Join Date: Jun 2007
Location: Dayton, Oh WPAFB
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Connor saw his pulmo Friday. We discussed how he has so many respiratory symptoms when sick, and also how sudden changes in temperature are causing flare-ups. Several times recently his school has had to give him his inhaler because he goes from the warm bus to the cold outside air, then back into the warm classroom, and just that much exposure to the cold air triggers bronchospasms.
So the pulmo wants us to give him his inhaler right before sending him to school to try to ward off the spasms before they hit. He also gave us samples of chewable Singulair (the reason for the samples was just to try through the weekend to make sure that he will chew them, he does, so I'll call on Monday to get a script). Does anyone here take Singulair? The pulmo went into a long explanation of how it works (he's very obviously an Aspie, and sometimes when he gets into explanations like that, he stares off into space and starts scripting or as if he's reading from a textbook, and he just goes on and on...I really need to tape record him because I usually only understand every 3rd or 4th word!) I haven't spent any time researching it myself yet, so I'm just look for experiences.
We talked about using a nebulizer vs an inhaler, if this preventive use of the inhaler doesn't work, then we might switch to the nebulizer.
We also talked about prophylactic abx, it's been a constant discussion because of his immune deficiency and underlying pulmonary issues. Because of his diffuse malacia, the pulmo suspects that he might be chronically colonized with bacteria in his lungs, which is why every little illness goes respiratory quickly. A daily abx might help prevent that, but could also cause other issues (yeast overgrowth, resistant infections, etc) Because he's always come through illnesses easily enough (has only been hospitalized due to illness twice, most have been easy to treat at home) we haven't done it. Right now we're still going to hold off, but it's constantly on the radar as the next step.
Mommy to BigBoy Ian (3-17-05) ; LittleBoy Connor (3-3-07) (DiGeorge/VCFS):; BabyBoy Gavin (10-3-09) x3 AngelBaby (1-7-06)