Gluten Allergy produce FEVER? - Page 2

[p1gg1e]

Originally Posted by JaneS

Tinkyada rice pasta (shapes, I haven't tried the linguine) and Mrs. Leper's corn pasta are great.

By far the best pasta!

[lil_miss_understood]

Sorry to jump in here, but DS1's allergy to dairy is IgE- should I be getting him an epipen too? :
I asked his allergist about it when ds was diagnosed and he told me that "it wasn't necessary" and "anaphylaxis isn't likely".:
After reading the responses to this thread, I'm starting to freak out again.

[nichole]

I think wheat gives me a sinus infection and possibly a fever.

[JaneS]

Originally Posted by JacquelineR

Sorry to jump in here, but DS1's allergy to dairy is IgE- should I be getting him an epipen too? :
I asked his allergist about it when ds was diagnosed and he told me that "it wasn't necessary" and "anaphylaxis isn't likely".:
After reading the responses to this thread, I'm starting to freak out again.

As far as I know Epipen is usually px'd based on symptoms... having anaphylactic symptoms like those discussed above. Or a fast appearing contact reaction, meaning since the body is so sensitive that it marshalls its forces so quickly to such a tiny amount not even ingested... that ana could be a concern.

What kind of symptoms has your DS had? That is at least equal to tests for a dx is my understanding. Did you do the skin prick or blood test? Does he have asthma?

Also dairy certainly can be ana, but it's the nuts (and now seeds) which historically have been more likely to cause an ana reaction. Most allergist will px an Epipen for nuts and seeds but not dairy IgE in the absence of a history of ana symptoms. But again, this is just my understanding. Every allergist practices differently.

Sorry to be so alarming! I'm usually not like this. DS just started kindergarten so I'm little jumpy maybe too!

[lil_miss_understood]

His symptoms have been many and varied over the last 9 years, including one incident as a baby where he was pale, lethargic and had shallow breathing. My mother was incredibly angry with me because I held him in my arms, crying and said "Don't you die on me." The nurse I spoke to on the phone told me he was "fine" and that I was being "an overconcerned mother".
Between then and now, I can't even list all of the symptoms he's had. He has asthma- which has miraculously disappeared since going df. He had flushing, anxiety, vomiting, bowel problems, excessive and sudden need to urinate, excessive sweating, excessive thirst... Until he was about 3, he would crane his neck forward like a chicken... They checked him for diabetes around that time because of his peeing/thirst symptoms and sweating.
Pain in legs/stomach, headache complaints.. I could seriously be here all night.
He was dx'd via blood test.

[Grantsmommy]

Wow, JacquelineR! It sounds like your son has a pretty strong rx to dairy. I am going to call the ND today and get his take on my ds' symptoms. I will clarify the IgE test results and what they mean in relation to IgE levels and ana. Maybe because we had blood tests done (as opposed to skin tests) the results are more reflective of the possibility of anaphylaxis. I'll let you all know what he says.

[JaneS]

Originally Posted by JacquelineR

His symptoms have been many and varied over the last 9 years, including one incident as a baby where he was pale, lethargic and had shallow breathing. My mother was incredibly angry with me because I held him in my arms, crying and said "Don't you die on me." The nurse I spoke to on the phone told me he was "fine" and that I was being "an overconcerned mother".

:

Yes, he needed an Epipen. And that nurse should be ashamed of herself, impaired breathing and lethargic is grounds for ambulance and she should know that! Whether you need an Epipen now, I cannot say. I assume he is still df. Any anaphylactic sx recently? See here for good descrip:

www.foodallergy.org/actionplan.pdf

Kids do grow out of it, more likely growing out of egg and dairy rather than nuts or seeds according to studies. Have you had a blood test recently? If it's low or negative some allergists trial in office first if there has been a hx of ana.

[Grantsmommy]

I didn't get to call today. I'll try tomorrow...

[changingseasons]

Originally Posted by JacquelineR

His symptoms have been many and varied over the last 9 years, including one incident as a baby where he was pale, lethargic and had shallow breathing. My mother was incredibly angry with me because I held him in my arms, crying and said "Don't you die on me." The nurse I spoke to on the phone told me he was "fine" and that I was being "an overconcerned mother".
Between then and now, I can't even list all of the symptoms he's had. He has asthma- which has miraculously disappeared since going df. He had flushing, anxiety, vomiting, bowel problems, excessive and sudden need to urinate, excessive sweating, excessive thirst... Until he was about 3, he would crane his neck forward like a chicken... They checked him for diabetes around that time because of his peeing/thirst symptoms and sweating.
Pain in legs/stomach, headache complaints.. I could seriously be here all night.
He was dx'd via blood test.

Ugh. That makes me very mad at your mom AND the nurse. That's so scary- I can't imagine what I would do in that situation.

[lil_miss_understood]

Originally Posted by JaneS

:

Yes, he needed an Epipen. And that nurse should be ashamed of herself, impaired breathing and lethargic is grounds for ambulance and she should know that! Whether you need an Epipen now, I cannot say. I assume he is still df. Any anaphylactic sx recently? See here for good descrip:

www.foodallergy.org/actionplan.pdf

Kids do grow out of it, more likely growing out of egg and dairy rather than nuts or seeds according to studies. Have you had a blood test recently? If it's low or negative some allergists trial in office first if there has been a hx of ana.

I am just recently realizing how lucky I am that he actually made it through infancy, since he was bottle fed a dairy-based formula.
He was only dx'd in April and has been df ever since. I'd nearly given up on ever finding anything out (I can't count how many doctors I had seen only to be brushed off as a "paranoid mom".) I was talking to another mom about ds1's behavioral problems and what we'd done to try to help and she gave me the phone number of a doctor who referred me to an allergist.
When he was regularly ingesting dairy, his "asthma" would act up on a regular basis- shortness of breath, wheezing, repetitive/hacking cough. His face flushes, he pees his pants because he can't make it to the bathroom quickly enough (not an immediate reaction- his results came back IgG to dairy as well- is that normal? To have both IgG and IgE to something, I mean, not peeing one's pants), he gets very thirsty and sweats a lot. He would vomit after eating pizza or anything else dairy- we limited how much of certain foods he could eat because we thought he was overeating because he liked it too much (and this is what several doctors I took him to see told me about this too). He regularly had diarrhea and complained nearly daily of having a sore stomach. I don't know how much dairy it takes to induce his symptoms and I don't really want to test it.
So, I guess yes, he has had ana sx recently... The gut and "asthma-like" symptoms, right?

[lil_miss_understood]

OP, sorry for hijacking your thread.
I wanted to mention that DS2 reacted to coconut, peanuts and strawberries through bm. One of his symptoms with coconut was a fever of (oddly enough) 102. The nurse I had doing home visits at the time to help assist with bfing said that's pretty common in a low-level allergic reaction, so it honestly doesn't surprise me to hear it from someone else, although you're only the 2nd person from whom I've heard it.
I apologize for getting sidetracked. When I read Jane's response, I kind of flipped because it made me think again that ds1 should have an Epipen and made me want to kick my allergist. I hope you'll understand and forgive me.

[Grantsmommy]

Of course I understand! I can learn from everyone's experiences, too. I hope you have found a way to help your kids feel better. Nothing is more frustrating then feeling confused about your child's health. I deal with that every day in my chiorpractic practice.

On a positive note...I found a recipe for bread made without eggs or gluten. I made it for the first tme yesterday and ds LOVED it! Yeah!: He couldn't believe I made it...he thought I bought it. He's so cute!

Dh gently reminded me that ds could have it a lot worse. I was feeling a little sorry for him that he has to deal with these food allergies. Dh said to quit buying into the drama and realize that he is healthy. I know this, but sometimes we mamas get caught up in it all, KWIM? Anyway, I feel grateful to at least know what is wrong and have the means to do something about it.

Please keep the conversation going...there is always more to learn.