Join Date: Jun 2007
Location: Dayton, Oh WPAFB
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I quickly re-looked up periactin to try to remember why I was told it wasn't good for 22q kids. It is an antihistamine, with a side effect of increasing hunger. I remember asking the GI how it increased hunger, she said something about it being neurological, I said "well, you know that 22q kids can have weird responses to meds, particularly behavioral meds, hormones, and steroids" and she said "oh...well I don't know..." and then decided not to consider the med any longer. I mentioned it to another 22q mom I know and she said that her GI (different hospital) said he wouldn't prescribe that drug to 22q kids without consulting with the 22q center at CHOP or calling Dr Shprintzen directly.
I never looked into it further because my Connor's weight gain issues aren't related to lack of eating, he eats, he eats a lot, he just doesn't gain weight or grow taller. At least, not at a "normal" pace.
Mommy to BigBoy Ian (3-17-05) ; LittleBoy Connor (3-3-07) (DiGeorge/VCFS):; BabyBoy Gavin (10-3-09) x3 AngelBaby (1-7-06)