(x-posted with June, as I'm straddling DDCs and will likely give birth in June)
Had 12 week u/s today. Baby has a Giant Omphalocele. This is really bad. There is currently a 30% chance that the baby has trisomy 13 or 18. Best case scenario is currently lots of surgeries, and ongoing bowel, feeding, and possibly heart problems. Worst case scenario is, well, worse. Having an amnio next month to screen for more. It's likely that even if baby doesn't have trisomy 13 or 18, baby has other genetic problems/birth defects that we won't necessarily know until later.
Originally Posted by CorasMama
Theia: thank you. I have read that site, and they actually live near me. I'll be picking their brains for sure!
Yay! I'm sure having someone nearby that had a successful experience of this will be a big help. By the time I finished looking at that site, I was just thinking, wow, that is so amazing seeing it heal itself over time. Sending you and LO lots of good vibes for good health.
Oh, Kate. I'm so sorry. You know I will be over here pulling for you and baby. Let me know if there's anything you need or want, you know how close I am, just a phone call or an email or a message away. Hugs, mama.
bjorker: honestly, I may take you up on that. We're trying to figure out how to make it to after Christmas without Cora figuring out, and I think we may need to lean on some local support to do that.
expat-mama: yeah, DH and I decided tonight that, like we did with committing to our marriage (we just took divorce off the table, barring unthinkable actions), we decided we WILL get through this, whole, both individually and as a family.
Originally Posted by CorasMama
bjorker: honestly, I may take you up on that. We're trying to figure out how to make it to after Christmas without Cora figuring out, and I think we may need to lean on some local support to do that.
I'm so sorry to hear this. You're all in my prayers. I hope you find the support you need too. It sounds like your family you and DH are a strong loving couple and that will make such a difference. *hugs*
you are not alone in this....you have the support of your community online, and i'm sure in your circle of friends and family. don't be afraid to ask for help, or to cry or to vent....we are her for you <3
oh man, I am so sorry to read this. Much love to you and your family. Much love to your tiny little one. Much love that you all get through this to the other side intact, in peace.
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