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Is there a Bi-polar support thread? - Page 3

post #41 of 572
Transformed...

I hope you do start feeling better, this situation (bipolar/ADD) just really messes with your life in every single area. I'm sure you've read what I take to control my issues *bipolar/ADD/OCD*(www.omegabrite.com & www.truehope.com) I've shared a few times about that. I've been on LOTS of RX drugs and experience wicked side effects at med levels that aren't even at levels high enough to be therapuetic so I've had a real hard time of things. I've been 100% stabilized for well over a year, and I was a mucho rapid cycler with spats of mania/mixed episodes and then crippling depression on the regular. Like all the time. My bipolar isn't the type where you get majorly depressed for a long time and then whig and go manic and then back to depression for a long time (that is classic bipolar.) There was no calm it was UP and down and UP and down and then that lovely middle where you are UP but you want to murder people (not really, but just like UBER aggitated/wired). I'm so happy to say that is behind me. The only thing I'm still struggling with is mild depression and a lot of sucky ADD symptoms. I'm pretty tired and have a very hard time concentrating and getting stuff done. That's the story of my life though, and is nothing compared to the psychological hell I lived previous to finding stuff that works. I could go into this deeper and share very personal horrible details about what a rot person I was when I was really sick, (I hurt people I love) but I won't because we all know what manic people do.

When I read what you write it makes me sad, because I know what it's like to be all scattered of brain and confused and overwhelmed- so overwhelmed that you can't process info/books to move yourself to a better place. It's so hard.

*And on aspartame for those that were addressing it, no it doesn't cause bipolar disorder (I know it doesn't because I've NEVER touched it and I'm bipolar), but if you read enough you'll begin to discover that bipolar disorder is all about brain chemistry, and how our bodies process nutrients/minerals/amino acids. We aren't getting the right stuff in the right way to our brains which totally screws up the natural balances. Scientists do not know yet what exactly triggers and causes bipolar disorder, but they are getting closer and science is pointing towards some sort of genetic defect that causes bipolar people's bodies to not take in or process nutrients and other things our bodies need in the right way which leads to the messed up brain chemicals. It isn't about an improper diet, for a bipolar person even with a perfect diet for some reason their bodies just don't assimilate things write, things fire wrong etc. Obviously a really crappy diet will only make things worse....but diet doesn't cause bipolar disorder.

I've noticed something amongst bipolar people, we all tend to be VERY sensitive to medications, foods, caffiene, alcohol, drugs. We do not react the same way that everyone else does to things. Which would lead a person to really examine what they choose to put into their bodies. Little things set us off, not enough sleep, too much sleep, too little light during the day, too much stimulation etc. It goes on and on. We have very over reactive systems. I protect myself by weighing how everything effects my mood, and then I fashion my world around that.

This means I have many limitations, but my mental health is of supreme importance to me.

I choose not to stay up all night watching TV or using the computer because it (scuse the language) f**** with my body/mind/mood, it's a trigger for me. I choose to avoid negative people and situations as much as possible. I choose (and this takes a lot of practice) not to sit in my closet and self mutilate when I feel helpless/worthless. I choose not to entertain negative obsessive thoughts about myself, or my marriage, or any type of ruminations.

It is hard I don't always succeed, but the longer I stay on track and protect my lifestyle and live in a manner that is supportive to my stability the easier it gets and the better I get. I also eliminate destructive people from my life. I've had friends who don't "believe" in bipolar disorder, who don't respect the fact that I cannot touch alcohol etc. They poo-poo it like it's no biggee. Bipolar disorder is life and death, it's not a game. It's serious.

Well I rambled big time, but Transformed and everyone else that has posted I just want us to feel good. I share, even if you decide I'm full of poppyseeds, that's ok. I still share because I don't feel that bad anymore, I feel pretty good. If that helps anybody I'm glad, if not well you gotta take a risk now and then right?
post #42 of 572
Thanks for sharing this! I haven't read about your treatments but I will check out those links. Actually maybe I shouldn't right now though because it might spawn another "going off meds" spiral.
I'm doing the nasty side effect thing myself at the moment. They are seemingly making me worse. Its a touchy subject with me because I fought taking anything for years, certain that if I could just get the right combo of food and supplements, that I could find the key to balance. I absolutely agree with the theory that a genetic predisposition exists regarding the way we absorb nutrients. All the more reason for me not to take meds (in my mind). Its to hard to do when I'm not well though.
Sigh....




Quote:
Originally Posted by Porcelain Interior View Post
Transformed...

I hope you do start feeling better, this situation (bipolar/ADD) just really messes with your life in every single area. I'm sure you've read what I take to control my issues *bipolar/ADD/OCD*(www.omegabrite.com & www.truehope.com) I've shared a few times about that. I've been on LOTS of RX drugs and experience wicked side effects at med levels that aren't even at levels high enough to be therapuetic so I've had a real hard time of things. I've been 100% stabilized for well over a year, and I was a mucho rapid cycler with spats of mania/mixed episodes and then crippling depression on the regular. Like all the time. My bipolar isn't the type where you get majorly depressed for a long time and then whig and go manic and then back to depression for a long time (that is classic bipolar.) There was no calm it was UP and down and UP and down and then that lovely middle where you are UP but you want to murder people (not really, but just like UBER aggitated/wired). I'm so happy to say that is behind me. The only thing I'm still struggling with is mild depression and a lot of sucky ADD symptoms. I'm pretty tired and have a very hard time concentrating and getting stuff done. That's the story of my life though, and is nothing compared to the psychological hell I lived previous to finding stuff that works. I could go into this deeper and share very personal horrible details about what a rot person I was when I was really sick, (I hurt people I love) but I won't because we all know what manic people do.

When I read what you write it makes me sad, because I know what it's like to be all scattered of brain and confused and overwhelmed- so overwhelmed that you can't process info/books to move yourself to a better place. It's so hard.

*And on aspartame for those that were addressing it, no it doesn't cause bipolar disorder (I know it doesn't because I've NEVER touched it and I'm bipolar), but if you read enough you'll begin to discover that bipolar disorder is all about brain chemistry, and how our bodies process nutrients/minerals/amino acids. We aren't getting the right stuff in the right way to our brains which totally screws up the natural balances. Scientists do not know yet what exactly triggers and causes bipolar disorder, but they are getting closer and science is pointing towards some sort of genetic defect that causes bipolar people's bodies to not take in or process nutrients and other things our bodies need in the right way which leads to the messed up brain chemicals. It isn't about an improper diet, for a bipolar person even with a perfect diet for some reason their bodies just don't assimilate things write, things fire wrong etc. Obviously a really crappy diet will only make things worse....but diet doesn't cause bipolar disorder.

I've noticed something amongst bipolar people, we all tend to be VERY sensitive to medications, foods, caffiene, alcohol, drugs. We do not react the same way that everyone else does to things. Which would lead a person to really examine what they choose to put into their bodies. Little things set us off, not enough sleep, too much sleep, too little light during the day, too much stimulation etc. It goes on and on. We have very over reactive systems. I protect myself by weighing how everything effects my mood, and then I fashion my world around that.

This means I have many limitations, but my mental health is of supreme importance to me.

I choose not to stay up all night watching TV or using the computer because it (scuse the language) f**** with my body/mind/mood, it's a trigger for me. I choose to avoid negative people and situations as much as possible. I choose (and this takes a lot of practice) not to sit in my closet and self mutilate when I feel helpless/worthless. I choose not to entertain negative obsessive thoughts about myself, or my marriage, or any type of ruminations.

It is hard I don't always succeed, but the longer I stay on track and protect my lifestyle and live in a manner that is supportive to my stability the easier it gets and the better I get. I also eliminate destructive people from my life. I've had friends who don't "believe" in bipolar disorder, who don't respect the fact that I cannot touch alcohol etc. They poo-poo it like it's no biggee. Bipolar disorder is life and death, it's not a game. It's serious.

Well I rambled big time, but Transformed and everyone else that has posted I just want us to feel good. I share, even if you decide I'm full of poppyseeds, that's ok. I still share because I don't feel that bad anymore, I feel pretty good. If that helps anybody I'm glad, if not well you gotta take a risk now and then right?
post #43 of 572
Thread Starter 
when did you start meds beth?
post #44 of 572
Quote:
Originally Posted by transformed View Post
when did you start meds beth?
I started Welbutrin about 2 months ago and Abilify a week ago.

ETA; I had a nasty bout with Lamictal a couple of weeks ago as well.

ETA; #2 Sorry to hijack your thread!
post #45 of 572
Beth -- do not go off your meds! Please feel free to experiment with adding things on, to see if it helps (and even if you're on meds, it could), and if it does help, and if you feel truely stable and well for a while and in a good place, then maybe try going off the meds.

But right now? Stay on 'em.

post #46 of 572
Quote:
Originally Posted by Arwyn View Post
Beth -- do not go off your meds! Please feel free to experiment with adding things on, to see if it helps (and even if you're on meds, it could), and if it does help, and if you feel truely stable and well for a while and in a good place, then maybe try going off the meds.

But right now? Stay on 'em.

Oh I won't! Thanks for the advice tho.
post #47 of 572
oh I love Lamictal Sorry it didn't work out for you. Wellbutrin didn't work for me. Lasted 4 days (managed to make me quit smoking in that 4 days though!)
post #48 of 572
wellbutrin was heinous for me. it made me so manic i thought i was going to go off my rocker permanently. the combo of zoloft/topamax/buspar seems to be really great for me, i havent been manic in awhile. im just hoping and praying i stay that way for awhile. i dont get many depressive episodes, only manic really. i think ive had maybe 5 depressive episodes ever that i can remember, but more manic than i can count. i hate hate hate mania. hate it. . oh, and i take klonopins when im manic too, just to keep me from losing it too bad. i also have anxiety/panic and ocd. fun fun! lol.
post #49 of 572
Thread Starter 
man, the mania is the good part for me.

But then again, I have like a 3 week manic episode (Once I made and canned like 40 cans of jelly that I drove 2 hours for the strawberries for and felt like Martha) and then 6 months of down.
post #50 of 572
Quote:
Originally Posted by Porcelain Interior View Post
Transformed...

I hope you do start feeling better, this situation (bipolar/ADD) just really messes with your life in every single area. I'm sure you've read what I take to control my issues *bipolar/ADD/OCD*(www.omegabrite.com & www.truehope.com) I've shared a few times about that. I've been on LOTS of RX drugs and experience wicked side effects at med levels that aren't even at levels high enough to be therapuetic so I've had a real hard time of things. I've been 100% stabilized for well over a year, and I was a mucho rapid cycler with spats of mania/mixed episodes and then crippling depression on the regular. Like all the time. My bipolar isn't the type where you get majorly depressed for a long time and then whig and go manic and then back to depression for a long time (that is classic bipolar.) There was no calm it was UP and down and UP and down and then that lovely middle where you are UP but you want to murder people (not really, but just like UBER aggitated/wired). I'm so happy to say that is behind me. The only thing I'm still struggling with is mild depression and a lot of sucky ADD symptoms. I'm pretty tired and have a very hard time concentrating and getting stuff done. That's the story of my life though, and is nothing compared to the psychological hell I lived previous to finding stuff that works. I could go into this deeper and share very personal horrible details about what a rot person I was when I was really sick, (I hurt people I love) but I won't because we all know what manic people do.

When I read what you write it makes me sad, because I know what it's like to be all scattered of brain and confused and overwhelmed- so overwhelmed that you can't process info/books to move yourself to a better place. It's so hard.

*And on aspartame for those that were addressing it, no it doesn't cause bipolar disorder (I know it doesn't because I've NEVER touched it and I'm bipolar), but if you read enough you'll begin to discover that bipolar disorder is all about brain chemistry, and how our bodies process nutrients/minerals/amino acids. We aren't getting the right stuff in the right way to our brains which totally screws up the natural balances. Scientists do not know yet what exactly triggers and causes bipolar disorder, but they are getting closer and science is pointing towards some sort of genetic defect that causes bipolar people's bodies to not take in or process nutrients and other things our bodies need in the right way which leads to the messed up brain chemicals. It isn't about an improper diet, for a bipolar person even with a perfect diet for some reason their bodies just don't assimilate things write, things fire wrong etc. Obviously a really crappy diet will only make things worse....but diet doesn't cause bipolar disorder.

I've noticed something amongst bipolar people, we all tend to be VERY sensitive to medications, foods, caffiene, alcohol, drugs. We do not react the same way that everyone else does to things. Which would lead a person to really examine what they choose to put into their bodies. Little things set us off, not enough sleep, too much sleep, too little light during the day, too much stimulation etc. It goes on and on. We have very over reactive systems. I protect myself by weighing how everything effects my mood, and then I fashion my world around that.

This means I have many limitations, but my mental health is of supreme importance to me.

I choose not to stay up all night watching TV or using the computer because it (scuse the language) f**** with my body/mind/mood, it's a trigger for me. I choose to avoid negative people and situations as much as possible. I choose (and this takes a lot of practice) not to sit in my closet and self mutilate when I feel helpless/worthless. I choose not to entertain negative obsessive thoughts about myself, or my marriage, or any type of ruminations.

It is hard I don't always succeed, but the longer I stay on track and protect my lifestyle and live in a manner that is supportive to my stability the easier it gets and the better I get. I also eliminate destructive people from my life. I've had friends who don't "believe" in bipolar disorder, who don't respect the fact that I cannot touch alcohol etc. They poo-poo it like it's no biggee. Bipolar disorder is life and death, it's not a game. It's serious.

Well I rambled big time, but Transformed and everyone else that has posted I just want us to feel good. I share, even if you decide I'm full of poppyseeds, that's ok. I still share because I don't feel that bad anymore, I feel pretty good. If that helps anybody I'm glad, if not well you gotta take a risk now and then right?


WOW.. I couldn't have said it any better myself! WOW.. that's all I can say.
post #51 of 572
Quote:
Originally Posted by transformed View Post
man, the mania is the good part for me.

But then again, I have like a 3 week manic episode (Once I made and canned like 40 cans of jelly that I drove 2 hours for the strawberries for and felt like Martha) and then 6 months of down.
yeah, i get the "get lots of stuff done" manic sometimes, but mostly i get the "irritable, aggravated, psychotic" manic. thats not so fun.
post #52 of 572
I like the 'get stuff done' mania, but I too just end up jittery and irritated and it sucks. So I take an ativan. But thankfully neither end seems to have cropped up muchthis year.
post #53 of 572
Quote:
Originally Posted by starry_mama View Post
yeah, i get the "get lots of stuff done" manic sometimes, but mostly i get the "irritable, aggravated, psychotic" manic. thats not so fun.
:
post #54 of 572
There's a huge difference between a "pure" hypomania (feel great, get stuff done), and a mixed state hypomania (what I like to describe as "high energy self-hatred". Fun!). Those with the later () are the highest category of suicides in the bipolar spectrum, but if we manage not to kill ourselves, in my experience we tend to be more serious about getting stable, because hypomania isn't the "draw" it is to the more classical bipolars.
post #55 of 572
I just wanted to thank you all for sharing on this thread. My DH is bipolar and I want to help him as much as I can.

I am trying to gently encourage him to try diet changes and get more exercise, not as a cure, but to make him feel overall better. Have you noticed that you just plain don't feel good most of the time when you're bipolar symptoms aren't under control? I've noticed that about him and was wondering if it was common.
post #56 of 572
Ooooohhh yea. That's a pretty well-researched phenomenon, actually, especially around depression. Sorry you have to deal with it, and I'm so glad he has you to help him.

Speaking of, here are two more fabulous natural (and free!) treatments for bipolar disorder (especially depression): Sun and exercise. I'm gonna go help my partner rake leaves now.
post #57 of 572
Quote:
Originally Posted by Arwyn View Post
There's a huge difference between a "pure" hypomania (feel great, get stuff done), and a mixed state hypomania (what I like to describe as "high energy self-hatred". Fun!). Those with the later () are the highest category of suicides in the bipolar spectrum, but if we manage not to kill ourselves, in my experience we tend to be more serious about getting stable, because hypomania isn't the "draw" it is to the more classical bipolars.
I haven't heard this before, and it's interesting.

I'm joining the thread. I was dx with bipolar disorder when I was 13, so 15 years ago. I've fought meds for a long time and tried all types of alternatives, including diet. After being in a psych hospital this summer, I have come closer to accepting that this is an illness. If I had a physical illness, I'd take the medications needed, and that's been easier to accept after seeing how bad things got for me.

I take Invega and Effexor. I skimmed but didn't see anyone mention either of those. I was on Risperdal twice, and I have *significant* weight gain from it, but it helped. Invega is the same chemical but in a controlled release form. It's primary use is for schizophrenia. So far with it - 4 weeks in - I've actually started to lose a little weight, which is great because I was still gaining after 3 months on Risperdal. It also makes my focus laser-sharp, which I love, love, love.

Since I've been back on meds, I've had 2 downswings, though neither for more than a week. I've also had what my therapist terms "pure manias," which is really different for me. I've only had a couple of manic episodes; I've mostly been hypomanic. This week, though, I've hit mania that makes me brilliantly creative, but ends at some point in the day with either me shaking and crying or horrid headaches and jitters.

One question I have for all of you - how do you control decision-making when you're manic? I have some major career issues, which the bipolar hasn't helped, and I'm thinking of making a major change. I just don't know how to distinguish between grandiose-manic decisions and good decisions.
post #58 of 572
Quote:
Originally Posted by Scullery View Post
I just wanted to thank you all for sharing on this thread. My DH is bipolar and I want to help him as much as I can.
I'm glad he has you to support him. It makes me sad to see how few partners support people with bipolar.

Quote:
Originally Posted by Scullery View Post
I am trying to gently encourage him to try diet changes and get more exercise, not as a cure, but to make him feel overall better. Have you noticed that you just plain don't feel good most of the time when you're bipolar symptoms aren't under control? I've noticed that about him and was wondering if it was common.
It's true for me. My physical health rapidly deteriorates when I get depressed. I do little to take care of myself, which just makes it worse. Since I've been back on meds, I've noticed far fewer aches and pains definitely. I feel young and alive again when before I felt I was geriatric in my 20s.
post #59 of 572
Quote:
Originally Posted by Arwyn View Post
There's a huge difference between a "pure" hypomania (feel great, get stuff done), and a mixed state hypomania (what I like to describe as "high energy self-hatred". Fun!). Those with the later () are the highest category of suicides in the bipolar spectrum, but if we manage not to kill ourselves, in my experience we tend to be more serious about getting stable, because hypomania isn't the "draw" it is to the more classical bipolars.
Thankfully I have never been suicidal. I do have a pretty major death obsession though (fear based). Being BP II has kept me from getting help for years because its just so easily masked as different things, a bad mood, pms...or my "up" times which look closer to other folks' normal. But I talk fast and get hyperfocused on issues, feel super great about myself. The clue (for me) was that its always followed by deep depression and/or severe anger.

Quote:
Originally Posted by Scullery View Post
Have you noticed that you just plain don't feel good most of the time when you're bipolar symptoms aren't under control? I've noticed that about him and was wondering if it was common.
Absolutely. In fact the two things compound each other. I am dealing with years of mistreating my body which makes the depression worse and vice versa. Not fun.

Quote:
Originally Posted by BrandiRhoades View Post
I take Invega and Effexor. I skimmed but didn't see anyone mention either of those.
I used to take Effexor. I found it helpful but the withdrawal was too strong and happened too soon. Like if I missed a day I would start getting that odd "numb brain" feeling. Maybe it has a short half life?
Quote:
Originally Posted by BrandiRhoades View Post
One question I have for all of you - how do you control decision-making when you're manic? I have some major career issues, which the bipolar hasn't helped, and I'm thinking of making a major change. I just don't know how to distinguish between grandiose-manic decisions and good decisions.
Oy good question! I would say to take time with the decision. Don't make it fast. If its a manic thing I would think that it wouldn't last, which would give you a clue. GL.
post #60 of 572
Thread Starter 
I have a question - does anyone here "see things?" not like a true hallucination but more like shapes moving in your peripheral? (For example, I was reading a book the other day and i saw soemthing fly past me just above the book on the floor.) I thought it was a rat or something. Sometimes I see people. (Not really people but I think I sense a large someting in the room and see a blob or soemthing. Then I turn to look and its not really there.

I havent been getting help at all for this so I have no idea what this could be.

I also smell things that arent there like perfume, fire, etc. and hear things.
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