DS diagnosed with rare 2q32 chromosome deletion after genetics test.. - Page 2 - Mothering Forums
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#31 of 36 Old 02-02-2013, 07:58 AM
 
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Hey you all smile.gif long time no see x) i have now a facebook page called "2q32-2q33 microdeletion " for all of us ho have a child friend or other fam. Members ho have a rare syndrom smile.gif and you can find me on facebook Camilla Pettersen from norway smile.gif i made this facebook page becose of my son <3 and im tierd of not have any to talk with about his syndrom ... I hope to see you all on my facebook page smile.gif xoxo smile.gif
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#32 of 36 Old 02-05-2013, 07:49 PM
 
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Hello my son has a microdeletion on 2q31 & 2q32. I welcome you to visit my blog at http://legendsmom.wordpress.com. Its a work in progress; however I'm excited to meet all the parents and kids :)

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#33 of 36 Old 02-05-2013, 07:49 PM
 
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Hello my son has a microdeletion on 2q31 & 2q32. I welcome you to visit my blog at http://legendsmom.wordpress.com. Its a work in progress; however I'm excited to meet all the parents and kids :)
 

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#34 of 36 Old 02-05-2013, 09:54 PM
 
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hi i am so happy to chat with you, we have a grandaughter that has a 2q32&2q33 microdeletion chromosome syndrome, she is 8 1/2 years old, you can contact me on my e mail address peter.desa@hotmail.com also i am no fb ...    desa tod .  Hope to hear from you asap. 

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#35 of 36 Old 12-01-2013, 05:11 PM
 
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my daughter is 4 months old she has 2q32 is there a lifespan for these syndromes i would like to hear from someone who has dealt with this i dont know much about it i dont have anyone to talk to having a hard time dealing with this i was told by someone they only live to be 10 to 15 please tell me this is not true

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#36 of 36 Old 12-03-2013, 02:53 AM
 
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hi, my grandaughter has the same syndrome as your little girl, she is 9 years old, if you are on fb contact me on desa tod and we can chat and i will tell you about my grandaughter.  Hope to hear from you soon.   desa

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