Son diagnosed with PDD-NOS, what else should we be doing? - Mothering Forums
Forum Jump: 
Thread Tools
#1 of 3 Old 12-16-2011, 12:27 PM - Thread Starter
KatherineNaomi's Avatar
Join Date: May 2005
Location: Upstate NY
Posts: 436
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)

Hi, my 6 year old son recently got a PDD-NOS diagnosis. He's been getting services since the age of 2. We saw delays in his speech

(or lack there of) and motor skills and contacted EI. He's received speech and OT services ever since and as he's gotten older gets his services at the public school. We home school but I bring him in 3 times a week for therapy (speech x 3 and OT x 2, 30 minutes each). After much waiting we finally got him into an evaluation center where he got the PDD diagnosis in addition to speech apraxia and a mixed receptive-expressive language delay. His initial diagnosis up to this point was sensory processing disorder. My question is what is the next step? What else should we be doing for him? How do we address his social issues? Should we seek private therapy for him in addition to the school therapy? I feel a bit lost and could really use someone to point me in the right direction. I just got the official report in the mail and am hoping I can get an appointment to sit down with his pediatrician but until then I'd love to get your guidance. Thanks so much!!

Kate - Mama to Max (12), Noah (10), James (8) and Isabelle (5)

KatherineNaomi is offline  
#2 of 3 Old 12-17-2011, 07:11 PM
nayma's Avatar
Join Date: Jun 2008
Location: midwest
Posts: 324
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)

hi :).  i only have a second, but i'd personally recommend looking into both DIR/floortime and RDI.  at this age, especially, i think developmentally-based approaches are really important, and more likely to actively address social deficits than other approaches.  that doesn't mean other approaches don't have value to them in tons of ways- i'm just saying i found these most helpful as a parent who wanted to work on social interaction within the context of a *relationship*.  hope that makes sense.  and, also, please give yourself a second a remember that you don't need to do _____ in x amount of time.  this is not a race, and putting undue pressure on yourself as a parent will only burn you out :(. 

i say this to all parents new to any dx, as well- i found it INCREDIBLY helpful to find a support network of like-minded moms on this path.  i realized quickly that just because another mom and i both had kids the same age didn't mean we spoke the same parenting language.  this forum has been really helpful, but i also really appreciated a few blogs i found.  the ability to read things to which i could really really relate was priceless.  there are a million blogs, but if you ever want any recs, let me know...  lastly, i always found (and find) it helpful to read things by adults on the spectrum.  doctors and therapists can say anything, but reading words of someone similar to my daughter has been incredibly helpful for me.  things i could have never imagined were brought to my attention in the most honest ways.


nayma is offline  
#3 of 3 Old 12-20-2011, 10:08 PM
mamarhu's Avatar
Join Date: Sep 2004
Location: dining at the restaurant at the end of the universe
Posts: 3,017
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 2 Post(s)

My advice would be to use the diagnosis as a way of understanding your child, rather than as a preplanned path to therapy. There is so much variety in the needs, strengths, and challenges of kids on the autism spectrum that the question really is what problem(s) you are wanting to address. You mentioned speech and social issues. I guess the speech therapy and OT is going OK (because you are still doing itshy.gif). Are there specific social (or other) problems that you would be looking to solve? What kind of therapeutic interventions is your child likely to respond best to? One-on-one with a professional, you (as a parent) learning specific therapeutic techniques, parenting styles, group skills classes? I don't know what is offered in your area, but I would start by clearly defining want you want to accomplish, then finding services that suit your child's needs, rather than jumping into a program just because it is intended for kids with similar diagnoses. The Autism Spectrum is very broad, and even PDD-NOS really says very little about your family's needs or how to address them.

Rhu - mother,grandmother,daughter,sister,friend-foster,adoptive,and biological;not necessarily in that order. Some of it's magic, some of it's tragic, but I had a good life all the way (Jimmy Buffet)

mamarhu is offline  

Quick Reply

Register Now

In order to be able to post messages on the Mothering Forums forums, you must first register.
Please enter your desired user name, your email address and other required details in the form below.
User Name:
If you do not want to register, fill this field only and the name will be used as user name for your post.
Please enter a password for your user account. Note that passwords are case-sensitive.
Confirm Password:
Email Address
Please enter a valid email address for yourself.
Email Address:


Human Verification

In order to verify that you are a human and not a spam bot, please enter the answer into the following box below based on the instructions contained in the graphic.

User Tag List

Thread Tools
Show Printable Version Show Printable Version
Email this Page Email this Page

Forum Jump: 

Posting Rules  
You may post new threads
You may post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off