Join Date: Jul 2009
Location: New England
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Anne, Mama to Conner 2/27/04 Gabrielle 2/6/06 W/LMC-TCS, Neurogenic Bladder, AFO & KAFO wearer, Neurogenic Bowel & Delaney 5/12/08 & Beethoven & Gizmo
I would discuss discharge planning with the PT. If the visits have only been monthly, then it's likely that they have been mostly monitoring his development, and relying mainly on the weekly OT and home exercise programs for progress with gross motor development.
I would ask for a little more guidance on when the PT would expect to see him walking independently. I'd also ask for a progression of exercises to work on his low tone and core muscle strengthening at home. Has the PT provided you with ideas for exercise balls or pool/swimming or other things to keep his exercises fun and interesting for him?
Rather than a complete discharge, you could request a re-check in 3 months, and again in 6 months. This may avoid having to go through the referral/waiting list process if you find he doesn't progress to walking and he needs more intensive PT later on.
In some jurisdictions, there is a huge waiting list for PT, and they are often under some pressure to discharge early. OTOH, the PT may see that he is progressing very well, and any lingering motor issues will be addressed by the weekly OT.
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