My sweetie is sick - Page 4 - Mothering Forums

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Old 06-13-2009, 06:49 AM - Thread Starter
 
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Originally Posted by UptownZoo View Post
Oh, Pixie! I haven't been to this board in awhile but once I started reading your story, I had to finish. Now I'm late for work, but I'm so glad I read all the way through to the wonderful news at the end. What a terrifying experience you've had these past few weeks. I'm so very, very happy that she's doing so much better and that you will soon be home.

Many prayers for continued recovery.
Oh gosh, this touched me, late for work because you had to read through. I might be easily touched but it almost brought tears to my eyes.
Thank you!

We didn't go home yesterday, too many seizures that looked bad. But, her doc is coming by any minute now, and I'm thinking we're going home today. He's not working today, he just had to come in and see us anyway, he is so amazing.
If he agrees, we're going home!
She hasn't had any seizures yet today, not one, that is just brilliant.
I'm hoping it's her diet kicking in again, she's been stable on J-feeds now.

-pixie, my dear, and (A-88), N-98, Littlest-06/00-08/00, J-03 & Little Miss Cotton Ball Button-03 (SN), S-05, Hope-loss 09/09, Bean-loss 04/10, and littlePopcorn due feb. 8th -11.
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Old 06-13-2009, 10:37 PM
 
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My internet has been down for days, so I am so glad to hear that she is doing so well. I hope you guys are able to go home soon! Still sending healing thoughts and prayers!
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Old 06-15-2009, 09:12 AM - Thread Starter
 
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Thank you!
We went home on saturday!
It's very nice to be home. And my little miss cotton ball button is thriving at home too.
We have a little more time on the antibiotics before we go back for the new chest CT, I don't think that'll be until next week.
Still stable on J-feeds, and the central line is working excellent still too.
She can however not go without o2 at all, her SATS drop very fast, and wont for that matter. She's never been like this before, but now she refuses to take her o2 of at all. She get's a fit every morning and evening when we take it off to dress/undress quickly.
Her seizure rate is down though! I hope that's the diet and that it will stay like this.
She still takes a nap during the day, and she gets tired very fast.
But we are enjoying the time together at home!

-pixie, my dear, and (A-88), N-98, Littlest-06/00-08/00, J-03 & Little Miss Cotton Ball Button-03 (SN), S-05, Hope-loss 09/09, Bean-loss 04/10, and littlePopcorn due feb. 8th -11.
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Old 06-15-2009, 12:42 PM
 
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Yay for going home!! That is great news. I hope she continues to improve.
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