Join Date: Jun 2006
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no, i have been educating myself, that's why i have been researchiing so much. unfortunatly there isn't that much research done in the US, cause for the most part, diet as a causal factor isn't really respected here.
basically i have been wondering if this is as common as i think it is, did others find a nuerologist who supported this route?
dd had a blood test in may, which was negative, however- it is often negative in children cause they don't produce enough of an immune response to be picked up by the tests- the only true tests are diet challenges and intestinal biopsy. diet challenges are fine with me.
i also wanted to know for those who do have gluten caused epilepsy-how long did it take for a reaction? a day? a few minutes? as you said ericswifey- it was within minutes, for us it was about 10 hours- long enough for digestion and immune response i think.
thanks for your posts.
Okay, this isn't exactly the kind of scientific data your doctor might care about, but there was an episode of "Mystery Diagnosis" on the Discovery Health channel where a little boy had celiac, and it caused seizures (as well as other developmental delays). If it were my child, I'd certainly think it worth a try to go gluten free and see if that helps.
SAHM to my beautiful, joyful, silent D (9/90) and exuberant, charismatic, not-so-silent S (11/07) and our precious little chickpea DD born 3/11 ,+7 animals. Partner to my lovely "M.O". Trying to live with intention.