Educate me about ADHD meds - Mothering Forums

Forum Jump: 
 
Thread Tools
#1 of 6 Old 08-23-2011, 05:56 PM - Thread Starter
 
Rose-Roget's Avatar
 
Join Date: May 2008
Posts: 1,500
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)

Hello all!  Ds is almost 7, starting 2nd grade.  He is extremely bright, but the report form school for years has been that he lacks focus, can be impulsive, and disrupts at times.  He is seen for private OT for SPD.  I've been resisting the ADHD label for a while, because I feel like his SPD results in ADHD "look alike" behaviors.  But then I consider that maybe that's the case for a lot of people, and maybe ADHD is just one presentation of SPD. 

 

I'm at a loss.  I have to work part time this year, and I have a 21 month old at home when I am not working; otherwise, I'm at the point that I would just pull him and homeschool him.  I, personally, am at my wit's end in terms of the stress it causes me to send him and dread the report home everyday - "can't focus, needed to tell him direction multiple times thoughout the day, didn't complete his work, had to work in another room/principal's office..."  I know he's not an easy kid to teach - believe me, I know!  But he's a good kid, and he means so well.

 

So now I'm looking at getting the ADHD dx for sure in order to get accommodations in school.  At this time, I'm not ready to take the medication leap.  He is incredibly sensitive to meds, and I worry a lot about the side effects on him.  In case we need to move that direction down the road, I want to become as educated as possible about the various drugs' effects, side effects, safety records, efficacy, etc.  Can anyone here help talk to me about meds that they have experience with - benefits (or, possibly, lack of), side effects, dosages, more- and less-controvertial meds, etc.?   I'd really appreciate some input as I consider the options ahead of us. 

Rose-Roget is offline  
#2 of 6 Old 08-23-2011, 07:38 PM
 
Jillie's Avatar
 
Join Date: May 2005
Posts: 684
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)

I'll be watching this as we may be going down this road as well.

Jillie is offline  
#3 of 6 Old 08-24-2011, 06:37 AM
 
Emmeline II's Avatar
 
Join Date: Feb 2006
Posts: 8,817
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)

 

I took ds to the children's hospital that had a behavior clinic that did a thorough evaluation for Aspergers, also SPD and ADHD; Ds is considered "possible Asperger's" at this point with a definite diagnosis of ADHD, SPD, and receptive language disorder. ADHD, SPD, and Asperger's share symptoms and can be co-morbid.

 

My son started medication at 6.5. First, Concerta at 3 different dosages, then Vyvanse at 2 dosages. He is doing well on the second med/second dose and tolerates medications well. Vyvanse tends to work for a wide range of people. The only med that I can think of as controversial is Strattera -- I think it was originally prescribed as an antidepressant but later found to have some effect on ADHD symptoms. It has a reputation for causing an increased risk of suicidal ideation in children and adolescents.

 

The Hows and Whys of ADHD Medication
http://www.additudemag.com/adhd/article/8673.html



A Full List of ADHD Medications

ADHD Stimulant Medications

 

_________________________________________________________________________________________________

 

 

http://www.webmd.com/add-adhd/guide/adhd-causes

Under IDEA/IEP, if your child has a disability that adversely affects educational performance, your child is entitled to an education that is designed to meet the child's unique needs and from which your child receives educational benefit.

 

A 504 is helping your child get the same education that everyone else is getting--more for a student that needs accommodations to help them learn (like sitting next to the teacher) or for behavior, and that they are not punished for things that they cannot control due to the ADHD (like needing to work standing up or not sit inside a group).

Key Differences Between Section 504, the ADA, and the IDEA.

 

(http://www.wrightslaw.com/info/sec504.summ.rights.htm)

 

Key Differences Between Section 504 and IDEA

(http://www.wrightslaw.com/howey/504.idea.htm)


Is a Child with ADD/ADHD Eligible for Special Education? - Wrightslaw

Wrightslaw - IEP FAQ

Helping Parents Secure ADHD School Accommodations: IEP & 504 Plans for ADD Children | ADDitude - ADHD & LD Adults and Children

Section 504 Online Introductory Tutorial

Sample 504 Plans - 504 Plan Templates and Suggested Accommodations

Sample 504 plans | Child & Adolescent Bipolar Foundation

 

Write Your Own Behavior Plan


Section 504 - Civil Rights Law, Protection from Discrimination ...

Wrightslaw

Parents as Experts

Special Education Law and Advocacy

Handling a Manifestation Determination Review

http://www.adhdnews.com/testforum/test886.htm

Crisis Management, Step-by-Step - Wrightslaw

Autism Speaks, Community, Family Services, Texas: Advocates

s504discipline.pdf (application/pdf Object)


CHADD Live | Home Page

CDC - ADHD, Symptoms and Diagnosis - NCBDDD


Wrightslaw: From Emotions to Advocacy, 2nd Edition (book)

Wrightslaw: From Emotions to Advocacy, 2nd Edition (book)

ADHD- Middle and High School, search
http://www.google.com/search?q=ADHD+middle+school&ie=utf-8&oe=utf-8&aq=t&rls=org.mozilla:en-US:official&client=firefox-a



~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

About: ADHD Hyperfocus | ADDitude - Attention Deficit Information ...

http://www.additudemag.com/adhd/article/1572-2.html

http://www.addinschool.com/elementary/socialskills.htm

 

Coach Your Child in Friendship Skills
http://add.about.com/

ADHD-Vision
http://www.add-adhd.org/

Adults with ADHD
http://add.about.com/od/treatmentoptions/a/Parents-ADHD.htm

 

 

 

 

 

 


"It should be a rule in all prophylactic work that no harm should ever be unnecessarily inflicted on a healthy person (Sir Graham Wilson, The Hazards of Immunization, 1967)."
Emmeline II is offline  
#4 of 6 Old 08-24-2011, 10:17 AM - Thread Starter
 
Rose-Roget's Avatar
 
Join Date: May 2008
Posts: 1,500
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)

Thanks so much for that information.  I'm and SLP, so I'm glad to have some understanding of the legalities, but it's really different to be on the other side of the table, so to speak.  At this time, he doesn't have a recognizable disabiltiy, unless I get the official ADHD dx which could open up doors for a 504 or such.  I do a LOT of coaching with him - friendship, anxiety, focus, expected behaviors.  I'm pretty drained.  I will look more closely at some of those links you provided - sounds like you have a wealth of resources!  I appreciate it!

Rose-Roget is offline  
#5 of 6 Old 08-24-2011, 01:12 PM
 
FarmerBeth's Avatar
 
Join Date: Mar 2011
Location: Northeastern Nova Scotia, Canada
Posts: 803
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)


Quote:
Originally Posted by Emmeline II View Post

 

I took ds to the children's hospital that had a behavior clinic that did a thorough evaluation for Aspergers, also SPD and ADHD; Ds is considered "possible Asperger's" at this point with a definite diagnosis of ADHD, SPD, and receptive language disorder. ADHD, SPD, and Asperger's share symptoms and can be co-morbid.

 

My son started medication at 6.5. First, Concerta at 3 different dosages, then Vyvanse at 2 dosages. He is doing well on the second med/second dose and tolerates medications well. Vyvanse tends to work for a wide range of people. The only med that I can think of as controversial is Strattera -- I think it was originally prescribed as an antidepressant but later found to have some effect on ADHD symptoms. It has a reputation for causing an increased risk of suicidal ideation in children and adolescents.

 

The Hows and Whys of ADHD Medication
http://www.additudemag.com/adhd/article/8673.html



A Full List of ADHD Medications

ADHD Stimulant Medications

 

_________________________________________________________________________________________________

 

 

http://www.webmd.com/add-adhd/guide/adhd-causes

Under IDEA/IEP, if your child has a disability that adversely affects educational performance, your child is entitled to an education that is designed to meet the child's unique needs and from which your child receives educational benefit.

 

A 504 is helping your child get the same education that everyone else is getting--more for a student that needs accommodations to help them learn (like sitting next to the teacher) or for behavior, and that they are not punished for things that they cannot control due to the ADHD (like needing to work standing up or not sit inside a group).

Key Differences Between Section 504, the ADA, and the IDEA.

 

(http://www.wrightslaw.com/info/sec504.summ.rights.htm)

 

Key Differences Between Section 504 and IDEA

(http://www.wrightslaw.com/howey/504.idea.htm)


Is a Child with ADD/ADHD Eligible for Special Education? - Wrightslaw

Wrightslaw - IEP FAQ

Helping Parents Secure ADHD School Accommodations: IEP & 504 Plans for ADD Children | ADDitude - ADHD & LD Adults and Children

Section 504 Online Introductory Tutorial

Sample 504 Plans - 504 Plan Templates and Suggested Accommodations

Sample 504 plans | Child & Adolescent Bipolar Foundation

 

Write Your Own Behavior Plan


Section 504 - Civil Rights Law, Protection from Discrimination ...

Wrightslaw

Parents as Experts

Special Education Law and Advocacy

Handling a Manifestation Determination Review

http://www.adhdnews.com/testforum/test886.htm

Crisis Management, Step-by-Step - Wrightslaw

Autism Speaks, Community, Family Services, Texas: Advocates

s504discipline.pdf (application/pdf Object)


CHADD Live | Home Page

CDC - ADHD, Symptoms and Diagnosis - NCBDDD


Wrightslaw: From Emotions to Advocacy, 2nd Edition (book)

Wrightslaw: From Emotions to Advocacy, 2nd Edition (book)

ADHD- Middle and High School, search
http://www.google.com/search?q=ADHD+middle+school&ie=utf-8&oe=utf-8&aq=t&rls=org.mozilla:en-US:official&client=firefox-a



~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

About: ADHD Hyperfocus | ADDitude - Attention Deficit Information ...

http://www.additudemag.com/adhd/article/1572-2.html

http://www.addinschool.com/elementary/socialskills.htm

 

Coach Your Child in Friendship Skills
http://add.about.com/

ADHD-Vision
http://www.add-adhd.org/

Adults with ADHD
http://add.about.com/od/treatmentoptions/a/Parents-ADHD.htm

 

 

 

 

 

 

 

Great resources, Emmeline.  I wanted to clarify about Straterra, which we had three years of experience of DS using it.  While the "controversial" elements are true, it's important to be aware that much of the studies are on the entire family of drugs that Straterra is related to, not specifically Straterra, and that the actual percentages of instances of suicidal thought are low.  There are very good links to studies provided by the drug company.  Straterra is a norepinephrine reuptake inhibitor, and chemically related to SSRI's (Selective Seratonin Reuptake Inhibitors) such as Paxil, Zoloft, etc.  All of these drugs can carry some risk of suicidal thought.  However, if a child has very significant co-morbid anxiety or tics (OP's child does not seem to be in this situation), use of stimulant medications can exacerbate thse problems.  Also, Straterra has some anti-anxiety benefit as well.  It is not the best for controlling more "hyperactive" symptoms, but it can work well with primarily inattentive ADHD.  In our case, DS was not able to thrive on stimulant medications, as the increased anxiety meant the possible benefits were pretty lost.  I know that stimulant medications work on a large number of children (and I know DS is not a typical case as he is also, at age 11, newly diagnosed with ASD), but I just wanted to point out that there is always a benefit vs risk ratio to consider with any medication, and that a child's unique physical and mental differences will affect it.
 

 

 


Busy keeping up with three children and an awful lot of chickens!

FarmerBeth is offline  
#6 of 6 Old 08-27-2011, 10:15 PM
 
karne's Avatar
 
Join Date: Jul 2005
Posts: 3,623
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)

OP, I wanted to comment on how exhausting it can be to work so hard to help your child when they are struggling.  I too, very much struggled with the idea of medication.  Both dh and I are professionals in areas that allow us to have lots of insight and management experience,,,,but it's not the same when you are the parent.  In our situation, my child was working so hard to maintain, and use all of the skills we were trying to help with, that he literally became physically exhausted.  The emotional toll on kids who work so hard to maintain themselves, can be quite dramatic.  At that point it was pretty clear that even though dh and I may not have been ready to trial a med., our child WAS.  That's where we had to get out of our own way, stop reading scare/judgemental stories, and get the help our child needed.

 

It's still a work in progress.  Medication seems to be making a positive difference in school, although we have taken the summer off.  Insomnia is a challenge we haven't quite got a hold of yet.

karne is offline  
Reply

Quick Reply
Message:
Drag and Drop File Upload
Drag files here to attach!
Upload Progress: 0
Options

Register Now

In order to be able to post messages on the Mothering Forums forums, you must first register.
Please enter your desired user name, your email address and other required details in the form below.
User Name:
If you do not want to register, fill this field only and the name will be used as user name for your post.
Password
Please enter a password for your user account. Note that passwords are case-sensitive.
Password:
Confirm Password:
Email Address
Please enter a valid email address for yourself.
Email Address:

Log-in

Human Verification

In order to verify that you are a human and not a spam bot, please enter the answer into the following box below based on the instructions contained in the graphic.



User Tag List

Thread Tools
Show Printable Version Show Printable Version
Email this Page Email this Page


Forum Jump: 

Posting Rules  
You may post new threads
You may post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off