I suffer from a disease called Idiopathic Pulmonary Fibrosis. It is terminal, and there is no cure. There is currently legislation on the books to provide $15million in federal funding for the purpose of creating a pulmonary fibrosis registry and to expand and intensify PF research efforts.
It is called the Pulmonary Fibrosis Research Enhancement Act, and your help would be appreciated in increasing awareness. If you have a minute to send a note to your representative to urge them to support this act, that would be wonderful!
You can read more about it at the Coalition for Pulmonary Fibrosis on their advocacy page. The link should take you directly to it, but in case I messed it up somehow.
Thanks so much for any help, so very little is known or understood about this disease.
It is called the Pulmonary Fibrosis Research Enhancement Act, and your help would be appreciated in increasing awareness. If you have a minute to send a note to your representative to urge them to support this act, that would be wonderful!
You can read more about it at the Coalition for Pulmonary Fibrosis on their advocacy page. The link should take you directly to it, but in case I messed it up somehow.
Thanks so much for any help, so very little is known or understood about this disease.
