Any CF Mamas out there? - Mothering Forums

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#1 of 3 Old 10-29-2010, 12:56 AM - Thread Starter
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My neice was born 2 weeks ago and has been in the NICU since birth with a meconium ileus, now has a colostomy bag. Her genetic testing just came back positive for cystic fibrosis today. I am devastated, as is my sister. Anyone BTDT with remotely positive stories?

Mom to DD1 (Feb 2006) and DD2 (June 2008) with HIE, CP, dev delays and reflux
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#2 of 3 Old 10-29-2010, 12:34 PM
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I know there is at least one mama on here with a daughter with CF and they are doing well. I know there have been a lot of strides made in treating CF and the life expectance has increased a whole lot. Hug hugs to your sister and your whole family navigating.

ETA- here is a link
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#3 of 3 Old 11-15-2010, 09:31 PM
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Just wanted to say that I had a childhood friend with CF; she's now my age (36) and doing pretty well, though still has many health issues. All the very best to your niece and your family

read.gifSarah ~ wild.gifds X 12/05 ~ flower.gifdd E 3/08 h20homebirth.gif  ~  stork-suprise.gif 7/12 dizzy.gif

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