Nephrogenic diabetes insipidus? - Mothering Forums

Forum Jump: 
 
Thread Tools
Old 08-08-2012, 05:34 PM - Thread Starter
 
Heavenly's Avatar
 
Join Date: Nov 2001
Posts: 4,743
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 1 Post(s)

Today we were told that my 11.5 year old son likely has nephrogenic diabetes insipidus.  We go for tests tomorrow to confirm.  He has been on lithium (for bipolar disorder) for 4 years and if he does have it the lithium is what caused it.  I am feeling so scared and guilty (bc we chose to put him on meds even though I know he needed them).  The dr said the damage may be permanent.  He will have to go off the lithium and try and restabilize on another med which is terrifying for me.  He has done so well on the lithium and I can't even begin to think about going back to how things were when he was unstable.

 

Regardless of how it was caused has anyone else dealt with diabetes insipidus?  The dr has me kind of scared, telling me how dangerous it will be if he ever got dehydrated and how he's at risk for some big long word I can't remember, basically electrolyte imbalance.  And if it is permanent does that mean he'll be suffering incontinence (100% of the time at night, urinary leaking during the day) for the rest of his life?  The poor kid has been through so much, I can't believe there is yet another problem.  I just want his life to be easy, not deal with all of this. :(


Shawna, married to Michael, mommy to Elijah 1/18/01, Olivia 11/9/02, and Eliana 1/22/06
Heavenly is offline  
Sponsored Links
Advertisement
 
Old 08-09-2012, 12:23 AM
 
LLQ1011's Avatar
 
Join Date: Mar 2012
Posts: 1,007
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)

I am so sorry mama. I don't have advice. Your poor son and you to have to go through all of this.

LLQ1011 is offline  
Old 08-14-2012, 08:29 AM - Thread Starter
 
Heavenly's Avatar
 
Join Date: Nov 2001
Posts: 4,743
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 1 Post(s)

We got word today that the diagnosis is confirmed.  He definitely has nephrogenic diabetes insipidus.  We have a long road ahead of us for many reasons. :(


Shawna, married to Michael, mommy to Elijah 1/18/01, Olivia 11/9/02, and Eliana 1/22/06
Heavenly is offline  
Old 08-14-2012, 09:07 AM
 
Linda on the move's Avatar
 
Join Date: Jun 2005
Location: basking in the sunshine
Posts: 10,637
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 85 Post(s)
I'm so sorry. I've been following your posts for years and I really feel for your son. He has been through so much already.

I'll be keeping him and your entire family in my thoughts.

but everything has pros and cons  shrug.gif

Linda on the move is online now  
Old 08-14-2012, 09:49 AM
 
Mirzam's Avatar
 
Join Date: Sep 2002
Location: Resistance Free Earth
Posts: 7,610
Mentioned: 3 Post(s)
Tagged: 0 Thread(s)
Quoted: 135 Post(s)

I too have been following your son's story. I am sorry this has happened to him.


t
 
"There are only two mistakes you can make in the search for the Truth. Not starting, and not going all the way." ~ Mark Passio
Mirzam is online now  
 
User Tag List

Thread Tools


Forum Jump: 

Posting Rules  
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off