I am a soon to be adoptive mother of two special needs twin boys. They are a joy but quite a challenge. They are 16 mo. old but function more at 6 mo. old.
Squeaky has chronic lung disease, hypotonia, laryngomalacia, a G-J tube, apnea and bi-lateral hearing loss and probably a few other diagnosis's that I left out. He is on oxygen a lot during the day and always at night. He gets five breathing treatments a day. He is "messed" with a lot, medically. And the hearing aids. The vain of my existence. He is NOT tolerating them well at all. The buzz a lot which the audiologist says is normal when his head rubs against stuff - but he i has low tone and lays a lot of the time. They fall out ALL of the time. He hates me messing with his ears and putting them back in. When they are in, he is super fussy. We keep going back to the audiologist for adjustments, but nothing has worked thus far. Honestly, on a good day, he wears them for a couple of hours. Most days, he doesn't wear them. He's been sick a lot recently and when he is sick, I don't even mess with it as he is fussy enough.
I am at a loss on how to proceed with him. Any ideas? As an attachment parenting type of mom, I really don't know what is the loving approach to dealing with it. We are teaching him sign language.
Part of me just wants to nix the hearing aids until we get him medically more stable. Would this be wrong of me? I know he's already behind in terms of communication.
I also have to take care of his special needs brother (who is a lot like his brother medically, but more developmentally behind cognitively) and my gifted five year old who I am attempting to home school as she wants to learn everything right now. It seems like I spend way too much time trying to keep in hearing aids