Join Date: Apr 2008
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My son had them as an infant/toddler. He had one very obvious/typical non-absence seizure when he was 13mo and then had absence seizures probably for another year or two. And honestly, if not for having them caught on film I'm not sure they'd have known this for sure because they didn't turn up on a 1-hour nor a 48-hour EEG. But they did dx him with Atypical General Epilepsy.
Because they didn't get it on EEG, we opted not to medicate. Especially since they did the 2-day (or maybe it was 3 days?). Of course, they gave the stern warning that "the next one could leave him brain damaged" but we were SO uncomfortable with the whole thing with NOTHING showing up on the EEGs--ya know? I'm not sure how we'd have handled it if the results had been different.
FWIW, we haven't seen any of them in a few years. Of course, we also did have some major food irritants removed that also profoundly impacted his overall development. And knowing that Hopkins has a diet to control seizures, I DO often wonder if it was related at all. He does also take fish oil daily for the last 2 years. I don't recall if they stopped before or after that.
We have considered taking him for another EEG as he recently started falling/tripping at strange times lately, but I'm going to see if it lasts.
Not sure if this helps at all.
There is a diet for seizure control- it's called the ketogenic diet. It's not at all just like cutting intolerances and dyes, though- it's a major diet change that mimics starvation to make the body burn fat. It's the only diet I've heard of with results- and it's always suggested after medication doesn't work because the diet itself can be dangerous. I haven't really seen any research indicating that any other dietary supplements or changes impact seizures.
Mommy to my amazing 6 yr old dd, we , and 27 weeks and have been sick the whole time so far, grrrrr!!!!!!!