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I Broke My Bladder: Inducing Interstitial Cystitis - Page 2

post #21 of 33
Thread Starter 
Thanks FF

KMK Mama,

Ugh, that's a long time. I can't believe you had 3 LO's while dealing with this!!

Actually I'm sorry for using the "remission" word b/c I dislike that term. It really wasn't what I was trying to get across since I believe that the body does things for a reason, just finding out why is the key. I did specific things which I think improved my body's ability to overcome it, it wasn't a mysterious spontaneously occuring "remission" which I think the current term is used as in mainstream medicine!

Whether I'm slipping back into a mineral deficiency or gut flora issue I'm not sure yet. I also didn't do this experiment scientifically, I didn't eat a "normal" amount of salicylates that did this to me. I overundulged on a whim and not sure exactly what that means! Maybe it will help others. I already think it's helped me understand my DS a bit more so I'm really glad it happened.
post #22 of 33
Thread Starter 
Also a mama dealing with this in her child has mentioned that salicylate intolerance also *leads* to food allergies in rat studies. I'm attempting to track down.
post #23 of 33
The Biochemistry of Human Nutrition

This one?

http://www.amazon.com/Biochemistry-H.../dp/0534515436
post #24 of 33
That's it.
post #25 of 33
So I'm not the only one lurking and going hunting for that book?
post #26 of 33
Thread Starter 
Failsafe and high amounts of sodium ascorbate and all is well! I'm tolerating average amounts of salicylates just fine. I'm increasing my bone broths as I definitely slipped in this lately (giving all of them to DS!) so maybe that is why I was vulnerable.
post #27 of 33
Thread Starter 
Continuing to piece together the IC puzzle...

Raw milk (of which I drank copious amounts of when I cured myself) contains MSM.

MSM is a form of sulfur that is aka DMSO 2. Also invented by Dr. Stanley Jacob of the DMSO Clinic in Oregon. Every IC patient knows what DMSO is... a horrible bladder installation that makes you smell like pickled garlic for 24 hours! But it has a very good success rate.

IC Network Interview with Dr. Stanley Jacob:
http://www.ic-network.com/guestlectu...ranscript.html

Now here is the lightbulb moment relating to previous post on this thread...

The PST pathway...sulfation... that processes salicylates, needs sulfur to work.
http://www.enzymestuff.com/epsomsalts.htm

"The" book on MSM by Dr. Jacob here:
The Miracle of MSM
http://www.newtreatments.org/loadlocal.php?hid=850

MSM or DMSO 2 is an over the counter nutritional supplement that doesn't smell. Dr. Stacey Childs of Univ. of Alabama did a pilot study on IC patients using MSM only as a bladder installation. I have not yet seen oral dosing but considering how safe MSM is (sulfur is one of the top minerals required by the body) all this is making such sense to me.

Any IC sufferers try it?
post #28 of 33
Thread Starter 
Quote:
Originally Posted by JaneS View Post
Failsafe and high amounts of sodium ascorbate and all is well! I'm tolerating average amounts of salicylates just fine. I'm increasing my bone broths as I definitely slipped in this lately (giving all of them to DS!) so maybe that is why I was vulnerable.
Yeah, well, thank you hindsight: guess what other consumption of mine had slipped since DS was dairy free for a while... raw milk.

I'm making up for it with him though, he's currently getting stuffed to the gills with raw milk and eggs. He is sleeping an incredible 11.5 hours/night so something's working right. Hopefully his food chemical intolerances will quickly be resolved!
post #29 of 33
Quote:
Originally Posted by JaneS View Post
I'm making up for it with him though, he's currently getting stuffed to the gills with raw milk and eggs. He is sleeping an incredible 11.5 hours/night so something's working right. Hopefully his food chemical intolerances will quickly be resolved!
Woo-hoo! Some mercury folks do best on a low-sulfur diet (I wonder if their sulfation pathway is going too fast) but we (me and the kids) seem to do best with a high-sulfur diet, and I've always been grateful that we've never had an issue with eggs; we eat a ton. Though I'm thinking of rotating with them for my husband, I'm suspecting he's become sensitive to them. But yay! on good sleep! :
post #30 of 33
Bumping. Amazing what salicylates can do to a body.


Pat
post #31 of 33
Thread Starter 
Quote:
Originally Posted by WuWei View Post
Bumping. Amazing what salicylates can do to a body.


Pat

Or lack of molybdenum/sulfur. We tested him for molyb and he is low so we are supplementing that for now. May try MSM. Zinc too which I cannot believe given his amazing diet. Have yet to do copper.
post #32 of 33
Quote:
Originally Posted by JaneS View Post
Or lack of molybdenum/sulfur. We tested him for molyb and he is low so we are supplementing that for now. May try MSM. Zinc too which I cannot believe given his amazing diet. Have yet to do copper.
Have I ever mentioned how much supplemental zinc my kids are getting? 25-30mg/day, been doing this for quite a while now, and DD still seems to have subtle low zinc symptoms, and when DS got 50 ant bites in the spring, within a week he started mouthing things. I think the extra detoxification work (Texas -> fire ants -> toxin to get rid of) pushed him from borderline low to low.

Can I ask, did you use the taste product in your siggy? I was just reading the link, I've read of that idea before, it's intriguing.
post #33 of 33
Thread Starter 
Update for the record: DS's zinc blood level was fine but copper level was twice as much (meaning he needs more zinc).

Magnesium and other supplements are certainly helping him tolerate some low-to-moderate sal foods. We had been doing mag. by mouth for a long time and since we've moved to baths (transdermal) this year, I can see that is a much better method of delivery. I had already been taking much more mag. than he did (I applied oil to skin in addition to baths but his sensitive skin couldn't tolerate magnesium oil or gel). It certainly appears to boost my salicylate tolerance the more I could saturate my body. Although my tolerance at this point is certainly not unlimited. I can feel bladder twinges whenever I overdo it (Applegate Farms pepperoni!)

So I'm certainly convinced at this point interstitial cystitis is salicylate intolerance (and the presence of nutrient deficiencies so the body cannot properly process salicylates).

So I'm Bumping This Thread:
Anyone with interstitial cystitis try the FAILSAFE diet?
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