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PLEASE HELP - desperate - 10 y.o. migraine 6.5 days!

post #1 of 35
Thread Starter 
DD (nearly 11) has had a migraine since Monday (Nov 10).

We're at Children's ER for the third time. The first time was Wednesday, when they did a CT to rule out other stuff, diagnosed her with a migraine, gave her an IV bolus of saline, then toradol, compazine, and benadryl. The pain came back the next morning, full force. The toradol, compazine, and benadryl they sent us home with did zip, zero, zilch.

Then we came back, at the instruction of her primary care doc, Friday afternoon/evening. They gave her a neurology consult, gave her imitrex (did nada), compazine and benadryl (might as well have been nothing), and finally depakote, which worked, but only until the next morning. They sent us home friday night saying, basically, that the pain would probably return and there was nothing to do about it. They essentially told her to just suffer and not come back ... Also, that if the pain continued til Monday, to call that neurology resident and she'd try to get her into the adolescent headache clinic at the UW quickly. As in, in a few weeks!

The pain has been just as bad yesterday and today, so I called the after-hours line for our primary care clinic. The doc on call is an internist (even for kids - huh???), but she's my doc, so I have a good rapport with her. She said she would call Children's and insist that they treat and possibly admit her.

We've just had the visit from the Resident MD, who did the exam, and doesn't know what to do, since we've exhausted all the options for migraine.

What do we do? Got any treatment suggestions, either conventional medicine or natural in case they send us home again? (though, I'm not keen on leaving without real treatment...)
post #2 of 35
does she have a rash or a fever?
is it just her head or does her neck hurt as well?
post #3 of 35
Did the headache come on suddenly? Has your dd ever had migraines before?If not, was there an injury, twist, fall, anything like that? If the ER doesn't think an MRI is necessary and they've ruled out any life-threatening illnesses, I would go to a chiropractor and/or an acupuncturist.

to you and your dd
post #4 of 35
This is probably going to sound really dumb with all that you've been through, but Mt. Dew works on my migraines better than any drug. And it's not just the caffeine in it, it doesn't work with coffee, pepsi or anything else. I just thought I'd throw it out there since it couldn't hurt to try. I hope she feels better soon.
post #5 of 35
You have in no way exhausted treatment options for migraines. Identify triggers, and then removing triggers can sometimes help treat them. Serious headaches need to be looked at further though for other signs of illness: especially if they are sudden.
post #6 of 35
Thread Starter 
We've tried caffeine (Mt Dew prolly works best bcs it has the most caffeine), and she has been to the chiro, which didn't really help much.

No fever or rash. They've ruled out all that stuff (meningitis, etc.), and between interns, attendings, neurologists, primary care docs, and urgent care doce, she has the neuro exam memorized, so much that she corrected the resident a few minutes ago when he forgot one part :
post #7 of 35
Have they done an EEG?
post #8 of 35
how is her stress level? does she menstruate yet? sometimes migraines are related to one or both of these.... and these are particularly hard to kick b/c of their triggers.

hows she doing with light? hospitals are awfully bright..sun glasses can help. ear plugs are nice too. anywhere but a dark silent room is hellish for me when i have migraines.
post #9 of 35
Thread Starter 
No EEG or MRI, or any discussion of one yet.

she has sunglasses for the lit parts of the hospital (and everywhere else) because she's incredibly photosensitive right now, and also sensitive to sound. We have all the lights off in the exam room, the only light is ambient light from the door, filtered by the curtain.
post #10 of 35
Thread Starter 
Also, many women get migraines sometime before their period starts, or shortly thereafter. She's not quite as far along in her puberty journey as the rest of us were (I was 9 months before my period when I got my first migraine, and I think she's about 1.5-2 years from hers). But I definitely think that puberty could be playing a role. Unfortunately, that knowledge doesn't help her pain now.
post #11 of 35
Try EFT.
http://www.emofree.com/articles.aspx?id=17

There are also some videos on YouTube that show you how to do it This is one & you can find others if you Google it:

"How to get rid of a migrane Headache using EFT Technique"
http://www.youtube.com/watch?v=Gv8Ki9_Jk-w
post #12 of 35
Quote:
Originally Posted by CorasMama View Post
Also, many women get migraines sometime before their period starts, or shortly thereafter. She's not quite as far along in her puberty journey as the rest of us were (I was 9 months before my period when I got my first migraine, and I think she's about 1.5-2 years from hers). But I definitely think that puberty could be playing a role. Unfortunately, that knowledge doesn't help her pain now.

hmm. you probably already tried this.. but just incase have you tried whatever you do to help your migraines?

its hard b/c they have tried a lot. when this happens with my best friend they giver her Demerol or morphine to help the pain until the migraine breaks.
post #13 of 35
How is her posture and spinal alignment? Are there any positions that aggravate or relieve the headache? It might not be a true migraine, but headaches resulting from pressure on the nerves at the base of the head. If there are certain position she can hold her head in that feel better or worse, it might be this kind of headache. I have a special pillow for stretching my neck, but you can lay with body on the bed and your head just barely off to stretch it in a similar way. I think that neck xrays are usually how these pinched areas are located, but some chiropractors or neurologists can id them just by feeling the neck bones. They can inject anti-inflammatory meds or muscle relaxers right in the neck to relieve the headaches. Depending on the severity, the chiropractor may want to do a series of adjustments. Then there are exercises to help keep the neck in the proper alignment.

http://www.bodyjaz.com/home/bjz/page...ef_pillow.html <- That is not my pillow, but it is very similar.
post #14 of 35
Please read everything I have posted about Aspartame. It is one of the main causes and Aspartame is in over 9000 food, vitamins and medicine products.

Google Aspartame and migraines and you will be shocked. I got over 91 thousand hits. No doctor will make that connection either.
post #15 of 35
I went through something similar about 10 years ago and my PCP said that he was sure I had an annerism. He sent me two hours away for an MRI and a consult with a neurologist. It ended up just being a headache. I had to go on prednisone for several weeks. They said I had a status migraine and that because I had had it for so long, the steroids were the only thing that would shrink the blood vessels in my head. It worked but then came back about a month later with a vengence. The neurologist was consulted again and prescribed a steriod, maxeran and decadron which had to be given IV every 8 hours for 4 days. I kept the IV in my hand and returned to the hospital for my medication. It was awful but I finally got rid of the headached. I still get headaches once in a while but nothing like that.

I would wonder if a steriod or maxeran or decadron might work for your dd. Not sure if those are drug names but I'm sure googling them will pull up something.

post #16 of 35
Thread Starter 
Quote:
Originally Posted by Gitti View Post
Please read everything I have posted about Aspartame. It is one of the main causes and Aspartame is in over 9000 food, vitamins and medicine products.

Google Aspartame and migraines and you will be shocked. I got over 91 thousand hits. No doctor will make that connection either.
As a migraine sufferer, I'm all about not doing aspartame! I think she has had artificial sweeteners maybe twice in her life, neither time from me!
post #17 of 35
Our classical homeopath helped to resolve my friend's years and years of migraines.

Pat
post #18 of 35
I've BTDT and it sucks. I started having migraines when I was 11 and they would persist for days. Eventually the doc prescribed codeine. I'd take one and lay down in my room with towels over the window to make it completely dark and pass out for about 12 hours. That was so horrible though. I still felt blah for a few days after that. Nowadays I get them a few days before my cycle starts.

I hope your DD finds some relief soon.

Beth
post #19 of 35
Quote:
Originally Posted by CorasMama View Post
As a migraine sufferer, I'm all about not doing aspartame! I think she has had artificial sweeteners maybe twice in her life, neither time from me!
Soy exacerbates migraines in myself and my son.
post #20 of 35
Quote:
Originally Posted by mamaverdi View Post
Soy exacerbates migraines in myself and my son.
Me too! And peanuts as well. And chocolate, even unprocessed raw cacao.

Magnesium can help, as can the herbal supplement petadolex. And Arginine.
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