, so kudos to you!
post #7 of 7
I find word of mouth is helpful. If anyone is giving birth in my town I tell them to demand a different IBCLC if they end up in the NICU for some reason. Almost anyone I've met who might end up there has been forewarned that she is a formula pushing, BFing mother degrading, potentital CPS mess in an IBCLC's clothing. ANd I'm sure it gets back to her...maybe now she'll change ehr tune.

FWIW, I still have a small bit of fantasy about going to see her with this baby and telling her all about how I have successfully BF'd #1 for 2 years, #2 exclusively to a full year with med issues, and then #3 (Assuming #3 is healthy). I have run into her supervisor once and told her as much and got a twinge of pleasure in knowing it got back to her that I succeeded despite her.
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