Well, we've been off of wheat for 13 months and gluten for 12 months. We did a trial (through breastmilk) in May starting with spelt and expanding to gluten wide, which ended in bloody poop and interrupted sleep and general fussiness after about a month's time (though it was the same time we definitively lost corn, so who know's what's what...).
Since then we've reintroduced oat on a 4 day minimum rotation with no trouble. Now the crystal is starting to tell us that spelt, barley and wheat are safe for us. I had been planning on a trial (if crystal approved) over the holidays but now I'm not so sure.
My stool tests came back with significant gut dysbiosis (no yeast) and mild inflammation (even through 17 months of probiotics). Plus my blood work has me low in alot of nutrients. DD is 15.5 months old, not old enough for gluten IMO. So if my gut is still leaking then she could suffer. But there's alot of foods that she can tolerate through BM now, which she can't have directly, so maybe I am healing.
Positive thinking: I AM HEALING.
DD carries one Celiac gene, we still don't know my status. I want to optimize our healing. We're starting to get foods back, and dd hasn't had any skin reactions (except from a new allergen, grapes) since the beginning of September. DD's growth has majorly slowed though and she's tumbling down the charts.
I'm afraid of setting us back by trialing gluten and having it fail. On the other hand, I want to trial it to know the answer, and also to have a full Celiac panel done on me. For now I'm erring on the side of caution (though I know we're being mildly glutened when eating out- like soy sauce in Thai food occasionally- and not visibly reacting).
What would you do? I'm leaning toward abstaining from intentional gluten until my gut is in good shape (as indicated by stool/blood tests), and until dd is at least two.
Since then we've reintroduced oat on a 4 day minimum rotation with no trouble. Now the crystal is starting to tell us that spelt, barley and wheat are safe for us. I had been planning on a trial (if crystal approved) over the holidays but now I'm not so sure.
My stool tests came back with significant gut dysbiosis (no yeast) and mild inflammation (even through 17 months of probiotics). Plus my blood work has me low in alot of nutrients. DD is 15.5 months old, not old enough for gluten IMO. So if my gut is still leaking then she could suffer. But there's alot of foods that she can tolerate through BM now, which she can't have directly, so maybe I am healing.
Positive thinking: I AM HEALING.
DD carries one Celiac gene, we still don't know my status. I want to optimize our healing. We're starting to get foods back, and dd hasn't had any skin reactions (except from a new allergen, grapes) since the beginning of September. DD's growth has majorly slowed though and she's tumbling down the charts.
I'm afraid of setting us back by trialing gluten and having it fail. On the other hand, I want to trial it to know the answer, and also to have a full Celiac panel done on me. For now I'm erring on the side of caution (though I know we're being mildly glutened when eating out- like soy sauce in Thai food occasionally- and not visibly reacting).
What would you do? I'm leaning toward abstaining from intentional gluten until my gut is in good shape (as indicated by stool/blood tests), and until dd is at least two.
: (and please tell me the same thing in six months or so...)
