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Is there a Bi-polar support thread? - Page 8

post #141 of 572
Thread Starter 
How is everyone doing here?

I feel like the depakote is helping me a bit in the "brain fog" department but also sometimes that goes away when I am getting ready to swing into mania.

Who has been at this a while? What do you do, keep a log all the time? (oh please say no. )

oh, and the weird thing is that my pdoc said I'll know its working "when I can sleep at night normally" (Like not taking an hour to fall asleep) but this seems to hype me up slightly and make it a bit harder to feel tired. (Not TONS but before with the severe symptoms I was freaking EXAUSTED and now I feel kind of awake at bedtime. Like I would have never stayed up till 10:40 2 weeks ago. But here I am.)
post #142 of 572
I don't know. I feel so weird. My anxiety was out of control which the doc says is just my worrying about my daugher, since she is what I perseverate on, but I think its from the meds. Then I take half of a klonopin and feel like it makes the meds not work right but takes the anxiety away.
And I feel just very odd in general, not even sure I can explain it. She seems to brush these things off when I complain. I think because she feels the side effects will go away. Hopefully she is right but I hate meds.
post #143 of 572
im doing ok. i have a bad cold and have been sleeping at random times which messes with my med schedule. that sucks. but im trying to be aware of that and stay zen. lol.
post #144 of 572

cymbalta withdrawl symptoms

ugh i just had about the worst weekend of my life. on fri i went to see my psych and she changed me from cymbalta 60 mg to zoloft 50 mg. left me on lamictal 200mg and added trazadone for sleep at 50mgs. we decided to do a cold turkey switch fri eve. she told me to watch for mood swings, mild discomfort, etc.
I woke up on saturday with a mild head ache. by 1pm i was nasesous and had the truns. by 3pm i couldn't move. my head was paining, i couldn't move without it feeling like it was going to explode. i coudln't keep anyting down. my body would start shaking so bad and i would break into cold sweat. my heart my gf came by and was ready to take me to the ER. i told her about the med switch so at lesat someone would come by to make sure i was still alive. by 5pm i was ready to take cymbalta so the horrilbe brain zaps, pulses and all the lovely upset stomach/virdigo would go away. instead my gf game me the zoloft, lamcital and trazadone. i managed tofall asleep until 9pm. i woke up feeling like shit. the head pain at least was dull, the nausea and the diarrhea were still there. i think i managed to eat 2 bananas and drink few glasses of water and some gatorade. i was up until 4am, munching and eliminating crackers and soda water. ugh. mild discomfort! WTF???
i woke up at 8:30am on sunday. i had to get dd from her dad's. i had a migraine which was tolerable. my whole body hurt, i had dry mouth. i ate a little, no nausea but i still had diarrhea. i managd to survive a whole day with dd. i was totally disorganized, thought and action wise. we didh't do much and the rain kept us in. i managed turkey and cheese sandwiches for dinner and some canned peaches. hehe.
so here is monday. i'm tired, my stomahc is still sensitive. i been existing on rice pudding, toast, ginger ale and crackers. i got stressed at work today over a project and well had the runs.
i can't tell if this is the zoloft, the withdrawls, stress?!? but no matter what i'll take that cymbalta again. omg, i thought i would die from the withdrawls. and i been on many many meds the past 16-17 years, and never had withdrawls like that.
post #145 of 572
BrandiRhoades - thank you for letting me know. I hope one more day of this and I can feel functional again! this eve is much better, still the light headness but i think part of it is just adjusting my diet. i seem to eat less with cymbalta but be constantly bloated. now it seems like i have to increase the quantity of food to avoid that nauseasous light headed feeling...
post #146 of 572
Thank you for the tip. I will keep that in mind. I am struggling with depression now too. Pdoc just increased my Welbutrin today actually.

You mentioned suicide and that scares me. How are you feeling today? Do you think about doing it yourself and if so, do you seek help?
post #147 of 572

natural remedies?

Hi all-

So my 12 1/2 yr old DS was "officially" dx with Bipolar Disorder recently along with ADHD, ODD,etc..
I've know I've attempted and asked in the past, but here goes again:
Anyone know of natural, holistic treatments for this? I did try one holistic remedy during the summer that didn't work and my friend is going to be giving me another remedy to try soon (some snake venom or something). I usually (ran out recently) have him on OmegaBrite 4 capsules a day. Try to keep him away from artifical colors and stuff, which is really difficult since he sabotages me all the time! ugh.
He has a major heart condition and is on conventional meds twice a day already so I really don't want to put him on any more meds with a whole sleuth of possible nasty side effects.
But I am concerned...this mental illness is really debilitating to his home, school, everywhere life. He is in a behavioral school and we're working with a therapist, behaviorist, etc.. The thing is he is so smart and creative and could do soooo many things if it weren't for this mental condition. He loves so many things...and when he puts his mind to something..WOW! But his impulsiveness, lack of safety, lack of respect, negativity (sometimes)...his up..down..up..down's...killer! I have three other kids in the house..including an autistic son and another child that displays same behaviors the older did at his age. Its very difficult and I'm very concerned for him..in 5 yrs he'll be 18!! Scary.
So anyway I just like to check in time to time and make sure there's nothing else I could be doing for him besides med's. (everyone seems to point that direction).

Anyone?
Thanx
rayRay
post #148 of 572
Thread Starter 
Hi Ray - There are lots of alternative theorys just like there are for any illness but the risk of suicide with bi-polar is enough to take pause alone, and medicate as needed. (The suicide rate could be as high as 20%!!!!!)

IMO, most of the huge impacts made on mental illness include limiting sugar (and carbs) but it certainly wont cure it.

And dietary changes at age 13, need to be made by the individual, not the mother. You can only encourage it. I would suggest you stick with meds until your kid wants to take the seriousness of this into his own hands.
post #149 of 572
Quote:
Originally Posted by MotherWren View Post
You mentioned suicide and that scares me. How are you feeling today? Do you think about doing it yourself and if so, do you seek help?
I am feeling much better. Thank you for asking. I've been told via PM that we can't discuss suicide here, however.
post #150 of 572
AuntRayRay, I went on meds off and on for about 15 years. I was diagnosed at 13. I am now on them - probably for life. I have the same concerns you mentioned - side effects, and for someone with a still-developing brain, the concern that the meds could affect his brain. I don't say that lightly. My 3YO is going to the pdoc in January, and he fits to a tee the signs of early onset bipolar. I can trace my own illness back before I was 13 to at least age 8. Bipolar in people so young is scary.

OTOH, it is an illness. It was only last summer that I really came to terms with that. I'm still struggling with it, but now I treat it as I would any other illness. My husband has juvenile diabetes, and he takes insulin. There are side effects, but he does what he needs to medicate a deficiency in his body. That's how I'm approaching bipolar as well.

I believe limiting carbs can be effective in some people. We have made dietary modifications for my son, and it's helped. The problem is that people with bipolar, especially children, tend to crave carbs. I know that I have carb binges, and so does my son. So dietary changes are going to be tough regardless, and I agree with transformed that he definitely has to be in agreement with you at his age. Thirteen's a tough age without mental health issues interfering.

A lot of people find that fish oil helps them. For some reason, it didn't for me, but it's definitely worth a try if you want some regulation. The things you mention, though, being creative but unable to focus (the story of my life) will be helped by the meds. Having been diagnosed at his age, though, I think it's important that he's fully involved in the discussions about his treatment. I wasn't, and I'm still resentful because I believe the illness would have taken a different and less devastating course had I been allowed to decide for myself early on.
post #151 of 572
BrandiRhoades so glad you are feeling better
post #152 of 572
Quote:
Originally Posted by BrandiRhoades View Post
The things you mention, though, being creative but unable to focus (the story of my life) will be helped by the meds. Having been diagnosed at his age, though, I think it's important that he's fully involved in the discussions about his treatment. I wasn't, and I'm still resentful because I believe the illness would have taken a different and less devastating course had I been allowed to decide for myself early on.
Well after his pysch. eval. and we discussed how the Dr. was recommending med's for a bipolar condition, his response was: "F" him!
He has over heard me in the past speaking on medication and side effects and he's already on two med's twice a day for his heart condition. But I do include him in everything. when I talk to his therapist and BA its almost always in front of him. Sometimes he's reasonable about things, but most of the time no
It is hard because he is going to be 13 so some of what he is going through alot of kids do, but him being bipolar on top of that can be sooooo challenging.
Some days are better than others, but last night when the therapist was here he was out of control..calling the therapist an idiot and telling him and I to shut up, throwing things around. I went to bed exhausted to say the least:S
I am continuing to research and appreciate this forum
auntrayray~
post #153 of 572
I haven't been really active on this thread and I apologize. When I'm feeling "good", I just want to ignore the fact that I have this disease.

Which leads me to my question. How do you (collective you, of course) stay on meds when you are doing good and your head is telling you they are no longer needed?

I'm trying really hard to stay on my meds but I keep focusing on the fact that maybe I don't really have this disease. I've only been struggling with it for a year and think it might have been Post partum pychosis (it came on after the birth and death of my daughter - in which I almost died). However, in the past when I've gone off my meds, I end up in the psych ward and that is something I don't want to repeat.......
post #154 of 572
Quote:
Originally Posted by Eclipse95 View Post
I haven't been really active on this thread and I apologize. When I'm feeling "good", I just want to ignore the fact that I have this disease.

Which leads me to my question. How do you (collective you, of course) stay on meds when you are doing good and your head is telling you they are no longer needed?

I'm trying really hard to stay on my meds but I keep focusing on the fact that maybe I don't really have this disease. I've only been struggling with it for a year and think it might have been Post partum pychosis (it came on after the birth and death of my daughter - in which I almost died). However, in the past when I've gone off my meds, I end up in the psych ward and that is something I don't want to repeat.......
i learned the hard way that going off meds is not a good idea, at least for me. i managed without drugs (yoga, medication, fish oil) for few years but then i crashed each time i stopped meds, crashed big time and it took me long time to stabilize.
of course it sucks to be dependent on meds but it's more important to be able to function. i struggle with this issue daily but the reality is that i can't function without. i have lost years of my life to manic periods and i dont want to go back to that dark place...
post #155 of 572
Quote:
Originally Posted by MotherWren View Post
And I feel just very odd in general, not even sure I can explain it. She seems to brush these things off when I complain. I think because she feels the side effects will go away. Hopefully she is right but I hate meds.
Call around to see if you can't find a new pdoc She shouldn't be brushing anything off. It's probably how I ended up in my first hypomania, and it's how I ended up with such crappy sleeping, like sleepy/sleeping all the time when I was on Lexapro and Lamictal. I could hardly keep my eyes open through a 9 pm show, forget the 10 pm ones. And I'm a night owl!

I switched pdocs about a year ago now, and she was fantastic, I asked her to increase my Lamictal and leave out antidepressants (my old pdoc took me off Lexapro and put me on Wellbutrin) and she said that we could try that, come back in 6 weeks. In 6 weeks whenI returned she declared that I was stable, keep taking 150mgs and come back in 3 months. I think that appointment was in April. I don't go back again until the end of this month. YES!!! HUGE gap in my appointments, and I haven't felt the need to call to go in at all. I just called for a refil about a month ago.

Sorry, my point was, call around, you can find someone who will listen

Quote:
Originally Posted by Eclipse95 View Post
I haven't been really active on this thread and I apologize. When I'm feeling "good", I just want to ignore the fact that I have this disease.

Which leads me to my question. How do you (collective you, of course) stay on meds when you are doing good and your head is telling you they are no longer needed?

I'm trying really hard to stay on my meds but I keep focusing on the fact that maybe I don't really have this disease. I've only been struggling with it for a year and think it might have been Post partum pychosis (it came on after the birth and death of my daughter - in which I almost died). However, in the past when I've gone off my meds, I end up in the psych ward and that is something I don't want to repeat.......


You live you learn? I'm not really sure. I haven't made a concious decision to stop my meds, but more than a few times I have neglected to take them, or failed to remember. Most recently was over Christmas. I forgot my pills for at least 6 days in a row. As soon as Christmas was over I could really feel it, and yet I still forgot. Finally I filled up my pill reminder (which is magnetic) and stuck it on the fridge. Now I can't get anything out with out seeing the meds. Once I'm back on them for 4 or 5 days I can feel the difference, and remember just why I take all this crap (which really is much compared to most people I know.) . I'm a better person when i do. I'm a better mother, wife, friend. My house is cleaner, my kids are happier. Doesn't mean I like my meds. I'd still prefer to not need to take them. So I just do my best to remember them.
post #156 of 572
I hear you on switching docs, I really should. I guess I've been avoiding it in case there is a hassle with Medicaid. She's ok, but just ok. I did get off of the abilify but it took me calling her twice. She never returns my first call.

Meanwhile I spent the holidays mentally flipping out, wanting to jump out of my skin...if she'd just have returned my call to say that I could stop taking it cold turkey. : I was on such a low dose that I guess it didn't matter. I am very med sensitive.

Anyway now I am taking Seroquel. Maybe the third time is the charm (I hope). First was Lamictal, then Abiliy and now Seroquel.
Anyone else have a hard time finding the right "cocktail"? I feel like a guinea pig.
post #157 of 572
Quote:
Originally Posted by MotherWren View Post
Anyone else have a hard time finding the right "cocktail"? I feel like a guinea pig.
I had a terrible time finding the right one. I'm finally on Effexor/Invega, and it's working so far. I feel like a big complainer sometimes, especially because my complaint's been that they don't work or make me foggy, rather than physical side effects.

I've been off the Invega for a few days and will be at least until Monday because my insurance company doesn't want to pay for it right now, and my pdoc didn't get it taken care of. I'm not happy about that, but I know she's overworked with too many patients. I just got lost in the shuffle.
post #158 of 572
Quote:
Originally Posted by MotherWren View Post
I hear you on switching docs, I really should. I guess I've been avoiding it in case there is a hassle with Medicaid. She's ok, but just ok. I did get off of the abilify but it took me calling her twice. She never returns my first call.

Meanwhile I spent the holidays mentally flipping out, wanting to jump out of my skin...if she'd just have returned my call to say that I could stop taking it cold turkey. : I was on such a low dose that I guess it didn't matter. I am very med sensitive.

Anyway now I am taking Seroquel. Maybe the third time is the charm (I hope). First was Lamictal, then Abiliy and now Seroquel.
Anyone else have a hard time finding the right "cocktail"? I feel like a guinea pig.

I was VERY lucky finding my right meds almost immediately. I mean VERY VERY lucky. I started off on Lexapro, went hypomanic, was given Ativan and then Lamictal. The Lamictal started working by week 3 and drove the hypomania out. Once I got to 100mgs for a month or two, I had to get off the Lexapro, my pdoc insisted I needed an antidepressant and gave me Wellbutrin. My irritability skyrocketed, and I got off it after 4 days. (I too am very med sensitive) and stuck with just Lamictal. Noticed I felt good, but I could feel better. She didn't want me to try 150 because when I take 100 mgs at a time my back hurt. So I take half in the am and half in the pm. She refused. I called another pdoc saw her 2 weeks later and she said it sounded great, 75 mgs in the am and 75 in the pm. Been on it for a year like that. IT"S GREAT!!!

You can call medicade and get their list of approved providers, makes it a teensy bit easier.
post #159 of 572
Quote:
Originally Posted by Autumn Breeze View Post
I was VERY lucky finding my right meds almost immediately. I mean VERY VERY lucky. I started off on Lexapro, went hypomanic, was given Ativan and then Lamictal. The Lamictal started working by week 3 and drove the hypomania out. Once I got to 100mgs for a month or two, I had to get off the Lexapro, my pdoc insisted I needed an antidepressant and gave me Wellbutrin. My irritability skyrocketed, and I got off it after 4 days. (I too am very med sensitive) and stuck with just Lamictal. Noticed I felt good, but I could feel better. She didn't want me to try 150 because when I take 100 mgs at a time my back hurt. So I take half in the am and half in the pm. She refused. I called another pdoc saw her 2 weeks later and she said it sounded great, 75 mgs in the am and 75 in the pm. Been on it for a year like that. IT"S GREAT!!!

You can call medicade and get their list of approved providers, makes it a teensy bit easier.
I'm jealous of people who can tolerate Lamictal. I know that SO many people love it and have been helped by it. I had severe joint pain with it, could barely walk. That was a treat compared with the Abilify
post #160 of 572
my sister is bi-polar, but in denial about it.
I just want to say thank you too everybody for having the courage to put your experience into words. It is VERY helpful for me to read. I live in Japan, and my sister in the states, so I only see her once a year when I go to the states.
but we skype and phone.
off to read more. I am on page 4 but wanted to post before I was dragged away from the computer.
warmly,
Kathryn
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