Any CF Mamas out there? - Mothering Forums

Thread Tools
#1 of 3 Old 10-29-2010, 12:56 AM - Thread Starter
sncmom's Avatar
Join Date: Apr 2009
Location: dreaming of SF
Posts: 112
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
My neice was born 2 weeks ago and has been in the NICU since birth with a meconium ileus, now has a colostomy bag. Her genetic testing just came back positive for cystic fibrosis today. I am devastated, as is my sister. Anyone BTDT with remotely positive stories?

Mom to DD1 (Feb 2006) and DD2 (June 2008) with HIE, CP, dev delays and reflux
sncmom is offline  
Sponsored Links
#2 of 3 Old 10-29-2010, 12:34 PM
askew's Avatar
Join Date: Jun 2006
Location: Villa Incognito
Posts: 2,526
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 2 Post(s)
I know there is at least one mama on here with a daughter with CF and they are doing well. I know there have been a lot of strides made in treating CF and the life expectance has increased a whole lot. Hug hugs to your sister and your whole family navigating.

ETA- here is a link
askew is offline  
#3 of 3 Old 11-15-2010, 09:31 PM
XanaduMama's Avatar
Join Date: May 2006
Location: SE PDX
Posts: 2,826
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)

Just wanted to say that I had a childhood friend with CF; she's now my age (36) and doing pretty well, though still has many health issues. All the very best to your niece and your family

read.gifSarah ~ wild.gifds X 12/05 ~ flower.gifdd E 3/08 h20homebirth.gif  ~  stork-suprise.gif 7/12 dizzy.gif

XanaduMama is offline  

User Tag List

Thread Tools
Show Printable Version Show Printable Version
Email this Page Email this Page

Posting Rules  
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Online Users: 10,143

11 members and 10,132 guests
Deborah , ELTAZ , jamesmorrow , KangaRu , katelove , manyhatsmom , redsally , Skippy918 , thefragile7393
Most users ever online was 449,755, 06-25-2014 at 12:21 PM.