Is there a thread for moms with children born with microcephaly? - Mothering Forums

Thread Tools
#1 of 6 Old 05-25-2010, 03:17 PM - Thread Starter
Necole's Avatar
Join Date: May 2010
Location: Strong, Arkansas
Posts: 2
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I am looking to talk with someone who has a child/children with microcephaly. I just need a little support, information, and a sense that I'm not in this alone because my husband is in denial and has been for nearly 2 years since our daughter was born.
Necole is offline  
Sponsored Links
#2 of 6 Old 06-01-2010, 12:04 PM
AFWife's Avatar
Join Date: Aug 2008
Location: Texas
Posts: 5,083
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Have you tried the Special Needs forum? I'm not dealing with this but I wanted to respond and try to help.

Kas (24), Helpmeet to Stefan (25), Mom to Franklin Gaudelio 4/15/09, Jonathan Boswell 1/2/11
AFWife is offline  
#3 of 6 Old 06-10-2010, 01:50 PM
EarthyMamaofDaisy's Avatar
Join Date: Aug 2006
Location: in the woods of NH
Posts: 590
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
My son has microcephaly. The back of his head is quite flat and doesn't stick out like most kids, but his face is close to proportionate to the rest of his body. He has a super rare chromosome defect (he is the 10th reported case). So far the only real annoyance is that it's hard to find winter hats to fit him.
mrsrivera87 likes this.

treehugger.gif mama to flower.gif and stillheart.gif and baby.gif

femalesling.GIF  bfinfant.gif  familybed1.gif

EarthyMamaofDaisy is offline  
#4 of 6 Old 07-15-2010, 10:38 AM
almadianna's Avatar
Join Date: Jul 2006
Location: *clicks heels* There is no place like Stockholm
Posts: 5,859
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
moved to special needs.

earth.gif trottin', pole dancing, Norway and Sweden lovin' , hippie.gif,WOHM Kiddos born waterbirth.jpg 12/11/06 and 08/09/08 
belly.gif with #3 puke.gif EDD:01/2013 yikes2.gif So in love loveeyes.gif with my sweet Swede 2twins.gif and my bonus-son 10/25/98 carrot.gif


almadianna is offline  
#5 of 6 Old 07-15-2010, 11:56 PM
mekat's Avatar
Join Date: May 2005
Posts: 143
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I have a child with micro. We haven't done a head circ measurement recently but he will be 6yo next month and hats designed for six month olds are a tiny bit big on him so his head is extremely small. DS has a whole laundry list of medical diagnoses resulting from two genetic syndromes a result of an unbalanced translocation between chromosome 4&7. Did your child form that way in utero (like my son) or was it a result of brain damage? My son's is from his genetic conditions and because the brain and eyes form around the same time the same genetic issue that made the brain underdevelop also made the eyes underdevelop so he has bilateral optic nerve colobomas, retinal problems at birth that have seemed to be cleared up (or misdiagnosed unsure of which), significantly far sighted and bilateral microopthalmia (small eyes). Yes, my son has an odd shaped head as well, neurology said the odd shape is quite common in micro kids. I wish I could give you more concrete info but each micro kid is different, there are some who have no delays or disabilities at all down to those who are severely impaired. My son is somewhere in the middle of that range but definitely closer to the severely impaired side.
mekat is offline  
#6 of 6 Old 08-09-2013, 04:45 PM
mrsrivera87's Avatar
Join Date: Aug 2013
Location: California
Posts: 8
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)

Hi. How is your son as far as his development? If you don't mind me asking :) Thank you

mrsrivera87 is offline  

User Tag List

Thread Tools
Show Printable Version Show Printable Version
Email this Page Email this Page

Posting Rules  
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Online Users: 14,674

28 members and 14,646 guests
agentofchaos , awill , BirthFree , cheeseRjedi , ClothBaby5 , Deborah , girlspn , greenemami , IsaFrench , katelove , Katherine73 , Kelleybug , Lolita2345 , manyhatsmom , moominmamma , Motherof3already , MountainMamaGC , NaturallyKait , RollerCoasterMama , samaxtics , SPrada , Tara 1st Timer , verticalscope
Most users ever online was 449,755, 06-25-2014 at 12:21 PM.