I've never met another kid with the same issues as my own son!
He had IU Stroke(s), with resulting damage in right front parietal lobe. (I am not a drug user, btw. I had 2 serious illnesses w/in the first 14 weeks of pregnancy, and that *may* have been the cause of his strokes, but we'll never know ). He also has Microcephaly.
Here's what I can tell you. ...
we didnt discover the strokes til we had an MRI done of his brain at 2.5 yrs. Suddenly we find out he has a hole in his brain. Our neuro was shocked. The type of injury we have in the R.P lobe deals with vision, not motor skills. So we're watching his vision. When he's older, a neuropsychologist will test his vision with a special program to see if there's any deep problem like depth perception, etc. Until then, he wears glasses witha bit of farsightedness correction.
As for delays, he was VERY delayed as a baby. He has major GI issues that dont seem to be related to the Micro/strokes, and he also has a chromosomal abnormality.
He's still considered "undiagnosed", because we just haven't been able to find the syndrome or disorder that encompasses all his problems. we've even stumped doctors at Kennedy Krieger at Johns Hopkins in Baltimore.
So, as for his delays, it will really depend. My ds is considered high functioning. That could change if his darn head doesnt start to grow. But until then, he gets a few hrs of therapy a week, and goes to SN preschool 3 mornings a week. He gets therapy there as well as private therapy.
He is a fairly normal kid. At 3.5 he can walk, run, jump, play, talk, try to sing, interact, be sociable (almost too sociable!), and has zero social qualms (which is fairly dangerous., he'd go with strangers!)
So its not ALL doom and gloom. If you didnt know his history and see his feeding tube, small head, you'd really think he's totally typical.
I'd say do some therapy, and get that MRI done, and then go from there. It sounds like he's doing much better than my DS did as an infant, and there is no way to make a totally accurate prediction on the future.
I do know that in reality, microcephaly can really cause things to deteriorate later on, but I'm living in a fairly happy bubble right now with my ds. He is doing REALLY well.
Hugs to you, and for loving that sweet boy! PM me or email me if you like.