I know there are some of you out there, although I haven't seen any posts for a while. DS, who is now 10 months, was born with a cleft soft palate. We have struggled since the beginning to keep weight on him and fatten his little body up. At times we have questioned his development but for the most part he is on time with his milestones. He just had surgery to fix his cleft and things up looking up. I don't really know what I'm searching for by posting this, I think I am just looking for some support.
A cleft of the soft palate is not nearly as intense as a cleft hard palate and/or lip but it has brought on so many challenges in his little life so far. What are your experiences with your little ones who were born with clefts? Did you have any developmental issues? I am having a hard time deciphering what is delayed because of poor weight gain (he is 10 months and weighs around 16lbs) or if there is something more going on. He still doesn't use his pincher grasp, is this because we haven't really focused on bite sized food? He still has no teeth! Is this a natural response to the cleft? Any shared experiences would be helpful!