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post #41 of 80
This is how I felt with my oldest son. We ate TF the whole time and yet we were kind of sickly-- him more so than me. After experimenting with a lot of things (very long story short), the thing that cured him (and me too) was the GAPS diet and lifestyle protocol, from the book Gut and Psychology Syndrome. It is very difficult to follow, very strict, and yes, it is grain-free. You say that she wouldn't eat anything (practically) if it weren't for grains-- this was my son, literally. This is one of the symptoms that you have GAPS (Gut and Psychology Syndrome)! This is a reason TO do the diet, not a good reason NOT to. GAPS kids crave carbs, starches and sweets (more so than other kids) and will reject all or almost all forms of protein and most or all veggies.

So anyway, we did the diet for about a year or so, and "graduated" from it, and now we are not even eating very TF anymore. (So sue me, lol!) But we are cured so we don't have to. I can let both boys have a little candy or other form of refined sugar every day-- we could NEVER do that before, they would get so sick and have painful symptoms immediately-- and now they are fine with it, in moderation, just like other normal kids. Furthermore, my oldest son is growing so much faster now, and his cheeks and body have filled out (he used to be really skinny-- on a good TF diet.) He has barely gotten sick at all (a sniffle or two?) since he was cured which has been some 8 or so months now. I still have him on the probiotic supplement and I still have to limit/monitor his carb intake-- he would still overeat on carbs if he could-- but he does eat protein now, so that helps. If your child follows the GAPs diet, it will be hard at first, but she will start eating more things as her gut heals.

My son almost lived off of "banana smoothies" during the diet, especially at first. (Bananas, raw egg yolk, coconut oil.) At first, it was pretty much the only thing on the diet I could get him to eat. But even with his diet restricted to that, he THRIVED. It was real food for him, that allowed his gut to finally heal.

Well, anyway, good luck whatever you do. I know how tough and frustrating it is.
post #42 of 80
Thread Starter 
Quote:
Originally Posted by LionTigerBear View Post
This is how I felt with my oldest son. We ate TF the whole time and yet we were kind of sickly-- him more so than me. After experimenting with a lot of things (very long story short), the thing that cured him (and me too) was the GAPS diet and lifestyle protocol, from the book Gut and Psychology Syndrome. It is very difficult to follow, very strict, and yes, it is grain-free. You say that she wouldn't eat anything (practically) if it weren't for grains-- this was my son, literally. This is one of the symptoms that you have GAPS (Gut and Psychology Syndrome)! This is a reason TO do the diet, not a good reason NOT to. GAPS kids crave carbs, starches and sweets (more so than other kids) and will reject all or almost all forms of protein and most or all veggies.

So anyway, we did the diet for about a year or so, and "graduated" from it, and now we are not even eating very TF anymore. (So sue me, lol!) But we are cured so we don't have to. I can let both boys have a little candy or other form of refined sugar every day-- we could NEVER do that before, they would get so sick and have painful symptoms immediately-- and now they are fine with it, in moderation, just like other normal kids. Furthermore, my oldest son is growing so much faster now, and his cheeks and body have filled out (he used to be really skinny-- on a good TF diet.) He has barely gotten sick at all (a sniffle or two?) since he was cured which has been some 8 or so months now. I still have him on the probiotic supplement and I still have to limit/monitor his carb intake-- he would still overeat on carbs if he could-- but he does eat protein now, so that helps. If your child follows the GAPs diet, it will be hard at first, but she will start eating more things as her gut heals.
It's not a matter of her only wanting to eat grains, it's a matter of her not having other foods to eat due to her food intolerances and food chemical sensitivity. She can't have bananas or eggs or coconut oil. I don't feel that GAPS would do anything for either of us, anyway, as I did a candida diet that was stricter than GAPS for half a year and it didn't help me, and I didn't notice any difference in her when we were doing it, either (she was almost exclusively BF at the time).
post #43 of 80
it just sucks, doesn't it. when you were on failsafe, did you stop all the supplements? we do better without supplements, tho I keep trying cod liver oil, and now the clo hi butter mix. and now, after a month of solid poo, we have dairrhea again (i say we, but i mean the kids, even "healthy" unvaxxed bf'ed homebirth babe). and my mind is spinning as if we never had that month of solid poo. (i have a plan, tho, but will report back only if it works.)

even though you've lived in three places, there still might be something environmental...but if there is, i think the challenge is to reduce your sensitivity to it, as replacing all furniture, clothes, etc, is probably not possible (we are in the midst of replacing our mold-filled kitchen, and it is awful).

have you ever tried any flower remedies? when i started them a few months ago, i noticed that each weekend was more pleasant than the previous. it's an energy medicine, and i've read of a few cases of autism being healed when a generational energy shift happened. (i'm leaving no stone unturned, as you can probably tell.)

just thinking out loud....and hoping if we keep talking about it, we can heal it!

mehera
post #44 of 80
Quote:
Originally Posted by newcastlemama View Post
If it makes you feel better I don't think I could have healed my issues on TF alone. I had to go to a clinic and take lots of tests and supplements. (I still take supplements)

I think what gets frustrating is that there is a message if you can just try hard enough then you will have perfect health. I am just not sure if that is possible..I am settling for being generally well because I also want to have a life and give my children childhood memories of me doing things besides cooking! KWIM? And wellness is much more than just what we do/don't eat.
Quote:
Originally Posted by caedmyn View Post
Yeah I think that's my biggest frustration. I went into this thinking that if I ate healthy I would have nice healthy babies and not have health problems myself, and that certainly didn't happen. And then when problems showed up I thought if I just healed the gut and fixed nutritional deficiencies etc etc etc everything would be fixed again, and that didn't happen, either.

I don't eat as well as I should anymore, because at this point I have trouble believing that it really matters whether I'm 100% TF or 90% TF. And at this point, I would rather be able to enjoy eating food with friends or at restaurants, and occasionally letting DD have tortilla chips or some other food she really enjoys that she doesn't react to, than to continually stress over trying to "fix" things that really may not be fixable for us. We're not any worse off than we were when we were trying real hard to be 100% TF, and I'm definitely less stressed which I'm sure is better for all of us. I would rather enjoy a few treats now and then than continually try to make myself eat and like things I don't really like just because they're better for me.
We're not 100% TF anymore and I do take supplements. I take the supplements not because of the 10% of so non-TF foods, but because I need them anyway. My case isn't like Jen's who definitely needed supplements, but it is not clear in the face of severe deficiencies just how much food you would require. I would rather get through it quicker with the help of a plastic bottle. :

In my case as well, the obsession over being diligent and perfect is probably worse for me overall than being a bit lax. Obsession spills into every corner of my life and it's just not good. The B vitamin requirement alone for all of the obsession stress would require a whole lot of liver.

I don't have any help either, just commiseration.

Amanda
post #45 of 80
I agree with the suggestion to look into flower essences and other forms of energy medicine-- also in that vein, acupuncture is supposed to be very good as a modality for curing allergies. Are you already doing chiropractic? Chiropractic and flower essences are things we used that made a big difference.
post #46 of 80
You know, I completely agree with the suggestion that it could be environmental. We used to live in a rental that had ongoing mold issues and since moving we feel *so* much better! Like, I don't feel achy all day anymore. I can drink kefir without getting mild sinus headaches...
post #47 of 80
Quote:
Originally Posted by Leilalu View Post
You know, I completely agree with the suggestion that it could be environmental. We used to live in a rental that had ongoing mold issues and since moving we feel *so* much better! Like, I don't feel achy all day anymore. I can drink kefir without getting mild sinus headaches...
This is WEIRD that you mention this. When we built a brand new house, it was backed up to a greenbelt which I'm sure was swampy. DH had headaches for like 2years. Everytime we'd go to my mom's for holidays just a couple miles down the road and sleep over, he was fine. Then we moved out of state and back to rent an old house, same thing. We bought a new house again, no big trees in sight and he's fine. I really think we had a mold thing before.
post #48 of 80
Thread Starter 
Quote:
Originally Posted by nicolena View Post
it just sucks, doesn't it. when you were on failsafe, did you stop all the supplements? we do better without supplements, tho I keep trying cod liver oil, and now the clo hi butter mix. and now, after a month of solid poo, we have dairrhea again (i say we, but i mean the kids, even "healthy" unvaxxed bf'ed homebirth babe). and my mind is spinning as if we never had that month of solid poo. (i have a plan, tho, but will report back only if it works.)

even though you've lived in three places, there still might be something environmental...but if there is, i think the challenge is to reduce your sensitivity to it, as replacing all furniture, clothes, etc, is probably not possible (we are in the midst of replacing our mold-filled kitchen, and it is awful).

have you ever tried any flower remedies? when i started them a few months ago, i noticed that each weekend was more pleasant than the previous. it's an energy medicine, and i've read of a few cases of autism being healed when a generational energy shift happened. (i'm leaving no stone unturned, as you can probably tell.)

just thinking out loud....and hoping if we keep talking about it, we can heal it!

mehera
I haven't tried flower remedies. I'll send you a PM about that.

We did stop supplements initially on Failsafe. I can't really tell that supplements affect us one way or another, with the exception of certain probiotics which definitely help, and folate & some forms of B12 that definitely increase DD's amine tolerance. DD doesn't tolerate CLO, I think it's the rosemary extract in it...either that or it's really super high in amines. I just give her vitamin A from fish oil in softgels and vitamin D3 in softgels instead and she tolerates those fine.
post #49 of 80
Thread Starter 
Quote:
Originally Posted by LionTigerBear View Post
I agree with the suggestion to look into flower essences and other forms of energy medicine-- also in that vein, acupuncture is supposed to be very good as a modality for curing allergies. Are you already doing chiropractic? Chiropractic and flower essences are things we used that made a big difference.
We have tried chiropractic for a few months and it didn't help. DH is adamantly opposed to consulting any sort of practitioner, and we can't afford it anyway, so that's not an option at this point.
post #50 of 80
Thread Starter 
Quote:
Originally Posted by Gale Force View Post
We're not 100% TF anymore and I do take supplements. I take the supplements not because of the 10% of so non-TF foods, but because I need them anyway. My case isn't like Jen's who definitely needed supplements, but it is not clear in the face of severe deficiencies just how much food you would require. I would rather get through it quicker with the help of a plastic bottle. :

In my case as well, the obsession over being diligent and perfect is probably worse for me overall than being a bit lax. Obsession spills into every corner of my life and it's just not good. The B vitamin requirement alone for all of the obsession stress would require a whole lot of liver.
Yeah, I think for me obsessing over food is worse than being more laid back and eating some yummy junk occasionally. At one point I tried to fix everything through food, but it's impossible for DD and herbs give me reflux, so I gave up and started using supplements. They're a lot cheaper, too, and I'm not convinced that they're inherently bad or harmful, so we take 'em.
post #51 of 80
I don't have any advice to offer -- everything I would have said has already been covered. I just wanted to send and : to you.

I think most of us have fairly significant healing to do in one way or another and sometimes it's just plain hard. You're a great mama and you're doing the best you can. Try not to beat yourself up over it (which, if you're anything like me, is also hard!)
post #52 of 80
Quote:
Originally Posted by WildIris View Post
Have you thought about going grain free? That made a huge difference for my health. I am mostly TF but I don't tolerate grains well at all, and I think it causes my body to not absorb nutrients. It could be that there's something keeping your DD from absorbing the nutrients in the food. Grains, even soaked, just aren't good for some people.
I have found that I feel so much better going grain free as well.
post #53 of 80
No concrete suggestions from me, just commiseration. I feel your frustration, only our issue is with baby teeth, not frequent illness. It's incredibly disheartening to search so hard and in so many directions for answers to these things, and not find them.

Not to be too nosy, but why is your husband opposed to consulting anyone? Some alternative practitioners aren't worth the money, but some are, and if there's any way you could move in the direction of finding one experienced enough to help your daughter, like saving up money or whatever it takes, it seems to me like a logical next step. I think in your position I'd want to find a practitioner of Ayurveda, TCM and/or classical homeopathy that I felt comfortable with, and see if they could help unravel this puzzle.

How do you determine what things your daughter doesn't tolerate? I mean, what are her symptoms of food or supplement intolerance?
post #54 of 80
Thread Starter 
Quote:
Originally Posted by AJP View Post
Not to be too nosy, but why is your husband opposed to consulting anyone? Some alternative practitioners aren't worth the money, but some are, and if there's any way you could move in the direction of finding one experienced enough to help your daughter, like saving up money or whatever it takes, it seems to me like a logical next step. I think in your position I'd want to find a practitioner of Ayurveda, TCM and/or classical homeopathy that I felt comfortable with, and see if they could help unravel this puzzle.
Partially because he doesn't believe in them, partially because he doesn't think DD has problems, and partially because he says I won't do everything they say anyway (which is probably true to a point, I'm not going to take a bunch of herbs knowing how they negatively affect us, or become a vegetarian, no matter what some practitioner says).

Quote:
How do you determine what things your daughter doesn't tolerate? I mean, what are her symptoms of food or supplement intolerance?
She reacts to dairy with eczema and to all the other foods (eggs, nuts, wheat, oats) with diarrhea & stomach cramps or very mushy stools. She reacts to food chemicals with eczema &/or hyperactivity (amines) and by wetting her pants and getting really pink cheeks (salicylates).
post #55 of 80
My DH used to not believe. Then I had DD3, stress happened, too little B vits I guess and way too much fruit (healthy and easy, right? ah, salicylates) and frozen NT meals and lots of slowcooker food (amines, maybe lead) = ADHD hell. Now he believes.

It still pisses me off how he just refused to see it. Actually, I'm not mad anymore; I'm just amazed. And my family still thinks my kids are just incredibly spoiled, though my parents are trying really hard to believe/understand. My dad read Healing the New Childhood Epidemics by K Bock, and that helped him.

I PM'd you about the flower remedies, caedmyn.
post #56 of 80
Thread Starter 
Quote:
Originally Posted by nicolena View Post
My DH used to not believe. Then I had DD3, stress happened, too little B vits I guess and way too much fruit (healthy and easy, right? ah, salicylates) and frozen NT meals and lots of slowcooker food (amines, maybe lead) = ADHD hell. Now he believes.

It still pisses me off how he just refused to see it. Actually, I'm not mad anymore; I'm just amazed.
Yeah...I have the mixed blessing of having a child who doesn't generally have really obvious or dramatic reactions, so it's hard to convince other people. Other than her reaction to oats, which is frequent diarrhea accidents for two days afterwards, DD's reactions take a long time to show up and are mostly easy to miss unless you're looking for them. like a normally not-real-active kid becoming somewhat hyper, but still not any more active than, say, the average boy. And DH doesn't consider mild, non-itchy eczema a reason to avoid anything. I just hope if the new baby has any food intolerances or food chemical sensitivities that he/she has obvious reactions so DH can see them.
post #57 of 80
Quote:
Originally Posted by 425lisamarie View Post
This is WEIRD that you mention this. When we built a brand new house, it was backed up to a greenbelt which I'm sure was swampy. DH had headaches for like 2years. Everytime we'd go to my mom's for holidays just a couple miles down the road and sleep over, he was fine. Then we moved out of state and back to rent an old house, same thing. We bought a new house again, no big trees in sight and he's fine. I really think we had a mold thing before.
Oh yeah. I was skeptical too at first, with dh. but then it all really made sense. I know the house we live in now is terribly old, but there are so many types of mold and bacteria- some of them really deadly and some not so much. Whatever this house may have isn't that toxic apparently. Old houses can be weird
post #58 of 80
Valerie,
I really feel for you. I know you've been on a journey to heal your dd almost as long as I've been trying to find healing for mine. I truly believe TF is fantastic, but can seem worthless if the body can't absorb the nutrients due to multiple environmental toxins, extensive vitamin/mineral deficiencies, or other factors. Of course, not everyone has these issues. I know that you were considering toxicity issues with your dd. If I recall correctly your dd had a "bad" reaction to NCD when you gave her some. Did you determine whether this was detox or a product which was not appropriate for her? What was your conclusion regarding whether or not she had significant toxicities?

I know your story only a bit, but it seems you have done nearly everything from a nutritional standpoint that you could have done with her multiple sensitivities. I just mention toxins again because a TF diet did almost nothing for us until we started to chelate and detox. Then the healing really began, but did take a while esp. for dd. I have seen marvelous changes in her since we finally found a way she could tolerate to remove the mercury. Although I've had her religiously on HVBO/HVCLO/bone broth/all TF including lots of raw fermented dairy daily since fall of '05, I did not see her teeth begin to space out until several months after we started removing mercury which was around Jan '08 (right when she turned 4). I want to stop buying the HVBO since it is so costly, but I've decided to keep going until she turns 6 since the spacing just continues.

If your new babe doesn't have health issues it may show that perhaps you've been able to improve your own nutritional deficiencies although you have not seen any improvements that you can detect in yourself. Everything is so individual that it can make finding the solutions for kids like ours beyond difficult. You've done so much for your daughter.
post #59 of 80
Thread Starter 
Quote:
Originally Posted by moneca View Post
Valerie,
I really feel for you. I know you've been on a journey to heal your dd almost as long as I've been trying to find healing for mine. I truly believe TF is fantastic, but can seem worthless if the body can't absorb the nutrients due to multiple environmental toxins, extensive vitamin/mineral deficiencies, or other factors. Of course, not everyone has these issues. I know that you were considering toxicity issues with your dd. If I recall correctly your dd had a "bad" reaction to NCD when you gave her some. Did you determine whether this was detox or a product which was not appropriate for her? What was your conclusion regarding whether or not she had significant toxicities?
I wouldn't say she had a bad reaction, she just started wetting her pants a lot. I pretty much started her at the max dose for her age so I may just have done too much too soon. I still haven't tried it again. I have it sitting out on the counter intending to try it but she keeps getting sick and I don't want to start it when she's sick.

I doubt I'll ever get her tested for mercury levels unless big problems come up. I wouldn't chelate her anyway, not for things that, while annoying, really don't affect her quality of life at this point.

I did buy one bottle of BO for DD when she was around 15 months old and gave it to her pretty much every day until it was gone (6 months?) but that didn't do any good, either. I will eventually try more cranial sacral therapy for her teeth, and I hope that helps or she's going to need some serious orthodontic work.
post #60 of 80
Quote:
Originally Posted by caedmyn View Post
DD doesn't tolerate CLO, I think it's the rosemary extract in it...either that or it's really super high in amines. I just give her vitamin A from fish oil in softgels and vitamin D3 in softgels instead and she tolerates those fine.
Blue Ice now has Raw Fermented CLO that is just the CLO, no rosemary extract as a preservative. I'm not sure if fermenting affects the amine content of liver or not though.

Quote:
Originally Posted by moneca View Post
Then the healing really began, but did take a while esp. for dd. I have seen marvelous changes in her since we finally found a way she could tolerate to remove the mercury. Although I've had her religiously on HVBO/HVCLO/bone broth/all TF including lots of raw fermented dairy daily since fall of '05, I did not see her teeth begin to space out until several months after we started removing mercury which was around Jan '08 (right when she turned 4). I want to stop buying the HVBO since it is so costly, but I've decided to keep going until she turns 6 since the spacing just continues.
What did you use to assist in detox? We haven't been tested for heavy metals, but that's on my list. I do think that we have trouble detoxing in general.
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