Oh wow, I can relate to so much of what you wrote! Click the link in my sig, that's my dx at the moment. However, they want to repeat my biopsy in Jan. because my pulmonologist thinks mine may be bronchoalveolar adenocarcinoma (rare lung cancer). Either way, in my case, it's a terminal dx.
My eosonophils were elevated too, especially in my lung tissue, and originally they thought it was an eosonophilic pneumonia and allergies. I do have some IgE mediated reactions, but it really isn't clear what's causing the fibrosis in my case. At any rate, I don't think you have the same dx as me, but I understand where you are coming from with the fear and the frustration.
I am on a whole SLEW of medications now, most of which are experimental as there is no effective treatment for this disease. I go to a big university doctor who knows ZERO about alternative treatments or supplements or whatever. He doesn't want me on any either. Then I have my local pulmonologist who disagrees and wants me on different meds... I'm on a chemo drug, steroids, 2 different asthma meds, anti-inflammatories, you wouldn't believe. Sometimes I get so frustrated and want to flush them all, but then I think of the alternative and realize it's the only chance I have and I know diddly about treating this disease on my own so I don't really want to risk it you know?
I do consult an ND who helps me with supplements and I feel comfortable in trusting her advice on this issue. If you can find someone to consult with, I highly recommend it. She can't help much with my fibrosis issue, but she can tell me how to support my body systems so as to have the best chance of recovery. What I do is research with my ND what is appropriate with the meds I am on (for example, I can't take echinacea because it interferes with the chemo med I'm on!) and then I don't bother to tell my pulmo about all the supplements. I have better ways to spend my time than arguing with him, and while he is very educated on lung diseases he is sorely lacking in knowledge re: alternatives. In my case I don't have much to lose.
Also, I did have to wean my youngest to start the chemo meds, and it was much easier on him than it was on me.
I am still sometimes sad about it, but he was fine, really. And while breast is best, having a healthy mama around for as long as possible is definitely preferable and there is no shame in having to switch to formula. I'm not saying it's optimal or desired, but if it becomes necessary allow yourself to grieve and realize that you are still doing the best for ella.
I have to run out the door right now, but please PM me if you want to talk or if you want to ask about anything. I've been there and I understand SO MUCH of what you wrote, I almost could have written it myself. I am so sorry that you are having to deal with this at all, that any mama ever has to deal with it.