I've not been as active on here the last year and a half due to DS and just life. But last week my ds went through his final IFSP through a program called Pride and Joy (DS is 21 months) and they handed me a packet and some other information on parenting a child with special needs. Something I've never really thought about my son. Anyways. . . just thought i'd join back in here as I know this forum has alternative options and suggestions thanks to the diversity of the board. I am always looking for tips and help on how to handle juggling the kids (I have 2 older girls who are 6 and 8) and being a newly 100% sole custodial parent and with DS's new diagnoses.
I have been on this since DS was a baby, it started with GI issues and sleep issues. So we went from the GI, to the Ped Neurologist, to the Ped Psychologist, to a program called ALTA/Pride & Joy. He's undergone a bunch of evaluations and appointments and on top of having severe food allergies (soy, dairy, citrus) the neuro has dx'ed him with GAD and Unspecified Insomnia. He was the one that pushed me to get him screened for autism, which surprised me due to his young age and from there I found out that he has sensory processing/integration disorder (i keep reading different things on what it's called). He is an amazingly smart, bright, curious little guy who has taught me a lot about life. We start OT next week as well as a Sensory Diet (not sure what they meant by that) and then a few other services to help my son. Not sure what to expect
Sensory diet is looking at what kinds of sensory needs your son has and finding a way to apply them. It could be tactile, like needing heavy clothing or blankets, a soft toy or something to fidget with, or it could be providing quiet or certain kinds of background noise, or getting certain types of movement, like swings or being in water, etc. It's really individual. The entire process was really helpful to us, even though, since my son was diagnosed at an older age, he and us as parents had already kind of stumbled to a lot of these conclusions ourselves. Just having awareness of sensory needs was useful.
Busy keeping up with three children and an awful lot of chickens!
|Special Needs Parenting|