Join Date: Oct 2004
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Thank you for the replies! It's nice to have company for the wait, although sorry you are both going through the torture as well ... tonight we are staying up for a sleep-deprived EEG ... why is it I always feel more tired than my kids appear with these things?? We went through all of this with DS1, too, but it sure doesn't get easier. But the genetic stuff wasn't so stressful in that he is adopted, so it didn't have the same implications for extended family if it had been a positive result. Oddly, though DS2 seems to fit the fragile X profile almost perfectly now (other than what I mentioned above), I had never even considered it for him until the neuro brought it up ... DS1 was tested a couple of years ago and after that I never gave it a second thought, although DS2 did NOT appear to even remotely fit at that time. I suppose that's why.
Thanks for the support also Uptownzoo - it's nice to know others have made it through the wait and survived, lol. =)