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#121 of 231 Old 12-11-2008, 07:42 PM
 
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It's not a remedy I personally would feel comfortable using for an 8 month old, but I don't necessarily think it's the worst thing in the world.

Are you unable to find a formula that doesn't constipate her? Are you also unable to express milk for her at work? I would absolutely cut out the bananas for right now. I know it's hard to deny them food they love, but if they're binding her up, I'd give them a rest. Have you tried prunes?
I know, I know!! No more banana! We try prunes, pears, I use pear or prune juice in her oatmeal . . . We use Nestle goodstart formula and I try to give her as much breast milk as possible, but that is hard since I am only pumping once at work and only getting about 4oz. Pumping twice at work was getting a bit uncomfortable with certain coworkers . . . Anyway, I haven't really noticed a difference with goodstart despite the reviews I have read. Now she is at an age where she can start eating chicken and other finger foods . . . Will that constipate her? Will yogurt or cottage cheese? It is not on the things-to-avoid list from the doctor.

Sometimes I think she should take something like Miralax, but I wonder about it, too. I mean, I guess I am thinking how that could be better or worse than something like Karo . . . My doctor seems so very certain that it is completely OK. He also said once she really starts to move around that things will change. yet, she has been crawling, pulling to stand etc. since about 6 1/2 months and no change.

I also should mention that before we used Karo daily, she would go 4-5 days with no poop, and then when she did go it was hard and painful. Sometimes she spits up when she strains.
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#122 of 231 Old 12-12-2008, 12:26 AM
 
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I know, I know!! No more banana! We try prunes, pears, I use pear or prune juice in her oatmeal . . . We use Nestle goodstart formula and I try to give her as much breast milk as possible, but that is hard since I am only pumping once at work and only getting about 4oz. Pumping twice at work was getting a bit uncomfortable with certain coworkers . . . Anyway, I haven't really noticed a difference with goodstart despite the reviews I have read. Now she is at an age where she can start eating chicken and other finger foods . . . Will that constipate her? Will yogurt or cottage cheese? It is not on the things-to-avoid list from the doctor.

Sometimes I think she should take something like Miralax, but I wonder about it, too. I mean, I guess I am thinking how that could be better or worse than something like Karo . . . My doctor seems so very certain that it is completely OK. He also said once she really starts to move around that things will change. yet, she has been crawling, pulling to stand etc. since about 6 1/2 months and no change.

I also should mention that before we used Karo daily, she would go 4-5 days with no poop, and then when she did go it was hard and painful. Sometimes she spits up when she strains.
Re the bold: Yeah, my doctor told me the same thing about ds. She was wrong.

If the Karo is working for you, I won't be the one to tell you "NO! THAT'S BAD! DON'T!". I'm in a similar boat with the Miralax. Having him on Miralax sucks, but having him not poop for 6 days and then go through the routine I described upthread sucks more.

Has mineral oil been suggested to you? I've heard good things about and I'm considering it for dh. There are OTC senna based laxatives that can be used, but not regularly.

It's just that she's so young and that's a lot of semi-refined sugar, but like I said, if it's working well, I'm a loathe to say that it's a bad thing.

I'd stay away from dairy. It makes some kids looser, but it more commonly is binding. Fruit really helps ds. Grapes and berries are easier to get into him than pears and peaches and they seem to work really well. What about carrots? Is she too young for stuff like flax and flax seed oil? Probably. I can't remember.

Mama to Thing 1 and Thing 2.
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#123 of 231 Old 12-13-2008, 08:24 PM
 
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I haven't read all 7 pages yet, but I can see that this is the thread for me right now. My 4-year-old dd has had constipation issues since birth. She has been withholding her poop since I tried to potty train her about 8 months ago. We took her to a gastrointestinal specialist two months ago who had us clean out her system (Miralax 3x and 1 enema/day for 3 days) and told us to give her Miralax once/day for 3 months, and then wean her if all was well. I usually end up missing a couple of days a week of it and this just isn't working. She is so miserable.

I'm not sure what to do from here. All I can do is be rigid about not missing a day with the Miralax any more, and add in Buddy Bear Gentle Lax. She used to take the bears and they definitely helped and she liked them... so I'm going to try this combo.

BTW, she was diagnosed with Autism almost a year ago but is extremely high functioning. Her main issues are the constipation, social issues and sensory issues.
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#124 of 231 Old 12-13-2008, 10:12 PM
 
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Laura, can you explain more or provide a link for the Buddy Bears?

Also, make sure you check out Gut and Psychology Syndrome by Natasha Campbell-McBride (www.gapsdiet.com).


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#125 of 231 Old 12-14-2008, 01:25 AM
 
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Laura, can you explain more or provide a link for the Buddy Bears?

Also, make sure you check out Gut and Psychology Syndrome by Natasha Campbell-McBride (www.gapsdiet.com).

Leila, thanks... I'm checking that out!

Here is a link to the company that has the Buddy Bear line for kids: http://renewlife.com/Category/Kids.aspx

And here is the page for the Gentle Lax:
http://renewlife.com/products/Buddy-...entle-Lax.aspx

My kids love the Buddy Bear Probiotic, too.
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#126 of 231 Old 12-14-2008, 01:49 AM
 
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My dd's pediatric gastroenterologist recommended adding Culturelle, and we have had wonderful results with it. At first I had a really hard time hiding it because I thought I just had to follow the nurse's suggestion of applesauce. But now, I found it goes perfectly in peanut butter and jelly sandwiches.

She also likes "Yum Yum Dophilous" but it's a pain because of the timing and glasses of water and so forth.
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#127 of 231 Old 12-14-2008, 10:36 AM
 
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Leila, thanks... I'm checking that out!

Here is a link to the company that has the Buddy Bear line for kids: http://renewlife.com/Category/Kids.aspx

And here is the page for the Gentle Lax:
http://renewlife.com/products/Buddy-...entle-Lax.aspx

My kids love the Buddy Bear Probiotic, too.
Thanks! Those look pretty good. Do you know what they use for flavoring? Ie, sugar or artificial sweeteners? I'll look around on the site and see if I can figure it out. I've been hoping to find a mag supplement DD would take.

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#128 of 231 Old 12-14-2008, 11:54 AM - Thread Starter
 
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I was researching for babygrant and found this:

http://www.gastro.org/wmspage.cfm?parm1=687

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#129 of 231 Old 12-14-2008, 12:00 PM - Thread Starter
 
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This section is on Probotics.

http://www.gastro.org/wmspage.cfm?parm1=5617

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#130 of 231 Old 12-14-2008, 12:23 PM
 
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My dd's pediatric gastroenterologist recommended adding Culturelle, and we have had wonderful results with it. At first I had a really hard time hiding it because I thought I just had to follow the nurse's suggestion of applesauce. But now, I found it goes perfectly in peanut butter and jelly sandwiches.
I'm looking into the Culturelle. It sounds like a great product. I wonder if it would be a problem to add it in the same drink I add the Miralax to. What do you think?


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Thanks! Those look pretty good. Do you know what they use for flavoring? Ie, sugar or artificial sweeteners? I'll look around on the site and see if I can figure it out. I've been hoping to find a mag supplement DD would take.
It's organic cane juice extract. Under each product image, you can click on "supplement facts" to see the nutritional info.
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#131 of 231 Old 12-14-2008, 12:29 PM
 
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I need to figure out how to subscribe to a thread. I have an eight-year-old with bowel issues. He won't have a movement for days and when it finally happens, he doesn't feel it until it's too late. Really embarrassing for a third-grader, poor thing. He does have some control over himself, though, because he can usually prevent this from happening at school.

I have two big bottles of Miralax sitting on top of my fridge but feel hesitant about starting it. We will be traveling over the holidays to the land of fried-food, and my already picky eater will make himself worse, so I'd best bust out the Miralax and get things started.

I have IBS-C (constipation) and I have to say, bananas are my savior. IME, they are no binding, they have the correct form of fiber (soluble) to keep things flowing smoothly. Water-soluble fiber works beautifully on both constipation and diarrhea. I use the acacia powder at helpforibs.com with excellent results. So much better than the commercial fiber supplements!

Anyway, if anything, this thread proves that there is no "one size fits all" remedy for these things.

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#132 of 231 Old 12-14-2008, 01:11 PM
 
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Pumping twice at work was getting a bit uncomfortable with certain coworkers . . .
It sounds like pumping once a day is getting uncomfortable for your daughter! I'm sorry that you're in a situation where you have a conflict in meeting everyone's needs. I hope that you are able to find a way to do what you need to do for your daughter.
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#133 of 231 Old 12-14-2008, 01:26 PM - Thread Starter
 
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Anyway, if anything, this thread proves that there is no "one size fits all" remedy for these things.

Thats right! For alot of us its trial and error on what will and won't work.

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#134 of 231 Old 12-14-2008, 02:45 PM
 
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So... what do you think is less problematic for a bottlefed baby? Miralax or glyercerine suppositories. We've been dialing back the Miralax cause things got too soft. But now I'm having to use a suppository every night to make him go. They don't even dissolve - it's just like a cue to make him go. His stool is formed but soft. It seems to me that the suppositories are probably less damaging than Miralax, but I just wanted to take on some other opinions.
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#135 of 231 Old 12-14-2008, 03:58 PM
 
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Can I join?

I had to take my 2.5 year old DD to urgent care on Thursday night as she hadn't had a BM in 5 days. She was so uncomfortable, poor thing, kept crying in between bouts of holding it in. The dr got some of it out with her finger and then gave her an enema. She did a baseball-sized hard poo in the urgent care office and then the rest came out in her sleep (she's still in diapers) and it was A LOT. The dr prescribed Lactulose and said to give her suppositories every day for a few days to keep things moving.

She looked so skinny on friday morning and when I did up her jeans they were loose. I can't imagine how she can hold on for that long.

She's had trouble ever since she started solids but we've always been able to get it under control with diet (no bananas, no eggs!) or a short course of lactulose. She was also on a homeopathic remedy that worked really well. We've just moved from the UK to the US and had been living in temporary housing and then in our permanent house but with no furniture (it only came yesterday.) No wonder she's stressed, poor thing.

She won't let me change her nappy now because of the suppositories, it has to be daddy, and she keeps talking about 'that lady that hurted my bottom.'

We've told her that we've given her medicine so that her poos won't hurt when they come out but how do you change the ingrained habits of a 2 year old? Her first instinct when she has to go is to hold it, not push it out.
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#136 of 231 Old 12-14-2008, 04:14 PM
 
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she keeps talking about 'that lady that hurted my bottom.'
Oh, poor thing! ((hugs))
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#137 of 231 Old 12-14-2008, 04:21 PM
 
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So... what do you think is less problematic for a bottlefed baby? Miralax or glyercerine suppositories. We've been dialing back the Miralax cause things got too soft. But now I'm having to use a suppository every night to make him go. They don't even dissolve - it's just like a cue to make him go. His stool is formed but soft. It seems to me that the suppositories are probably less damaging than Miralax, but I just wanted to take on some other opinions.
This is my thinking. Something that is mainly external should cause less damage over the long term vs. something systemic. Especially with a baby, who is not as aware of their body's cues and may need outside assistance. You are correct that the suppositories need not dissolve to do their job. But, if it still takes 10-15 + minutes to work, then you still need the suppository. However, if it happens right away, then you might just try lubing up your finger or a rectal thermometer to stimulate the area. Just experiment to see if that works better.

Also, if you put him in the "classic EC position" (grasping his thighs with your body behind his) after using the stimulation, the positioning may help him, as well as conditioning him to associate that position with having a bowel movement. Then you may be able to wean him from the stimulation, but cue him for a poop just by holding him in that position. (Added side benefit is you may be able to save some dipes in the process!)

ETA: The problem with using the suppositories with older children is that they are more aware. There was a time when I felt positively awful that I was violating her! But now she seems to be to the point that she understands why I need to do it, and it's almost her choice because she will decide to try to go poop by herself, and if she can't then she knows we have to use a suppository to help her get the poop out.

If his stool is soft then it sounds like you're on the right track!

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#138 of 231 Old 12-14-2008, 05:07 PM
 
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So... what do you think is less problematic for a bottlefed baby? Miralax or glyercerine suppositories. We've been dialing back the Miralax cause things got too soft. But now I'm having to use a suppository every night to make him go. They don't even dissolve - it's just like a cue to make him go. His stool is formed but soft. It seems to me that the suppositories are probably less damaging than Miralax, but I just wanted to take on some other opinions.
I think it depends on how your child responds to the suppositories. I think the use of the suppositories has contributed to my ds's issues and have created trust issues between he and I which absolutely breaks my heart. I used to put ds in the tub to try to relax him enough to have a bowel movement. Doing this resulted in a 3 month period where he'd refuse to enter the bathroom . Bathing him became a horrible ordeal.

Using a suppository is an absolute last resport here. It guarentees at least 20 minutes of crazed shrieking, trauma and upset. It works, but the consequences suck. In our situation, suppositories are much more damaging than Miralax. Probably not physically, but definitely emotionally and psychologically.

If the suppositories are working well for him and he's not showing signs of distress, I say do what he seems to respond to best.

Mama to Thing 1 and Thing 2.
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#139 of 231 Old 12-14-2008, 07:22 PM
 
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Thanks for the input! Yeah, he isn't aware enough *yet* to be bothered by the suppositories. He does go almost as soon as I pop one in. Sometimes I need to keep popping it back in for him to keep pushing and get out all the stool. I've done the pinky thing, but the suppositories have been seeming less messy, and they are smaller than my pinky. The suppository and curling him up seem to work great. Ooo, that gives me hope that eventually the position alone will be the cue!
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#140 of 231 Old 12-14-2008, 08:41 PM
 
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My daughter is 6 months old. We have had to stimulte her to have a bowel movement since she was about two weeks old. We have tried miralax, karo, prune juice, pear juice, Milk of Magnesia, glycerin suppositories, and enemas.

Right now we use strictly suppositories and enemas when it is bad. We stimulate her on a daily basis. In order to keep her stool soft and because she has reflux, we add "Thick It" to her bottles and her food. We also have to push her legs back so that she can push against our hands to have a bowel movement.

We stuck with the suppositories and the enemas, because nothing else worked for her. We were able to induce diareaha in her, but she would not relieve herself of the stool it would just sit in her until we stimulated her, and then it would come out like water.

It has been very frustrating for us. We have taken her to a gastroenterologist who tried to help us, and even had a retal biopsy done to check for Hirschprungs disease. Her biopsy came back normal...so no Hirschprungs disease. The GI doctor became stumped. We even tried giving her charcoal at one point to help with the constipation (www.coliccalm.com).

It finally got to a point where I was getting worked up and worried about her, so I asked my pediatrician if we could take her to a nuerologist to make sure everything was ok. Pediatrician agreed, we went, and....now we are waiting to have an MRI and Bran Scan done of my daughter. The nuerologist believes that she has a tethered cord, and that could be causing her bowel issues. We will know for sure in two weeks.

I just wanted to pass along this info to all of you out there, incase it might help someone.
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#141 of 231 Old 12-15-2008, 02:23 PM
 
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First trip to ped gi tomorrow, wish us luck!
My dd has really taken a turn for the worse in the last three weeks since I went to our family practice doc to get the referral. This has gone beyond constipation and she is now having definite malabsorption issues. I am honestly suspecting celiacs.

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#142 of 231 Old 12-15-2008, 06:19 PM
 
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Good luck..

Hope you have more luck with the ped GI that we did.

I think that we are just going to end up going back to our gp... at least he agreed that we want to figure out what is going on. The gi docs, just want to put him on laxitives, and while that does make DS feel better, it doesn't give us the answer as to why this is happening in the first place.

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#143 of 231 Old 12-15-2008, 08:18 PM - Thread Starter
 
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Yep, thats me. We have Spinal Defects Clinic on Wednesday and I can't wait. Hubby is going with us! : So I can stop listening is complaining about me not asking the right questions. Now he can see what its like.

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#144 of 231 Old 12-16-2008, 12:39 PM
 
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Just an aside - I wish our hospital also called it spinal defects clinic instead of Spina Bifida clinic. How much better if people who are supposed to know better would acknowledge that not all spinal defects are SB. But then, maybe I just be happy that at least they no longer call it the Hospital for Crippled Children (which is still on some of the older signs.)

On a happier note, we're not dealing with celiac disease, but still struggling to determine the cause of the malabsorbtion. It make take years, but we'll figure it out.
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#145 of 231 Old 12-16-2008, 01:35 PM
 
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The testing for Celiacs is notoriously poor, because the only really good lab doesn't accept insurance. The nurse told me this, not the Dr, and not very accurate when a child is under 5 especially if they are still nursing.
The Dr at our childrens hosp pretty much dumped us off, the 2 nurse practioners recomended that we have DS retested for Celiacs in a year or two, and they want us to look at a behavioral specialist, and even gave us a reference... in regards to his withholding.

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#146 of 231 Old 12-16-2008, 07:51 PM
 
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Well, our appointment went well. The doctor was supportive of my concerns.
He ordered
Blood work: CBC, RAST for top 5, Celiac panel
Stool test: Parasites, WBC, and fat
Barium enema

I spent quite a bit of time on celiac.com reading about celiacs and it fits my dd to a T. What led me to that was seeing a picture of the rash associated with celiacs when I was researching a different issue. My dh has had a rash that looks exactly like dermititis herpetiformis (sp?) on and off for the last 6-8months. Of course, it is gone right now so I can't make him go get a biopsy on it. He also had quite a few symptoms of celiacs as a child like short stature, unexplained seizures, lactose intolerance. His father was adopted so we don't know any medical history for that part of his family. I am not placing all bets on the bloodwork, by any means. I would prefer to have a diagnosis, as I think that just makes life easier in "proving" that she really can't have gluten, but if we don't get it, we will still be cutting gluten for a trial. I have to try it. We have nothing to lose and everything to gain. She lost a lb in the last 2 weeks, and while that is not desperate, I probably lost 4 or 5 lbs because she is nursing so much. Anyway, I will certainly be anxious for answers that I pray I will have, at least some guidance in some direction.

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#147 of 231 Old 12-17-2008, 10:59 AM
 
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Well, we haven't had a poo since Saturday now. I can't just sneak the suppositories in, she's on to me. Every diaper change she says, 'just wipe please.' She has also asked me not to hurt her baby sister's bottom.

Last night I told her she had to have the soppository and she just screamed and screamed but let me put it in. But even with that and the lactulose she is still not pooping. She's been eating normally so what is going on? Can her bowel have been damaged?

We don't have a pediatrician here yet so I suppose it'll be another trip to urgent care tomorrow. I just don't know what to do anymore.
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#148 of 231 Old 12-17-2008, 01:42 PM
 
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Originally Posted by alfabetsoup View Post
Well, we haven't had a poo since Saturday now. I can't just sneak the suppositories in, she's on to me. Every diaper change she says, 'just wipe please.' She has also asked me not to hurt her baby sister's bottom.

Last night I told her she had to have the soppository and she just screamed and screamed but let me put it in. But even with that and the lactulose she is still not pooping. She's been eating normally so what is going on? Can her bowel have been damaged?

We don't have a pediatrician here yet so I suppose it'll be another trip to urgent care tomorrow. I just don't know what to do anymore.

Not pooping even with the suppository? yikes My DS didn't poop immediately, it took like 3 hours. It is amazing how much their bowels can hold when stretched out, our Dr gave me an actual laxative to give ds 2x a week, to make sure things are moving along.

C wife to J, Mom to B, C and Jjumpers.gif Iblahblah.gif, and Pbabyf.gif

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#149 of 231 Old 12-17-2008, 03:36 PM
 
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Originally Posted by alfabetsoup View Post
Well, we haven't had a poo since Saturday now. I can't just sneak the suppositories in, she's on to me. Every diaper change she says, 'just wipe please.' She has also asked me not to hurt her baby sister's bottom.

Last night I told her she had to have the soppository and she just screamed and screamed but let me put it in. But even with that and the lactulose she is still not pooping. She's been eating normally so what is going on? Can her bowel have been damaged?

We don't have a pediatrician here yet so I suppose it'll be another trip to urgent care tomorrow. I just don't know what to do anymore.
Yes, it can take a while but if it doesn't work itself out by the end of the day I would give a liquid glycerin BabyLax.

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#150 of 231 Old 12-17-2008, 09:56 PM - Thread Starter
 
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Its been a long day and I am wiped out.

Anyway, I posted a seperate thread on Gabrielle's leg length disprency. Yikes, its nearly an inch difference.

She did have a plate x-ray of her belly. Guess what? she is still considered moderately constipated. So the plan is to cut out the Miralax and work strictly with eating fiber/water and cone enemas. Then over the next couple of weeks we will see if that changes the stuff we are getting out of her. We may or may not have another x-ray the end of January. We are going to be in KC at KU and could easily run over to Children's and have it done. But we (us and the clinic) are trying to avoid another x-ray so soon.

If this doesn't work, I am not sure what the hell we are going to do. You guys we are still in the clean out stage! Its been months (I will have to figure out when we started with the glycerine enemas).

Anne, Mama to Conner 2/27/04 blahblah.gif  Gabrielle 2/6/06 W/LMC-TCS, Neurogenic Bladder, AFO & KAFO wearer, Neurogenic Bowel energy.gif & Delaney 5/12/08 mischievous.gif &  Beethoven cat.gif& Gizmo cat.gif

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