Just have time for a quick drop-in, but I had a question for you more experienced mamas. DS is an interesting combination of sensory seeking, and sensory avoiding. He hates deep pressure but he craves it too. He screams for hours every night while I hold him down, and that's the ONLY way he can fall asleep. He needs it to calm down, but at the same time he freaks out if we constrict him. Does that make sense? The therapist was really puzzled and said she doesn't really see it too often. On his profile he was on both extreme ends of the spectrum of avoiding and seeking, and she was unsure of how to proceed and had to consult her team.
OK, rambling aside, yesterday DS had a weighted belt around him. He is 25 lbs in all and I think the total weight in the belt was 7-8 lbs. So a pretty hefty chunk for him, and he didn't even notice it or slow down. In fact, he kept trying to climb up things, and carry more weights, and push heavy things around. The therapist said she's going to have to think about making him a weighted hoodie or vest, but since he hates having his shoulders touched, it might not work. And she said she already ordered us a weighted blanket, which I hope WILL work at night, because the only way he can sleep is SMOOSHED against the crib sides until there are welts on him all over.
That is AFTER I have to hold his screaming body down in the evenings. And I'm just starting to realize that I just can't do that anymore - I'm not strong enough. It's pathetic that I'm not strong enough to hold down a 19 month old, but it's really hard, because I have to grab both his hands and his feet as he pinches when he's tired. He can do that for hours, I think it's something like stimming, but it just works him up more and more and he won't fall asleep unless I "mitten" his hands with my own. And grab his feet to stop him from kicking, so that takes care of both my hands at that point. And then he tries to bite me and arches his back, and oh boy it's fun. It can go on for hours every night, all the while he's screaming in my face. If I try to just let him be, he will not fall asleep, period, he'll be a crumpled mess of sobbing in the middle of the ground but he can't fall asleep without me constricting him.
So uh yeah. Does anyone have any experiences with weighted stuff? How much weight is used? Do you not have to use them when they're older or is it like a permanent thing? Do weighted blankets work?
And here's another question. What IS the deal with sensory issues? I tried asking the therapist and looking it up, but I just get the same "it's a nervous system thing" or "it originates in the left brain" reply, which just isn't good enough for me.
WHAT is is, exactly? Is it like, brain damage? I'm usually pretty good at figuring out what I read, medical-wise, but I can't wrap my head around it. I know it's altering the perception and baseline of "normal" but can someone dumb it down for me even more? Regarding what causes it, maybe? Thanks.