Celiac disease and group living - Mothering Forums

Forum Jump: 
 
Thread Tools
#1 of 7 Old 05-13-2012, 09:32 AM - Thread Starter
 
Treece's Avatar
 
Join Date: Apr 2006
Location: Planet Earth, most days
Posts: 957
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)

I have a question. We live in a group setting and my daughter has celiac disease. I don't have cooking facility (really only a communal microwave and my personal rice cooker). Meals are provided BUT as much as I have spoken with the kitchen staff my child is still unable to eat most of what is presented. They either mix gravy with meat, serve breaded crap, or use the tongs for bread and whatever she IS able to eat. I have complained about each of these. I am at the point of filing an official complaint about the kitchen in general. My child IS NOT the only one here with special issues. The ones I know of are a peanut allergy, diabetics, and religious dietary needs. So, it seems that THIS would be a big deal since a good tenth of use are affected by this. Some families choose not to eat here. This is not a choice I can afford to make every single meal, or I would (I wouldn't even be here if I could afford that). So here is my question: How do I deal with the lack of EMPATHY the workers seem to have??? I have gotten attitudes from most of them JUST from asking questions so that my child does not get sick.


intactivist.gifwinner.jpg fambedsingle2.gif  learning.gif homeschool.gif buddamomimg1.png gd.gif delayedvax.gif selectivevax.gif  supermod.gif (Yeah right)

angel3.gif loss 2/28/03           photosmile2.gif  ds 1/5/08             asl.gif dd 2/8/10
 
When we know better, we do better. ~Maya Angelou 

Treece is offline  
#2 of 7 Old 05-14-2012, 08:47 PM
 
sleepyrainfall's Avatar
 
Join Date: May 2012
Posts: 2
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)

Just saying what I feel at this moment, but I would go to a higher power. If they are unwilling/unable to compromise, then you have no choice. This is not a "picky eater." She CAN NOT eat these foods. I would think that having worked in a setting like that, they would be a bit more compassionate if not respectful for individual needs.....

sleepyrainfall is offline  
#3 of 7 Old 05-14-2012, 09:41 PM
 
rnra's Avatar
 
Join Date: Dec 2011
Location: USA
Posts: 584
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 1 Post(s)

Can you get a note from a MD detailing her celiac disease and the importance of a gluten free diet?  

rnra is offline  
#4 of 7 Old 05-15-2012, 05:30 AM
 
crunchy_mommy's Avatar
 
Join Date: Mar 2009
Posts: 6,501
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Yes, talk to whoever's higher up.

I think you need to outline exactly what you expect from them & ask them point-blank if they are able to accommodate her needs. Perhaps if they are not able to cook differently for the group, they could at least individually prepared meals for her or even have frozen dinners on hand or something, or give you vouchers to get meals for her elsewhere.

That sounds like an incredibly frustrating situation to be in.

Co-sleeping is really wonderful when your child actually SLEEPS!! familybed1.gif
crunchy_mommy is offline  
#5 of 7 Old 05-27-2012, 11:45 AM - Thread Starter
 
Treece's Avatar
 
Join Date: Apr 2006
Location: Planet Earth, most days
Posts: 957
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by crunchy_mommy View Post

Yes, talk to whoever's higher up.
I think you need to outline exactly what you expect from them & ask them point-blank if they are able to accommodate her needs. Perhaps if they are not able to cook differently for the group, they could at least individually prepared meals for her or even have frozen dinners on hand or something, or give you vouchers to get meals for her elsewhere.
That sounds like an incredibly frustrating situation to be in.


Thanks. It is incredibly frustrating. I have spoken with higher ups. I have decided she will be eating a lot of gf sandwiches until we leave here. I know its not healthy but McD's hamburger are gf. I order plain, no chz, no bun. Then i put ketchup and I'm thinking of adding her gf bun. She's getting tired of the same ole same. Ya know? I keep snacks for her and have stopped eating in the dining area. It causes too much stress for me. I am hoping to be out of here in about a month. I have jus decided to just be. They aren't going to be more sensitive and continually get the attitude. Then others think I'm being unrealistic. Honestly, if 1 in approximately 100 people have this condition SHE isn't the only one they have had to deal with. Anyways, I am just going to not eat in the kitchen unless I have no other options and now I do. :)


intactivist.gifwinner.jpg fambedsingle2.gif  learning.gif homeschool.gif buddamomimg1.png gd.gif delayedvax.gif selectivevax.gif  supermod.gif (Yeah right)

angel3.gif loss 2/28/03           photosmile2.gif  ds 1/5/08             asl.gif dd 2/8/10
 
When we know better, we do better. ~Maya Angelou 

Treece is offline  
#6 of 7 Old 05-27-2012, 01:24 PM
 
fruitfulmomma's Avatar
 
Join Date: Jun 2002
Location: Between the Rockies and a Flat Place
Posts: 4,244
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 19 Post(s)

gopicnic.com has some shelf stable gf meals, not all are so you have to read, but maybe you could get them to buy some to have on hand for her.

fruitfulmomma is online now  
#7 of 7 Old 06-09-2012, 08:12 PM - Thread Starter
 
Treece's Avatar
 
Join Date: Apr 2006
Location: Planet Earth, most days
Posts: 957
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by fruitfulmomma View Post

gopicnic.com has some shelf stable gf meals, not all are so you have to read, but maybe you could get them to buy some to have on hand for her.

 

 

Thank you so much for this!!!!!!


intactivist.gifwinner.jpg fambedsingle2.gif  learning.gif homeschool.gif buddamomimg1.png gd.gif delayedvax.gif selectivevax.gif  supermod.gif (Yeah right)

angel3.gif loss 2/28/03           photosmile2.gif  ds 1/5/08             asl.gif dd 2/8/10
 
When we know better, we do better. ~Maya Angelou 

Treece is offline  
Reply

Quick Reply
Message:
Drag and Drop File Upload
Drag files here to attach!
Upload Progress: 0
Options

Register Now

In order to be able to post messages on the Mothering Forums forums, you must first register.
Please enter your desired user name, your email address and other required details in the form below.
User Name:
If you do not want to register, fill this field only and the name will be used as user name for your post.
Password
Please enter a password for your user account. Note that passwords are case-sensitive.
Password:
Confirm Password:
Email Address
Please enter a valid email address for yourself.
Email Address:

Log-in

Human Verification

In order to verify that you are a human and not a spam bot, please enter the answer into the following box below based on the instructions contained in the graphic.



User Tag List

Thread Tools
Show Printable Version Show Printable Version
Email this Page Email this Page


Forum Jump: 

Posting Rules  
You may post new threads
You may post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off