I did a bit of poking around on the internet on this already. I just wanted to hear your understanding of this issue and any personal experiences you had.
My first dd was just dx with Celiac Disease at age 7. I was unable to breastfeed her (severe latch problems and breast aversion on her part) but I pumped milk for her for 5.5 months and did not have to supplement until after I stopped pumping. I noticed that her stools on breastmilk were explosive and full of bubbles when they first came out, green and slimy. I did have an oversupply problem that took while to get tamed, but she was such an unhappy, gassy baby. My bfing friends said her poops were not normal at all and something was going on. When I stopped pumping she went to Good Start formula and did much better on it. I did introduce food earlier but it was limited to rice cereal and fruits/veggies until about 8 months. At that time she started to get baby crackers, and sampled table foods but mostly was on formula. At 15 months I quit the formula and she went to cow's milk, started to lose weight terribly, and it was suggested I give her Instant Breakfast. She pretty much lived on that stuff for years and did not eat well at all through her preschool years. (IB by the way is gluten free but she also ate a lot of mac and cheese and a few select other things-- was very picky and hard to feed.)
Looking back I feel she's had CD her whole life. She has classic symptoms except it took awhile to get diagnosed. She has had sleep problems, mood problems, was always super thin and looked a bit unhealthy, and then she broke her upper arm in a simple fall which pointed to calcium deficiency. When she started to miss school because of tummy aches I took her to see my other dd's GI and my dd was immediately dx with CD and it was later confirmed through a biopsy of her intestines. She's doing way better on her GF diet!
Anyway, I can't help but to wonder about the early days, and how maybe she was getting gluten in my milk. I wonder if this is why she developed such an aversion to my breast or why she was so unhappy until she went to formula. Suddenly she started to gain weight and do better.
I have seen articles that stay bfing helps to protect against gluten and that bfing will delay the onset of Celiac Disease. This is not what I saw in my own child though.
I guess I am just looking for answers. It was so emotionally hard to not be able to bf my baby. If I had an answer it might be easier to deal with.
BTW my dd1 with the Celiac does not have any food allergies at all. She's been tested and observed. My other dd could not have bf if I wanted her to. She latched okay but had some severe health problems and could not nurse and ended up with a feeding tube, not even a bottle.
Anyway, just wanting some input. Thanks!
My first dd was just dx with Celiac Disease at age 7. I was unable to breastfeed her (severe latch problems and breast aversion on her part) but I pumped milk for her for 5.5 months and did not have to supplement until after I stopped pumping. I noticed that her stools on breastmilk were explosive and full of bubbles when they first came out, green and slimy. I did have an oversupply problem that took while to get tamed, but she was such an unhappy, gassy baby. My bfing friends said her poops were not normal at all and something was going on. When I stopped pumping she went to Good Start formula and did much better on it. I did introduce food earlier but it was limited to rice cereal and fruits/veggies until about 8 months. At that time she started to get baby crackers, and sampled table foods but mostly was on formula. At 15 months I quit the formula and she went to cow's milk, started to lose weight terribly, and it was suggested I give her Instant Breakfast. She pretty much lived on that stuff for years and did not eat well at all through her preschool years. (IB by the way is gluten free but she also ate a lot of mac and cheese and a few select other things-- was very picky and hard to feed.)
Looking back I feel she's had CD her whole life. She has classic symptoms except it took awhile to get diagnosed. She has had sleep problems, mood problems, was always super thin and looked a bit unhealthy, and then she broke her upper arm in a simple fall which pointed to calcium deficiency. When she started to miss school because of tummy aches I took her to see my other dd's GI and my dd was immediately dx with CD and it was later confirmed through a biopsy of her intestines. She's doing way better on her GF diet!
Anyway, I can't help but to wonder about the early days, and how maybe she was getting gluten in my milk. I wonder if this is why she developed such an aversion to my breast or why she was so unhappy until she went to formula. Suddenly she started to gain weight and do better.
I have seen articles that stay bfing helps to protect against gluten and that bfing will delay the onset of Celiac Disease. This is not what I saw in my own child though.
I guess I am just looking for answers. It was so emotionally hard to not be able to bf my baby. If I had an answer it might be easier to deal with.BTW my dd1 with the Celiac does not have any food allergies at all. She's been tested and observed. My other dd could not have bf if I wanted her to. She latched okay but had some severe health problems and could not nurse and ended up with a feeding tube, not even a bottle.
Anyway, just wanting some input. Thanks!
