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Is there a Bi-polar support thread? - Page 6

post #101 of 572
Do NOT wean, DO take the meds, and keep trying to find a doctor who knows what the bleep s/he's talking about. I had a psych who told me he wouldn't have me nurse if I were on Depakote "Because formula's just fine, and we don't know what these drugs do to a baby". Only we KNOW formula is not "just fine", breast is almost ALWAYS best, and there's no evidence that most of these drugs are harmful.

So either just don't tell them you're still nursing, or say "I'm going to keep nursing AND I'm going to take these drugs, and here's evidence from people who know better than you and have lots of letters after their names that says it's safe".

I'm so sorry you're dealing with this.
post #102 of 572
Oh wow. Did you see a psychiatrist? I am on a state plan and have a decent one. You should have a list of providers. Call and have them send you one. Switch if the one you saw is a dud.
I would consult Dr. Hale's book or website myself and wouldn't wean if the med was something approved by him and if its not something approved by him, get one of the drugs that is. You may have to get a copy and bring it with you to educate people.


ETA: Arwyn, we cross posted lol.
post #103 of 572
Quote:
Originally Posted by doublyblessed View Post
i sooo do not want to gain a lot of weight...i already have excess fat on my bod at age 38 and i just think that'd make me feel even worse about myself/life...ugh. why the heck would they choose depakote over lamictal when i told them i TOOK depakote 10 years back and don't think it did a thing...but give me cankles. sigh...and i ate like a fiend i remember that.
It's better than being crazy. Seriously. Yes, being hungry all the time and gaining that much weight sucked patootie, but it sucked less than being as crazy as I was at that point in my life.

But again, you don't have to just do whatever they tell you to. If you don't want to go on Depakote, say "I'm not going to go on Depakote, it did not work for me and I do not like the side-effects. What else do you have?" because it's not the only option.

You just have to keep advocating for yourself. Don't let them run you over or brush you off. YOU have the final say!
post #104 of 572
how many years of mamas nursing taking depakote, lamictal, etc. have they studied??? i mean, have there been any side effects w/ dc from this at all??? i worry, ya know...as i'm sure you did too...

hmmm.
post #105 of 572
I don't know the answer to your question but here is the discussion forum at Dr. Hale's site.
post #106 of 572
http://toxnet.nlm.nih.gov/cgi-bin/sis/htmlgen?LACT

you can look up meds here. give this link to your psych. can you buy a copy of hale's? i bought mine used on amazon for about $30. i brought it with me to my psych and she looked up my meds. if you are worried about gaining weight, consider topamax. no weight gain, in fact i lost a lot of weight. i would marry topamax and have its babies, i swear. its the best thing to ever happen to me.
post #107 of 572
you are too cute. topomax. i think i used to take that when i took celexa...? or...what else might i have taken that one with...i think it was to help me sleep when something else was supposed to make me have insomnia? hmmm...i sure could use something that gives me more energy compared to something that makes me even MORE tired. hmmm.

well i would rather be honest w/ whomever is treating my mood disorder than take some Rx and nurse w/out them knowing...just feels wrong to me. but then again, if dr. hale is fine w/ lamictal etc. than why not. i could always have my sons blood levels tested periodically...? sigh. this is such a tough decision. dr. hale does say on his forum (yes i did see that one...thank you mama) that it is still unknown how lamictal affects cognitive...sigh...you'd THINK by NOW after say, at least 6-10 years there would be some sort of knowing........................? i think research should be MANDATORY w/ people who take meds. any meds.

well baby wants to go to sleep. and so does mama and sister. so off we go to our family bed.......gotta love it.

thanks for all your support mamas! i'll keep you posted!!!

Quote:
Originally Posted by starry_mama View Post
http://toxnet.nlm.nih.gov/cgi-bin/sis/htmlgen?LACT

you can look up meds here. give this link to your psych. can you buy a copy of hale's? i bought mine used on amazon for about $30. i brought it with me to my psych and she looked up my meds. if you are worried about gaining weight, consider topamax. no weight gain, in fact i lost a lot of weight. i would marry topamax and have its babies, i swear. its the best thing to ever happen to me.
post #108 of 572
Thread Starter 
Quote:
Originally Posted by doublyblessed View Post
how many years of mamas nursing taking depakote, lamictal, etc. have they studied??? i mean, have there been any side effects w/ dc from this at all??? i worry, ya know...as i'm sure you did too...

hmmm.
I don't see this addressed in this thread (maybe I missed it. ) but I do not think Dr. Hale gets his data from studying mothers and babies, only milk and blood and the levels of drugs therein.

He is a pharmacologist, not a drug company. LOL.
post #109 of 572
My Dr. insisted that I wean before starting Lamictal. So I told him I weaned. DS is still nursing strong at age 3. As long as he doesn't get the rash, I figure everything is fine. He didn't get it, and I figure, hey, maybe it will help him stabilize his moods. There is such a genetic component to BP, maybe it is helping him. Who knows.
post #110 of 572
Yeah I was told I had to wean before starting Lamictal as well. DD was about 20 months, and only nursing to go to sleep, and that was only lasting 2 or 3 minutes. SO I waited, and with in a few (like 2.5) weeks she was refusing that nursing session. So I waited a few more days, and started the lamictal.

post #111 of 572
Quote:
Originally Posted by gossamer View Post
My Dr. insisted that I wean before starting Lamictal. So I told him I weaned. DS is still nursing strong at age 3. As long as he doesn't get the rash, I figure everything is fine. He didn't get it, and I figure, hey, maybe it will help him stabilize his moods. There is such a genetic component to BP, maybe it is helping him. Who knows.
Plus a 3 year old is a lot bigger than a tiny baby and should be able to process it.
I worry about my kids having BP too.
post #112 of 572
i don't see how it would/could really hurt them...if anything wouldn't it help them whether they will be BP or not??? hmmm. i do worry.

mamas...talk to me about wellbutrin. and what are the differen wellbutrins about (ie. SR)? i was thinking maybe wellbutrin might be my answer...i actually have an active Rx i never used for that and maybe i can have it filled today...lol i will call......................ok guess they need to ask the dr. if i can refill so they are faxing a request in...i just called the dr i met w/ yesterday as its the same medical clinic i got the wellbutrin Rx from months ago........different dr. who also didn't know what she was doing...sigh. maybe wellbutrin would be the one to try next? now waiting on her or her nurse to call me back.
post #113 of 572
Thread Starter 
So I had my meds appointment, but I forgot the Hale Book!

She was really apprehensive about meds while breastfeeding because everything in her book (Stahl) said no.

So she wants me to be on Abilify but it looks to me like that is not a good choice according to hale....am I right? http://66.230.33.248/discus/messages...tml?1192724235

I have bipolar 2, with some psychotic stuff....what would you take for this?
post #114 of 572
I think I'd try it. Hale doesn't discount it, just says it hasn't been studied.

Isn't that pretty much the story with almost everything they give us?

Did the DR say anything about controlling the ADD symptoms, or are they purely focused on getting the bipolar under control?

Anyway hugs to you, you have had a go of it lately!
post #115 of 572
Thread Starter 
well no, because most of the things for treating ad/hd are amphetimines which would kill a bi-polar.

She didnt want to try Lamictal because of the risk for the life threatening rash and didnt want to expose a baby to it. (I thought that would be a really good choice.)

What are the risks to the baby with a drug like this? I wouldnt know what to look for. Also I am going to have to convince her to give it to me when I am nursing...she seems really really worried.

(But I am happy that she is willing to entertain me anyways.)
post #116 of 572
I take Abilify. I've done well with it but she started me at a subclinical dose because I am extremely med sensitive I guess. I'm up to 12mg and still doing ok on it but thats still a very low dose. It makes me a little sleepy and a little hungry. She did say that it wouldn't make me gain weight. Not sure I believe her lol.
Anyway let me know if you take it and or like it.
post #117 of 572
Quote:
Originally Posted by transformed View Post
well no, because most of the things for treating ad/hd are amphetimines which would kill a bi-polar. Yeah, that is why I never had success- even when given ritalin with a mood stabilizer yikes.

She didnt want to try Lamictal because of the risk for the life threatening rash and didnt want to expose a baby to it. (I thought that would be a really good choice.) This worked SO good for me, until I got the stupid rash.

What are the risks to the baby with a drug like this? I wouldnt know what to look for. Also I am going to have to convince her to give it to me when I am nursing...she seems really really worried. Doesn't she have a peer group? My psych would always do a little digging and then make an educated decision. It would make me fearful if she was hesitant instead of confident.

(But I am happy that she is willing to entertain me anyways.)
I hope you find the holy grail med soon.
post #118 of 572
All the allopathic books say don't take the meds while breastfeeding because they don't value breastfeeding -- it's just a kooky thing some women do, and they should just switch to formula (which is just as good, right?) if they need the meds. It's totally a CYA thing.

There are, of course, drugs that one should NOT take while breastfeeding, and a lot of drugs we don't really know about because no one bothers to study them (because everyone just uses formula, right?). I'd go with what Hale says, not anything else. And if you're uncertain, you can always contact one of the breastfeeding centers yourself. There is a risk-benefit ratio to calculate, and no one else can decide that for you. If you really want a particular drug, and can contact a lactation-knowledgeable doctor or pharmacist that would OK it for you, take that info to your doctor, or have her contact them as well, and say "I believe this is the best choice for me, I am informed about the possible side effects, here's research/recommendations that says it's safe (or not known to be unsafe), will you prescribe it for me?" And if they say no, say "buh bye".

I'm glad you're starting the path to feeling better.
post #119 of 572
I just realized you said that Hale doesn't recommend abilify. Sorry.
post #120 of 572
Thread Starter 
Quote:
Originally Posted by MotherWren View Post
I just realized you said that Hale doesn't reccomend abilify. Sorry.
I think thats what he says, but I have a hard time reading his information. :
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